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Mother of Jibril

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Latest Celiac Disease News & Research:

Everything posted by Mother of Jibril

  1. Mother of Jibril
    Hi Amber, Yes, I was referring to the subtype DQ7 (*0301). Here's what Wikipedia says... Open Original Shared Link I did a quick search for other sources of information, but it looks like there hasn't been much research on the genetics of periodontal disease. However... some things that are associated with DQ7 (diabetes, vitamin deficiencies...
  2. Mother of Jibril
    A lot of Betaine HCl supplements also contain pepsin, which is the enzyme that digests meat.
  3. Mother of Jibril
    I recently found a local source for Chebe products... I'll have to give them a try. Yeah... I'm leaning in the SCD direction I can't have casein, but it recently dawned on me that I could use goat's milk and coconut milk instead. Although the anti-candida diet is very similar, it also excludes mushrooms, vinegar, fermented foods, peanuts...
  4. Mother of Jibril
    Hi Meline, I'm taking Betaine HCl with meals. In fact, last night I tried a larger dose (500mg) and it didn't cause any problems with heartburn. Hypochlorhydria (low stomach acid) reduces your body's ability to digest food (especially meat) and allows bacteria like h. pylori and candida to get out of control. I'm planning to start the anti-candida...
  5. Mother of Jibril
    There are some reasons why people can't breastfeed... cancer treatment, previous surgery, radioactive iodine therapy for Graves' disease... but like the last person said there are SO many benefits for both you and your baby. One of the most important is that formula-fed infants are at greater risk for develping celiac disease and type 1 diabetes. My son...
  6. Mother of Jibril
    These are both good suggestions. Also, he might be reacting to additional food(s): dairy, soy, corn, eggs, nuts, etc... Is there anything he really eats a lot of or seems to crave?
  7. Mother of Jibril
    With two small children and a full-time job (as a professor) I haven't had much time to explore the Gluten-free Casein-free baked goods... just a few simple things like mixes. Last night we tried Namaste's chocolate cake mix (which is also corn-free). It's probably for the best... I'm planning to try the anti-candida diet starting in January. We've...
  8. Mother of Jibril
    Wow... that's a great resource too! Eliminating corn has been pretty difficult It's in sooooo many things... it's going to take a lot longer to figure out than the gluten-free diet. I bet this is one reason the SCD diet helps a lot of people. No processed food! Then you just have to watch out for cornstarch being dusted on things like pre...
  9. Mother of Jibril
    Well that's useful!
  10. Mother of Jibril
    About two months ago I figured out that my son is intolerant to corn... it gives him eczema, just like casein I'm intolerant to corn too! Here's the challenge... corn is EVERYTHING... even a lot of the gluten-free goodies. I've been asked about corn intolerance several times and I thought it would be helpful to have a list of things to watch out...
  11. Mother of Jibril
    Most herbal teas should be gluten-free! Avoid the ones that sound like coffee flavors... toffee, almond, hazelnut, pumpkin spice, gingerbread, etc... You could even try making them yourself using fresh herbs. For example... - Put a handful of mint in a glass pitcher - Fill with boiling water - Let it steep for at least 10 minutes... the color...
  12. Mother of Jibril
    You're right... corn is in a LOT of stuff. If you can't eat gluten or corn then 95% of breakfast cereals are off limits I've been off corn for two months and I'm still learning! Right now I'm battling cornstarch. I had the same result on the blood test. Negative after six weeks on the gluten-free diet. I also had the skin-prick test for allergies...
  13. Mother of Jibril
    You know... the "lactose" issue could actually be casein intolerance. There's no test for it, but the symptoms can be a lot like celiac disease. It gave my son eczema, sinus congestion, gas, bloating, projectile vomiting, and diarrhea streaked with blood. The DQ7 gene is associated with casein intolerance AND autoimmune thyroid disorders. If you want...
  14. Mother of Jibril
    I talked to my son's pediatrician a couple of weeks ago. When I told her I have autoimmune hypothyroidism and one of the genes for celiac disease, all she said was "Bummer." Hmm... IMO, "bummer" is when you lose a sock in the dryer. Not finding out that your own immune system has been attacking your body and both of your kids are at risk! There's no...
  15. Mother of Jibril
    Hi Shay, I'm SO sorry. That's a very difficult thing to go through at any time of the year. Hopefully the doctors can figure this out and he'll be on the road to much better health. My prayers are with you and your brother!
  16. Mother of Jibril
    Unfortunately, I know what you mean My son has a severe intolerance to casein. By the time he was six weeks old he was crying for hours at a time, hardly sleeping, projectile vomiting, and having green diarrhea with streaks of blood. The nurses tried to tell me it was just a "phase" his body was going through. The doctor suggested that he was "straining...
  17. Mother of Jibril
    Welcome to the group! Actually, false negatives are pretty common... but not false positives. If you don't take gluten out of your son's diet that number will keep climbing Has your doctor recommended an endoscopy? That's considered the "gold standard" for diagnosing celiac disease. I know a gluten-free diet is a big change, but it's very healthy...
  18. Mother of Jibril
    Welcome to the group! Certainly, we can't diagnose your son. BUT... I think you're right to keep looking for answers. It's not normal for a child to be in pain. Getting a celiac panel is a great idea... the antibodies you want to test for are anti-gliaden, ttG, and EMA. Also, get a total IgA. If it's too low you won't get an accurate blood test...
  19. Mother of Jibril
    Those symptoms are very familiar! My son is severely intolerant to casein (and corn... and I assume gluten). He had colic and now he gets terrible eczema on his face. My daughter is also sensitive to gluten... she gets constipated and has had problems with pica (eating chalk, ice, paper, etc...). She didn't sleep through the night until she was about...
  20. Mother of Jibril
    This article is sooooo contradictory... since WHEN is it "torture" to give your kids a healthy diet???? I'm really starting to hate mainstream "medical" advice
  21. Mother of Jibril
    What kind of trouble? Coffee in the morning always gave me a rumbly, sour stomach I decided I'm probably better off drinking tea instead.
  22. Mother of Jibril
    Hi Barb, 98% of celiacs have either DQ2 or DQ8, but there are celiacs with other types. DQ7 and DQ9, for example, have some sequences in common with DQ8. DQ6 is associated with neurological reactions to gluten (depression, vertigo, ataxia, etc...), plus MS, myasthenia gravis, and juvenile diabetes. Even if your son doesn't have celiac disease, he...
  23. Mother of Jibril
    Congratulations on the increase! I know your cholesterol levels were extremely low (too low)... it's amazing how fast your labs can change when you change your diet. I agree that this one result does not rule celiac in or out. For that you need other tests. BUT... you did have a positive response to the diet. Why not stick with it? Do you really...
  24. Mother of Jibril
    From what I've read, the highest risk for developing celiac disease is having a first-degree relative (parent, sibling, child) with that diagnosis: 1 in 22. The next highest risk is having one of the celiac genes (DQ2 or DQ8 in 98% of cases). This occurs in about 30% of Americans of European descent (90% of indigenous Americans), but your chances are...
  25. Mother of Jibril
    I'm so sorry about that! DQ7 makes you susceptible to gum disease. Mine are sensitive (especially while I was pregnant), but thankfully I haven't had such extensive problems.
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