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Latest Celiac Disease News & Research:
Everything posted by dilettantesteph
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ARCHIVED Is Wine gluten-free?
dilettantesteph replied to KikiUSA's topic in Gluten-Free Foods, Products, Shopping & Medications
I agree. Alcohol consumption is not the best thing when you are sick. Thank you for being more clear. -
ARCHIVED Any 'canners' Out There?
dilettantesteph replied to notme's topic in Gluten-Free Recipes & Cooking Tips
Thanks for the advice. I've been thinking about pressure canning, but hadn't gotten to buying anything yet. I've barely done any regular canning. I much prefer the taste of frozen, but the freezer fills up fast. Any advice about pressure canners? -
ARCHIVED Am I Starting Over Everytime Time I Get Glutened?
dilettantesteph replied to Mike212's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
It isn't like starting over. I made steady progress despite glutenings as I was figuring stuff out. You will too. -
ARCHIVED Is Wine gluten-free?
dilettantesteph replied to KikiUSA's topic in Gluten-Free Foods, Products, Shopping & Medications
It is thought that a gluten reaction comes from a certain amount of daily intake and not a certain concentration. There have been studies done on this. This is an FDA review of the studies which is long: Open Original Shared Link This is the most often cited one from which the 20 ppm safe limit came. Open Original Shared Link You will see that... -
ARCHIVED Just Got Back From The Gi Dr. This Is What He Thinks.......
dilettantesteph replied to answerseeker's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Something like 10% of celiacs react to the avenin in oats similarly to how they react to the gluten in wheat, barley and rye. If you had a really bad reaction, you may be in this group. If you try again, try just a little bit of gluten-free oats until you know that you can tolerate them. I am in the oat sensitive group myself and I wish that someone had... -
ARCHIVED Any 'canners' Out There?
dilettantesteph replied to notme's topic in Gluten-Free Recipes & Cooking Tips
With a pressure canner, can you can things like veggies without adding acid or anything else? How hard is it to do? My freezer is getting way too full. I think I need to start doing some canning as well as dehydrating. -
ARCHIVED Not Sure What To Do
dilettantesteph replied to thegirlsmom's topic in Coping with Celiac Disease
Have you changed something in your diet? Did you try a new product or eat our where some cc might have happened? Is your celiac having a flare due to accidental gluten ingestion? -
ARCHIVED Should I Work Out Or Is It Pointless?
dilettantesteph replied to Mike212's topic in Sports and Fitness
You are welcome. Have a good summer. My 16 year old son has started running recently. It is good to see him able to do that. For so long his reflux symptoms kept him from being able to do much.- 13 replies
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ARCHIVED Reaction From Aylmer's Diced Tomatoes
dilettantesteph replied to Gabzounette's topic in Gluten-Free Foods, Products, Shopping & Medications
It could be additional intolerances, it could be cc from your mother. It could be cc in the food. I would suspect the gluten-free products before the tomato sauce. It might be a good idea to only buy gluten-free foods that have been tested to below 5 ppm. It could be that he is sensitive to lower than usual amounts of gluten. It could be that he still... -
ARCHIVED Gluten-Free, Soy-Free Eggs
dilettantesteph replied to eve789's topic in Gluten-Free Foods, Products, Shopping & Medications
I had a phone call with a farmer who had been shipping eggs in the mail. Some government agency had come down on her. Eggs need to be shipped in a narrow temperature window and they were still trying to figure out a way to do that. It probably wouldn't be practical for a flock of 17 hens. Lisa's idea is a good one. There is a pasture raised meat and... -
ARCHIVED Has Anyone Healed Some Of Their Intolerances?
dilettantesteph replied to Maryw88's topic in Food Intolerance & Leaky Gut
I had been unable to have dairy for years before diagnosis. After about a year I tried some cheese and was able to tolerate it. These days I can have about 3 glasses of milk a day. (It's from grass fed). -
ARCHIVED Should I Work Out Or Is It Pointless?
dilettantesteph replied to Mike212's topic in Sports and Fitness
I understand the fatigue. Some days you might just want to go for a walk. It really does help to get out and do something.- 13 replies
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ARCHIVED Watkin's Glen, New York
dilettantesteph replied to NJceliac's topic in Traveling with Celiac Disease
I think that this is the closest celiac support group: Open Original Shared Link They have some restaurants on the site, or you can join the e-mail group and ask the members for suggestions. -
ARCHIVED Reaction From Aylmer's Diced Tomatoes
dilettantesteph replied to Gabzounette's topic in Gluten-Free Foods, Products, Shopping & Medications
I have to agree than any possible tiny cc from tomatoes would most likely be much less than any cc from the sitter. There is also the nightshade sensitivity issue to consider. In how much detail have you described the situation to the sitter? How old is your son? The transition period can be a bit tricky, but once you get things figured out, you will... -
ARCHIVED Help? With Coffee?
dilettantesteph replied to kitkatkid's topic in Gluten-Free Foods, Products, Shopping & Medications
Coffee has sometimes been found to fraudulently contain barley. Open Original Shared Link That might be the cause of some people's issues. -
ARCHIVED Gluten-Free, Soy-Free Eggs
dilettantesteph replied to eve789's topic in Gluten-Free Foods, Products, Shopping & Medications
I would love it, but I'm not close enough. -
ARCHIVED Gluten Free For 3 Months, Not The Slightest Bit Better?
dilettantesteph replied to gabechevarrieta's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The link given above is titled: "Effects of n-3 polyunsaturated fatty acids on hepatic tight junction after partial hepatectomy in rats." It refers to the liver and not to the intestines, plus it is done on rats. I would not, personally, take that to mean that taking fish oil would help my celiac disease symptoms. It is really difficult to interpret... -
ARCHIVED Mental Health?
dilettantesteph replied to LFitts's topic in Parents, Friends and Loved Ones of Celiacs
I'll tell you what I remember working with my kids when they were clingy. I smothered them with attention. Then they got reassured and felt independent again. I found that if I tried to push them away before they were ready, it backfired. -
ARCHIVED Am I Super Sensitive Or Just Recovering?
dilettantesteph replied to Mike212's topic in Super Sensitive People
You can learn a lot about cooking on the internet. It actually doesn't take that much longer to make a rice stir fry from fresh produce than it does to prepare it from a box. You just need to get used to the routine. My 16 year old son cooks up our veggies while I make the rice and he does a great job. -
ARCHIVED Should I Work Out Or Is It Pointless?
dilettantesteph replied to Mike212's topic in Sports and Fitness
Definitely work out. I believe that it helps with the healing process. I always feel better when I work out. Don't worry about the 6 pack abs though. Just try to be healthy. From a woman's point of view, sometimes those really built guys just look self centered rather than appealing.- 13 replies
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ARCHIVED Update On The gluten-free Status Of Shiloh Farms.
dilettantesteph replied to seraphim's topic in Gluten-Free Foods, Products, Shopping & Medications
Thank you. There seem to be few places where you can get beans that aren't processed in a shared facility. -
The studies I saw: Open Original Shared Link Open Original Shared Link were for Bifidobacterium infantis 35624 Along with Align, Natren makes a product containing it, and they have a formulation that uses goats milk instead of cow milk. My son and I have both been taking the Align and I think that it does make us less sensitive to gluten. We both...
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ARCHIVED Cross Contamination - The Bane Of My Life!
dilettantesteph replied to Greebo115's topic in Coping with Celiac Disease
You need to consider the detection limit of the test. Some are sensitive to lower levels than detectable by home tests. Open Original Shared Link -
ARCHIVED Am I Super Sensitive Or Just Recovering?
dilettantesteph replied to Mike212's topic in Super Sensitive People
There isn't an easy way to tell if you are super sensitive or not. A month isn't very long at all for healing. You could reduce some of those processed things. You can always try adding them back later. I hope you feel better soon. It is hard to try to do well in high school while sick all the time. My super sensitive son is 16 and I see that with... -
ARCHIVED Have You Been Told It Is All In Your Head?
dilettantesteph replied to lovechild's topic in Coping with Celiac Disease
It is very hard to figure out what exactly it is that you are reacting to. I have often blamed it on one thing only to find that it was another. In my case, I get sick the next day so that it could be anything I ate the day before. It can take quite awhile to get it all sorted out. You have to be patient. Write it all down. It's pain, but worth it....