Jump to content

dilettantesteph

Advanced Members
 View Profile  See their activity

  • Posts

    2,862

  • Joined

  • Last visited

  • Days Won

    30

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by dilettantesteph

  1. dilettantesteph
    I suggest that you look into super sensitivity to gluten. That might be one of your problems. Your situation seems very complicated.
  2. dilettantesteph
    With me, the reaction is very much like my reaction to wheat gluten. It isn't something you get over. It is genetic just like celiac disease. You can substitute sorghum, millet, rice, etc. It's not so bad.
  3. dilettantesteph
    That old thread you read is most likely from super sensitive celiacs who react to very tiny amounts of cc. Typical celiacs don't need to worry.
  4. dilettantesteph
    It has been a problem in my house too. Now the older one has also been diagnosed with celiac disease, but the younger one has a lot more problems with cross contamination and symptoms. He really needs more special attention, but then the older one interprets it as greater love. They are 15 and 17 so you would think that they would be old enough to know...
  5. dilettantesteph
    Some celiacs react to lower levels of gluten than others. Some find that they need to stick to foods made in a facility where gluten grains are not present at all. Since a distillation of a gluten grain cannot be done in a facility where gluten grains are not present, that could indicate an issue for these super sensitive celiacs. The distillation process...
  6. dilettantesteph
    A food diary is what worked for me. Don't just write down the foods, write down what company they come from if they are processed or the source if they aren't. I found that I could tolerate certain items from one company and not another. Sometimes I could tolerate a food from one vendor at a farmer's market, but not another. You also need to figure...
  7. dilettantesteph
    When I first cut out bread and cheerios after my diagnosis I felt great too. Later I started experiencing symptoms again. I found out that it isn't uncommon to seem to become sensitive to lower levels of gluten after the diet has been started. I needed to learn more about the diet and where gluten can be found. After I got better at eliminating all gluten...
  8. dilettantesteph
    !! Sounds like you are on your way. I hope things continue to go well.
  9. dilettantesteph
    I would try to make it myself with Lundberg farms rice. I haven't tried Gluten Free Sensations.
  10. dilettantesteph
    I think that they can add up. I'm one of the super sensitive ones and don't eat very many at all.
  11. dilettantesteph
    I'm sorry to have to say this, but I have to agree with the person who thinks that it might be the few safe products. I am a super sensitive celiac, and I have problems with some of those products. I also have problems with some farmers. I need to check with them about their farming practices. I think that the use of wheat containing slug and cricket...
  12. dilettantesteph
    It seems like a fairly common problem: This article talks about some journal articles in the New England Journal of Medicine: Open Original Shared Link
  13. dilettantesteph
    What do you mean by very strict? Are you eating a lot of processed foods? You could try a produce and unprocessed meat only diet. Are you still eating dairy? You may have lactose intolerance, many do especially at the beginning. I didn't get better eating gluten free initially either. I tried eating only processed foods made in dedicated facilities...
  14. dilettantesteph
    I can't eat processed sugar either. I don't have problem with sugar beets or a certain brand of honey, so I can still get a bit of a sweet fix. I was wondering if it is something about the processing or the sugar itself so I grew hardy sugar cane. I got so little sugar out of it that I still don't know, but it is a nice ornamental grass for my garden.
  15. dilettantesteph
    If you are going by plane this won't help, but if you are going by car it will. I have a cooler that will plug into the car or socket in the house. It could be your own mini fridge in your room so you don't have to worry about contamination in the fridge. I also have a mini microwave with a handle on top for travelling, though you wouldn't want to...
  16. dilettantesteph
    Yes. Finally at the last appointment my teeth were good and I got complimented on how well I take care of them. In fact, all I do now is brush and floss. I haven't kept up the various gadgets and techniques I was given over the years when they didn't make any difference. What made the difference, I think, is getting diagnosed and getting the diet figured...
  17. dilettantesteph
    Though he may call himself "1 of the leading Gluten Dr's/Researchers", I don't think that any of the actual leading gluten Dr's would agree with that. I don't think that he has published any gluten research. He is not a medical doctor. I would call the video his opinion rather than the opinion of the medical community.
  18. dilettantesteph
    Before getting too scared, look at the credentials of the author. Is he a medical doctor? A gastroenterologist? A research scientist? None of these things. Then look at whether or not they are trying to sell you something. Yes, they are. You can also look at the quoted studies more carefully. In some cases they are talking about people who aren...
  19. dilettantesteph
    I was going to say internet and phone book for finding a compounding pharmacy. I think that's what I did here. Your pharmacist might know of one.
  20. dilettantesteph
    How cautious you have to be depends on how sensitive you are. You will make yourself crazy worrying about all those things before you even know if you need to worry about those things. Stop cheating on the diet and wash your hands before you eat and see what happens. I am extremely sensitive, and even I noticed a big improvement just doing that. Gluten...
  21. dilettantesteph
    Wow. Thank you for the Lyme disease education. That is going to be very difficult to go through Lyme and super sensitive celiac. Do you know about compounding pharmacies? They make up drugs for you and that way you can be sure what the fillers are. Plus, you can tell them about your super sensitivity so that they can be really careful about how they...
  22. dilettantesteph
    For a probiotic, I make my own yogurt from Stonybrook farms organic plain whole milk yogurt and the no vitamin added whole milk from grain free cows which I get from a local farmer. Then I reuse it for a few cycles. The dilution factor seems to work. I tried with natural salt fermentation for awhile but it didn't work very well. I should try again. ...
  23. dilettantesteph
    A possible problem with dedicated facilities is that they have to get their materials from somewhere, and are they dedicated? I thought that antibiotics were the accepted treatment for Lyme disease. Have you looked into that carefully? Maybe your best course of action would be to find a new doctor to treat your Lyme disease. That might help all your...
  24. dilettantesteph
    If your pain is decreasing naturally it might just take more time. If your elimination diets have turned up nothing, you may be better off being patient and waiting for the healing process. At a later point if your pain is still a problem and stops decreasing, that might be the time to look for another cause. It can take a long time to heal. It is taking...
  25. dilettantesteph
    What I did for my elimination/challenge diets is to eliminate only one food for one week and then add it back without changing anything else for another week, meanwhile tracking my symptoms. If I noticed that the food had a bad effect, I wouldn't eat it anymore. Repeat. It took a long time. This was more manageable for me than eliminating a whole bunch...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.