Jump to content

dilettantesteph

Advanced Members
 View Profile  See their activity

  • Posts

    2,862

  • Joined

  • Last visited

  • Days Won

    30

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by dilettantesteph

  1. dilettantesteph
    I am sensitive to extremely low amounts of gluten cc. I have reacted to 100% olive oil in what seemed like a gluten reaction. It took a long time to figure out that it was getting me because I hadn't considered it. It took me a long time to find a safe brand.
  2. dilettantesteph
    The celiac specialist in my GI group thinks that refractory sprue comes from celiacs who are sensitive to extremely low levels of gluten. He thinks that small amounts of cc in their diet can get them, and that if only they can get their diet clean enough, they can get healthy. I believe that I am in this category. I have problems with those things that...
  3. dilettantesteph
    Although you are extremely sensitive, it is certainly possible that there are celiacs out there who are more sensitive than you and do have to worry about things like this. They wouldn't necessarily be included in warnings from major celiac organizations since they wouldn't apply to most celiacs.
  4. dilettantesteph
    Some of us are sensitive to lower levels of gluten than others. It also has to do with the amount that you eat. Someone here has given the example of low fat foods. If you eat enough of them you will still gain weight. Maybe try to cut down on the processed foods and stick to more whole foods.
  5. dilettantesteph
    The celiac specialist in my GI group has stated that he believes that refractory celiac disease comes from gluten in the diet and that some celiacs are sensitive to lower levels of gluten than others, just as you stated. Some doctors are not dropping the ball. The celiac community may be somewhat behind. We should be requesting more care in the preparation...
  6. dilettantesteph
    I also needed a dedicated facility, and so did my son. As time progressed we got more sensitive and now we can't eat very many processed foods at all. Do you have a gluten free household? If she needs a dedicated facility, she may need that too. Have you tried apple slices for a snack? Clementine oranges?
  7. dilettantesteph
    One issue is are you reacting because you are intolerant to these foods, or is it trace gluten contamination? For example, I ate tomatoes all summer from a particular supplier at the Farmer's Market. Before that I found that certain provider's tomatoes from the grocery store bothered me and certain others didn't. When my supplier stopped coming to the...
  8. dilettantesteph
    I found that strenuous exercise made me have gluten symptoms too and I had to clean up my diet more. This reference: Open Original Shared Link disease=32&hl=en&ct=clnk&gl=us&client=firefox-a says this about the topic:"Strenuous exercise, medications and xenobiotics, by increasing splanchnic blood flow, may cause an increase in mucosal...
  9. dilettantesteph
    I know that gluten has a strong affect on my mind as well as on my body. It sounds like this guy is still figuring things out since he is still having a lot of issues. I know that it took me a long time to figure out what I could eat, and in the meanwhile I wasn't quite all the way sane. Give the guy a break. Nonetheless I agree that you need to come...
  10. dilettantesteph
    I have that problem when glutened.
  11. dilettantesteph
    My best guess would be that you have become more sensitive to trace contamination over time. The diet which worked for you very well earlier on no longer works for you. That happened to me. You could try to cut out processed foods and other possibly contaminated foods and go on a whole foods diet. See if that works better for you. A couple of weeks on...
  12. dilettantesteph
    What is the sensitivity of your test? Bob's tests their products to 20 ppm, so unless you test is more sensitive than that all Bob's gluten free products should end up negative. Amy's tests to 5 ppm, so unless your test is more sensitive than that, Amy's gluten free products should test negative. If you contact companies they will often tell you to what...
  13. dilettantesteph
    Tricia Thompson did a study recently on gluten free grains and found them to be contaminated with gluten. Your pizza may have been similarly contaminated and your D might be a gluten reaction. It could have also gotten contaminated in the facility. Was it processed in a facility which also processes grain? Some gluten free pizza is more gluten free than...
  14. dilettantesteph
    It seems like some of us react to below the testing limit for gluten of 5 ppm. That makes it very hard to tell if it is something else causing the reaction, or if it is cross contamination.
  15. dilettantesteph
    It could also be from cross contamination. Have you seen Tricia Thompsons study about the contamination of gluten free grains? You could try cutting out grains for awhile. I sort, wash and grind my own.
  16. dilettantesteph
    I am very sensitive and I drink Franzia burgundy without issues.
  17. dilettantesteph
    I remember it taking quite awhile for my depression to go away. I'm not sure if it was slow healing or needing a more clean diet.
  18. dilettantesteph
    I am very sensitive and find that I can drink some wines, but others seem to gluten me. Same with other "gluten free" alcoholic drinks like beer and cider. Over time I have found which I can drink and I stick to them. That's not going to do you much good over in South Africa though. I think that you are going to have to do your own trial and error. Good...
  19. dilettantesteph
    My back problems largely cleared up gluten free, but come back when glutened. What also helped a lot was an exercise and stretching program developed with a physical therapist.
  20. dilettantesteph
    When I heard Fasano talk he showed an iceberg and said that the celiacs with no symptoms were like the part of the iceberg under the water. I can't say that most undiagnosed celiacs suffer from depression. From reading on forums I can say that lot of diagnosed celiacs report that they suffered from depression before diagnosis.
  21. dilettantesteph
    I was thinking that you were from the U.K. from your use of the word knackered. I don't think that Americans use that term. At least I get strange looks whenever I use that term over here. I would like to second Jersey Angels suggestion of a whole foods diet. You may be reacting to gluten cc of some of your processed foods. Some of us like me can't eat...
  22. dilettantesteph
    I have become extremely more sensitive. At first giving up bread and cereal seemed to cure me. Then I couldn't tolerate foods processed in the same facilities as those that process wheat. Then it was all processed foods. Now even some produce gets me depending on if wheat materials are used in production. It has gotten crazy, but if I try really hard...
  23. dilettantesteph
    I'm not sure I get your meaning, but testing for corn intolerance by eating mesa flour will not work very well because it could be contaminated. Try corn on the cob instead. Buy an intact cob. Husk it yourself, wash it carefully and then eat it. We can eat corn in that way in our family, but can't eat processed corn products. See an allergy doctor for...
  24. dilettantesteph
    My personal experience is about the same as T.H.'s and she explains it so well. My son and had to give up processed gluten free foods to be symptom free. Your daughter could still be getting gluten. You can keep a food diary and see what she eats when she has more problems. Probably some of her foods are worse than others, or maybe it is the amount of...
  25. dilettantesteph
    Hope you feel better soon. I still haven't tried the Madhava, but I did order some and take a little taste. It's good.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.