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dilettantesteph

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Everything posted by dilettantesteph

  1. dilettantesteph
    I don't take very many. I found it helpful to keep them to as few ingredients as possible, and to take them in as concentrated a form as possible so that there was less filler to worry about. I found it helpful to do elimination/challenge diets on my supplements. I would stop taking one for a week and then start taking it again without changing anything...
  2. dilettantesteph
    From what I know, refractory celiac is when you don't respond to the gluten free diet. My GI doc thinks that in most cases it is because you are reacting to trace gluten. I see that you say that isn't the case for you. I hope that your doctor finds some treatable condition and that you can get better. I can tell you that there are foods in your diet which...
  3. dilettantesteph
    If the blood tests are 90% accurate, that means that 10% of the time they are not accurate. You could be one of the 10%.
  4. dilettantesteph
    I don't have any scientific evidence that there is gluten in eggs. I only have my own experiences and those of my children which are subjective. It isn't easy finding chickens that aren't fed supplemental grain here either, especially in the winter. I live in the northern part of the country. I had eliminated eggs from the grocery store as I felt better...
  5. dilettantesteph
    My son and I both lose weight every time we have problems with one or more of our foods bothering us. We have to do diet challenge/elimination studies to figure out what it is. We both get pretty obvious symptoms so that helps figure it out. Then we consume like crazy to get the weight back up again. Whole milk and whole milk yogurt helps a lot. I've...
  6. dilettantesteph
    In my area you can get fresh produce really cheap at the farmer's markets. I don't know how those guys make a living. It might help for you to keep a gluten free household. Other members of the family can still eat gluten outside the house, but it will cut down on cross contamination possibilities in the house. That helped us.
  7. dilettantesteph
    I hadn't really thought about oat use not being disclosed on the label. Maybe that could explain some of my reactions to processed foods. I react to oats too. Do you remember what brand that was?
  8. dilettantesteph
    If smoothies work, how about pureed vegetable soups? They can be more like a liquid than a solid. You could drink them from a cup. You can get your nutrition from fruit smoothies and vegetable soups to start with. Meanwhile you can work on adding small amounts of more solid food, and work your way up. I wish you well.
  9. dilettantesteph
    I am a super sensitive celiac and I have to be super careful to not be ill. If I were not symptomatic, I would not be super careful. The chances of minor cross contamination causing harm in someone who is not symptomatic seem low to me. All the studies that I have read where harm was caused were with celiacs on a regular gluten containing diet.
  10. dilettantesteph
    I've been recommending this to my daughter, who is less sensitive than I am. I thought it was fairly safe. I think that I have reacted to it periodically, but that it was mainly good. I hope that you find out that it was something else. Can you please let me know? I generally stick to the groats because then I can see if there is something in there that...
  11. dilettantesteph
    My husband hasn't been as supportive as I would like either. At first he was almost combative not wanting to believe the doctors. Somehow he thought that he knew better than they did. He has come around a bit five years later. We do need to appreciate that this is hard on our loved ones too, though in a different way. He will still make appreciative...
  12. dilettantesteph
    I am sensitive to low levels of gluten and the meat which I had the best luck with was pork tenderloin. You just take it out of the package and put it in the oven for the right amount of time. I got stuff packed at the meat processor in the absence of any gluten containing products. I asked.
  13. dilettantesteph
    Have you tried different sources of the same thing? That might be helpful to see if you are reacting to the item itself, or something used in it's growth, harvesting or processing. I found that to be the case for me. I was fine with things from some sources but not others. That lead me to be able to find safe sources of some things that I can eat, rather...
  14. dilettantesteph
    So true.
  15. dilettantesteph
    I think that it is auto immune and not malabsorption since the symptoms come on quickly upon accidental ingestion of gluten.
  16. dilettantesteph
    All Dove products are not gluten free. What they are is a Unilever product, and they state that they will give the origin of ingredients. For instance some Dove shampoo's will state hydrolysed wheat protein as an ingredient. Open Original Shared Link Hydrolyzed wheat protein is an ingredient in at least one: Open Original Shared Link
  17. dilettantesteph
    I have had this problem with my husband. Good luck getting through it. It can certainly cause problems with the relationship. Since my son also has celiac disease, my husband finally got tested a few years after our diagnoses. He found out that he had it too and things got better when he was also gluten free. I think it must have been that the tooth...
  18. dilettantesteph
    It took me about 4 years to heal/develop my diet. I don't know if I would have healed faster if I had gone on the diet I am now on right away. I do know that if I go back to eating some of the things I used to eat, I get sick again. Periodically I'll try one of them just in case. I just kept reading and informing myself about trace gluten sources and...
  19. dilettantesteph
    Have you had repeat blood testing to see if your antibody levels have gone down? There are many possibilities for celiac disease like symptoms, some of which were mentioned above. I will tell you about the one which applied to me and my son. It is widely accepted that for the vast majority of people with celiac disease the accepted 20 ppm proposed...
  20. dilettantesteph
    Listening to others doesn't work well for me. I react to lots of things which others don't and sometimes I don't react when others say that they do. If I am experiencing symptoms, I eliminate one food at a time for a week and see if I feel any better. Then I reintroduce it to see if I get better or worse. I read all I can to help me to decide what...
  21. dilettantesteph
    My experience with beets is that I do better with them from my garden where there are no contamination concerns. Even then, though, I sometimes have problems. They seem to be able to make a preexisting minor stomach problem seem much more major! Beets are known to have an effect on the bowels. Open Original Shared Link
  22. dilettantesteph
    I had problems with urinary tract infections, including hospitalizations since I was a child, probably due to undiagnosed celiac disease. As a teen I started drinking cranberry juice and it helped enormously to control the infections. I only had problems when I stopped drinking the juice, and I could control them again by resuming it. Here is a reference...
  23. dilettantesteph
    Thanks for posting. I already watched it. I hadn't understood before that one reason for the development of GMOs was to enable the use of massive amounts of round up. That might be more responsible for the problems than the genetic modifications.
  24. dilettantesteph
    I'm glad I was helpful. I was afraid I was discouraging after seeing your first comment! (Oh gosh, 4 years???)
  25. dilettantesteph
    Some of us react to smaller amounts of gluten than others. Some things that are considered to not be present at all can be present in very small amounts. I am a chemist and routinely do distillations. They are not 100.0000000% perfect. I get spectroscopic analysis of my products. There can be other things in there in small amounts, even things with much...
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