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dilettantesteph

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Everything posted by dilettantesteph

  1. dilettantesteph
    I agree. I DON'T need to agree to disagree. LOL edited to add the don't that I thought I had put there to begin with.
  2. dilettantesteph
    I finally found a rice that I don't react to. I got it at a local Asian market. It is a product of Thailand, and I looked for a lot of Thai writing on the package so that I could be sure that it had also been packaged in Thailand. Yeah! I haven't yet tried it unwashed, but washed I don't react to it.
  3. dilettantesteph
    I also had a problem with those spices. I am one of those super sensitives though.
  4. dilettantesteph
    It is my experience that soap works better to remove gluten than plain water. I don't like the idea of eating soap, so I rinse well. I don't get diarrhea from using soap, I prevent diarrhea by using soap. It is important to rinse well until there is no soap remaining. I am glad for the people who don't need to use soap to not suffer gluten reactions....
  5. dilettantesteph
    My daughter is in Montreal, so if it is possible that she could get them there, could you pm me with the name? Thanks
  6. dilettantesteph
    I was definitely worse in the morning. I hope you get some answers soon so that you can get better.
  7. dilettantesteph
    I think that I have been where you are. I can understand the downward spiral and substance abuse. I needed a lot of discipline to recover from this illness. I am very sensitive and it took a lot of discipline to arrive at a safe diet. I had to keep that food symptom journal and track everything and be really careful about not adding too many things at...
  8. dilettantesteph
    I've not have good luck finding safe ones. Many say on the package that they were processed on lines that also process wheat. Others tell me that when I contact them. Rancho Gordo, last I checked used gluten free facilities, but were still problematic for me. I would love to hear of really good source that works for very sensitive celiacs that is available...
  9. dilettantesteph
    I'm sorry. I didn't word that carefully enough. I should have said something more like, only the very most sensitive of us might even consider that this might be an issue. Typical celiacs shouldn't worry about this one bit. I really only wanted to point out that at least one dish soap does contain gluten, so if this is a concern, you should look at...
  10. dilettantesteph
    This dish soap contains gluten: Open Original Shared Link It still should only be a problem for those of us who are more sensitive. As far as dish washing goes, I think that it depends on how sensitive you are and maybe also how careful your family members are and how good your dishwasher is. In our case, we have very sensitive family members and...
  11. dilettantesteph
    But, just try a tiny bit the first time!
  12. dilettantesteph
    It looks like hydrogen breath testing doesn't work with celiacs: Open Original Shared Link
  13. dilettantesteph
    I saw that it was confusing. That's why I tried to explain it. Typos happen.
  14. dilettantesteph
    Homeopathy means that things are diluted like a molecule in a swimming pool, or even worse, like you said. There are things that say homeopathy on the label that actually contain stuff. There is a zinc cough drop that says homeopathic that I used to take. My iodine supplement says homeopathic on it, but it contains the daily requirement of iodine in a...
  15. dilettantesteph
    Mushroom, you need to re read the post. She didn't say that there was gluten in aloe stems. She said that she would put aloe stems in their food to make them have to run to the toilet LOL. I did a google search, apparently the Sloan-Kettering Cancer Center says that ingesting aloe can cause diarrhea. It was just a joke.
  16. dilettantesteph
    It is weird. It is strange how some of us seem to get sensitive to lower levels over time. The level of sensitivity I have gotten to now is crazy. Plain and simple. It is no wonder people doubt it. Yet, when I manage to avoid gluten sources, I feel great, and I'm not having all those symptoms that I have when I get cc. Some of us have to be extremely...
  17. dilettantesteph
    I just had to add to this. A negative biopsy after 6 years gluten free means that you don't have celiac disease. This is after hearing that they don't count the lymphocytes. (Which would be all that might be expected on the gluten free diet.) There is no connection between celiac disease and GERD. There is no connection between celiac disease...
  18. dilettantesteph
    I really feel for you. If it is gluten, the goal should be to go on as clean a diet as possible until you are better. As you do that your mind should clear up and you should be able to cope with it all better and things will seem less crazy. When I am glutened I doubt myself too. I also get a bad mental reaction to gluten. It makes me make bad choices...
  19. dilettantesteph
    One way I knew I was extremely sensitive was when I ate a tiny bite of a gluten-free cookie, just to taste it. It was from a company that is very responsible, has gluten-free facilities and tests to make sure that their food is under 20 ppm. That tiny bite made me sick. That way I knew that if I wanted to eat a whole cookie, it needed to be far under ...
  20. dilettantesteph
    I am another with the libido and irritability issues. It seems like the smallest of contamination will mess with my libido, or maybe it is just my husband LOL. To be more clear, the issues went away for me with a good clean diet.
  21. dilettantesteph
    What do you mean by 100% gluten free? Different celiacs have different levels of sensitivity to gluten. Some celiacs who had been diagnosed with refractory celiac, or who were still having symptoms on the typical gluten free diet improved when they went on a gluten contamination elimination diet in this study: Open Original Shared Link The diet is...
  22. dilettantesteph
    Look at this reference: Open Original Shared Link It looks like increased lymphocytes indicate celiac disease. I think that this would be especially the case since you had already started the gluten-free diet. I would say that it is a very good sign that you blood levels were already down after a month. It would seem to indicate that you are responding...
  23. dilettantesteph
    I'm just reading this article: Open Original Shared Link It says: "Refractory coeliac disease (RCD) is currently defined by persistent symptoms and signs of malabsorption after gluten exclusion for 12 months with ongoing intestinal villous atrophy." To me, that looks like they expect you to be healed after 12 months. This article talks about...
  24. dilettantesteph
    She may need a more careful diet. Does she eat a lot of processed foods? My son's last endoscopy was negative, but he eats very few processed foods.
  25. dilettantesteph
    Some people do (like me), but we are the more sensitive ones. You say that you don't get symptoms, but you also say that you haven't gotten better. Maybe you do get symptoms and you just need to learn to recognize them? Try keeping a food symptom journal and look at all possible symptoms and not just the obvious diarrhea. Mine include blurred vision,...
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