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Latest Celiac Disease News & Research:
Everything posted by dilettantesteph
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ARCHIVED What Exactly Is Considered "processed Foods"?
dilettantesteph replied to tomtom009's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
When I consider CC, it is Connie's definition I use. Once man gets involved... -
I am sensitive to airborne gluten. I got very sick when I accidentally breathed in some flour when I threw mine out. The other day I went biking in the country and got worried when I saw farmers turning over their fields, maybe winter wheat? I was fine. I am much more sensitive to trace gluten in food. Unless you have some obvious source of airborne...
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ARCHIVED Cross Contamination Issues
dilettantesteph replied to Jacky's topic in Gluten-Free Foods, Products, Shopping & Medications
You could try to only eat gluten free food that is processed in gluten free facilities. That cuts down on CC and is what some celiacs do. Personally, I avoid processed foods in general. I don't think that you need to go that far yet. -
ARCHIVED Nausea Is Back! :(
dilettantesteph replied to misslexi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It is possible that your symptoms are the result of trace gluten exposure and that you have gotten more sensitive. You could try going on an unprocessed food diet and see if things clear up. Then add one food a week to see what was bothering you. We are in the middle of this with my son (12 years). He went from vomiting, D, grumpy and DH to perfectly... -
ARCHIVED Why Do My Symptoms Flare Up When I Excerise?
dilettantesteph replied to tomtom009's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
The same thing happened to me when I started exercising more vigorously. I found that when I rid my diet of more trace gluten, I could exercise even more vigorously without any more symptoms. Basically no processed foods. I figure it is probably best that I got my diet cleaned up. -
ARCHIVED Totally gluten-free And Symptoms Have Returned?
dilettantesteph replied to kprince's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Some celiacs can't eat processed gluten free foods, especially those containing grains. Try eating only non processed foods for a week and see if things improve. If so, you can add other foods one per week so that you will be able to tell what was bothering you. -
ARCHIVED Non-Celiac Gluten Intolerant Athletes-- Please Share Your Story
dilettantesteph replied to ar8's topic in Sports and Fitness
It is much harder to exercise with gluten than without. Yesterday I did my usual run after getting glutened accidentally and it took me an extra 5 minutes or so on a 30 minute run, and I felt like I was running harder than usual. Ha, Ha. The same apparent effort yields much lower results. Wasn't too bad though, I just got glutened a tiny bit. I still... -
ARCHIVED Getting Fed Up And Tired Of It.
dilettantesteph replied to conniebky's topic in Coping with Celiac Disease
I can't eat the chex cereals either. I stick with not processed foods. For spices, I just use the fresh ones that I can wash first. Glutening used to always last me a week or so. Now I can get over it within a day. -
ARCHIVED Homemade Almond Milk
dilettantesteph replied to Roda's topic in Gluten-Free Recipes & Cooking Tips
I've noticed that musty smell too. I'll try without soaking next time. That would be more convenient too, I wouldn't have to remember to shell the nuts the day before I need them. I thought that it was supposed to remove the bitter taste. I have made pecan, almond, hazelnut, walnut, cashew, and grain. I use a grain mixture of 6 different gluten free... -
ARCHIVED Need Some Buckin' Up :-(
dilettantesteph replied to conniebky's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
You don't want to hear my answer. I can't find any chocolate that I can eat. I make my own cookies after the sort, wash, dry and grind technique. Last time I had just one bite of a gluten free cookie, (tested to below 20 ppm) it got me. I can have some juices, some cheese, some coffee, some tea, some booze, but no gluten free grain products. -
ARCHIVED Diverticulosis As A Side Effect?
dilettantesteph replied to lilbit's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My father, close to 80, was having problems with diverticulosis and it wasn't responding well to conventional treatment. Knowing I'm celiac, he stopped eating wheat and his symptoms went away. He was previously tested for celiac via blood testing and the test was negative. I'm just glad that he got relief of symptoms. -
ARCHIVED Cross Contamination In Other Grains
dilettantesteph replied to thleensd's topic in Gluten-Free Foods, Products, Shopping & Medications
About 20 minutes a day. Like stated above, it is a lot less time than I spent being sick before. I do enjoy my bread, cookies and pancakes. -
ARCHIVED Cross Contamination In Other Grains
dilettantesteph replied to thleensd's topic in Gluten-Free Foods, Products, Shopping & Medications
I am very sensitive to trace gluten. To eat grains, I buy then whole and then go through them grain by grain. I bought my millet from a millet only facility. They said that there wasn't any wheat grown within 100 miles and no chance for contamination. In the 25 lb bag, I found roughly 50 grains that looked like wheat. When questioned they said that they... -
ARCHIVED Need Some Buckin' Up :-(
dilettantesteph replied to conniebky's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Gluten free has to be defined somehow. Zero gluten is not testable. Some of us are sensitive to levels that are not testable, or at least at levels below those used to define gluten free. Most celiacs are able to eat these foods. Unfortunately for me, it does make sense to define gluten free at a level that most celiacs can tolerate, but not all. -
ARCHIVED 2 Unexpected Places I Found Wheat
dilettantesteph replied to minamoo's topic in Gluten-Free Foods, Products, Shopping & Medications
I've found wheat in (gluten free) whole grain sorghum, corn, and millet as well as lentils. -
ARCHIVED Need Some Buckin' Up :-(
dilettantesteph replied to conniebky's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Do you mean the blood test for celiac disease? It tests for antibodies to gluten in the blood. To have these in measurable levels you need to be eating a lot of gluten. People need to have this test done before going gluten free. -
ARCHIVED Not #2, But #1
dilettantesteph replied to The Glutenator's topic in Coping with Celiac Disease
This has been a problem for me too, for years before diagnosis, and now when glutened. It helped to drink cranberry juice every day. You might want to get tested for a urinary tract infection. That can lead to frequency of urination. Before I started with the cranberry juice, I got infections frequently. -
ARCHIVED Need Some Buckin' Up :-(
dilettantesteph replied to conniebky's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I've been noticing your posts for awhile and I have been thinking that you might be "one of us". A celiac that is more sensitive to trace gluten than others. I know that you are still new to the diagnosis and it may still be too early to tell. I can't eat rice chex cereal either. Have you tried it before? What I do is only add one new item a week. That... -
ARCHIVED More Sensitive To Gluten After Being gluten-free?
dilettantesteph replied to kpryan's topic in Coping with Celiac Disease
I have definitely gotten more sensitive. I am crazy sensitive now. I can't eat most processed things and have to even be careful about my produce. Out of my garden things are fine, but I have to watch out for which companies tomatoes I buy etc. It is a huge pain. -
ARCHIVED More And More I Read The Scary This Gets!
dilettantesteph replied to prisskitty's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I think that Doctor is this one. Open Original Shared Link He is a chiropractor and clinical nutritionist, not a M.D. or a G.I. doc, or a neurologist. I believe that the gluten in corn and rice is of a very different structure than the gluten found in corn and rice. They are both called gluten because gluten means storage protein found in grain, not... -
ARCHIVED The Rest Of The Household...
dilettantesteph replied to NorthernElf's topic in Coping with Celiac Disease
I think that it depends on how sensitive you are to trace gluten. My son and I are celiac and my daughter and husband aren't. We tried for a year to have a mixed household, and set up separate areas and all that, but my son and I just couldn't get healthy until we started to have a gluten free household. We are both very sensitive, and I guess we were... -
I don't blame you one bit for getting angry. Being glutened doesn't exactly lead to level headedness in my case. I know that my husband is very quick to get defensive and go on some sort of retaliatory attack rather than apologize when he messes up. I think that some men are wired that way. I suspect that is what happened. My husband is also out of town...
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I get that too. I think that is what they mean by peripheral neuropathy. Does that sound right?
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ARCHIVED Stonyfields Yogurt
dilettantesteph replied to conniebky's topic in Gluten-Free Foods, Products, Shopping & Medications
It might have been from the strawberries. I have had problems with strawberry ice cream (gluten free). Sometimes strawberries are grown on straw and it seems like some more sensitive celiacs like me can have problems with produce grown on straw. Thanks for the head up. I eat that brand of yogurt and I have been suspecting it lately. I had already decided... -
ARCHIVED How Could I Still Be Dealing With Constipation!?!
dilettantesteph replied to runningcrazy's topic in Coping with Celiac Disease
I have seen posts here about some celiacs thinking that quinoa gave them glutening type symptoms. Maybe that could be the problem.