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rosetapper23

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by rosetapper23

  1. rosetapper23
    Actually, Dr. Fasano cites a number of things that can skew a biopsy: 1) the scope wasn't long enough to reach the damaged area, 2) the surgeon was not skilled enough at taking samples, 3) the pathologist lacked the skill or competence to diagnose celiac, 4) even if a large number of samples were biopsied, it's possible that the surgeon did not biopsy the...
  2. rosetapper23
    Yes, one of the leading experts on celiac disease, Dr. Alessio Fassano, believes that a positive endoscopic biopsy should no longer be considered the gold standard for diagnosing celiac disease. If your bloodwork was positive, you can be certain that you have celiac disease (false positives are rare). Be thankful that your celiac was diagnosed before too...
  3. rosetapper23
    Honeybaked Hams are gluten free....and you can make lasagna with Glutino gluten-free lasagna noodles.
  4. rosetapper23
    I'm also someone who can relate. I didn't lose ALL my friends, but most of the ones I had pre-celiac diagnosed kind of fell away. You see, everything was different--I couldn't really socialize with them because they preferred Japanese restaurants and places where they could drink beer. Every time they suggested that we all go to lunch at work, they'd invariably...
  5. rosetapper23
    I'm white, and my celiac genes originated along the Danish line of the family; however, I've met at least a dozen African-Americans and Hispanics who have been diagnosed with celiac in the past five years. Also, I've met quite a few Asians who, while not officially diagnosed with celiac, claimed to be gluten sensitive.
  6. rosetapper23
    This is a difficult situation, for sure...but I think your first responsibility is to protect your children. The one that is experiencing terrible stomach pain and also has bad teeth should definitely be taken off gluten entirely. The doctors will continue to make you and your children jump through hoops and then will probably incorrectly diagnose all of...
  7. rosetapper23
    Good for you! Now is the beginning of your new life....
  8. rosetapper23
    False-negatives are extremely common with bloodtests for celiac. Count your blessings that you have found what is causing your numerous symptoms....and live a happy life from here on out. Many of us suffered from your same ailments well into our 40s and 50's. Welcome to the Forum!
  9. rosetapper23
    Very bad idea! You'll be exposed to gluten on an ongoing basis--too many chances to get glutened from touching the bread and cookies. Now, I realize that Subway has launched a pilot program to bring gluten-free sandwiches to the masses, but you'd have to make regular sandwiches, too. Does your vocational rehab counselor know you have a problem with gluten...
  10. rosetapper23
    You'll have nothing to lose if you go gluten free, because you'll know you've made the right choice when you start feeling better. If you don't go gluten free, there's the possibility that you will lose what good health you have left. You may have other symptoms that you haven't thought might be related to celiac or gluten sensitivity, such as muscle...
  11. rosetapper23
    It suddenly hit me this morning when I was preparing my usual smoothie that I had completely forgotten about a possible cause of your symptoms: low zinc, manganese, and/or silicon. My connective tissue went crazy two years ago after I got glutened so that my tendons became floppy, causing pain and disability. No one could tell me what was wrong, even...
  12. rosetapper23
    OMG! I have no idea that they used so much soybean oil! Guess I won't be patronizing them anymore. Thanks for the info!
  13. rosetapper23
    Actually, I believe that the oil that restaurants use for salads is olive oil. I'm highly sensitive to soy and soybean oil, and I have NEVER had a problem with the oil and vinegar in restaurants. I can't imagine that any restaurant would offer soybean or vegetable oil to a patron with who has asked for oil and vinegar for a salad.
  14. rosetapper23
    GlutenFreeAustinite, Please send me a personal message if you're interested in knowing specific exercises. It sounds to me, from your description, that your hamstrings and quads are too tight, and your psoas muscles are too weak. Also, in the interim, I would HIGHLY recommend that you take a combination of Omega 6's and 3's that should help with your...
  15. rosetapper23
    I am SO sorry that you're experiencing these difficulties. It reminds me of something that Dr. Alessio Fasano, a leading celiac expert, said six years ago at the Gluten Intolerance Group's Annual Conference in Salt Lake City: "Woe to the American celiac who cannot afford to buy food." He alluded to how countries in Europe ensure that celiacs can afford...
  16. rosetapper23
    Actually, if you stick with natural foods and avoid salad dressings (except oil and vinegar), you should be fine. I didn't realize that Chipotle uses soybean oil. Where is it found in their food?
  17. rosetapper23
    My mother had undiagnosed celiac when she was pregnant with me....and I was born with Ricketts due to my mother's malabsorption of Vitamin D and calcium. Would it have been better for her to have eaten gluten free? Most definitely!
  18. rosetapper23
    Actually, after being gluten free for nearly eight years, I began to react to rice and rice flour. I had to eliminate them from my diet for about six months before I could start eating them again. Sometimes our immune systems seem to react to other foods as though they're gluten (overactive autoimmune system), and then you have to eliminate them for a while...
  19. rosetapper23
    Good grief! That doctor is very ignorant! Some celiacs have diarrhea, some have constipation, and MANY have no digestive complaints at all. For example, I had celiac since I was a young child, but I didn't develop diarrhea until I was 47. Please change doctors....
  20. rosetapper23
    Yes, it is indeed a cruel joke that Beano contains gluten. I used it for years before I knew I had celiac, because I was so bothered by cramps and gas from eating gluten. Regardless of whether it helps control gas, it DOES contain gluten...so you should avoid it. If you continue to have gas even with the elimination of gluten in your diet, then you're...
  21. rosetapper23
    The hands-down expert on celiac, Dr. Alessio Fasano, has written that he no longer believes that a biopsy is the "gold standard" anymore for diagnosing celiac disease. Apparently, there are many factors that can cause a person who truly has celiac to have a negative biopsy: for one thing, the damage to the villi can lie beyond the reach of the scope; for...
  22. rosetapper23
    You're right--your doctor is DUMB and you have celiac. Thank goodness, you're smart!
  23. rosetapper23
    Raquiroo uk, I'm sorry you're having food issues (yes, it's a very complex matter!)...but, hey, soy isn't good for anyone, so consider yourself lucky. However, here in the U.S. the food manufacturers have added soy to EVERYTHING. I'm talking about cans of tuna, mayonnaise, chopped garlic--you name it. It's really harmful stuff to eat, so our choices...
  24. rosetapper23
    For your planned restaurant, I would also suggest potpies and chili beans. Yum--I haven't had a potpie since going gluten free eight years ago--I miss it!
  25. rosetapper23
    It sounds and looks like DH to me....and if it is, you should avoid iodine. For many of us DH sufferers, both gluten and iodine are necessary to cause an outbreak of DH. Things to avoid include seafood, iodized salt (so don't trust anything that already has salt on it, like chips, French fries, popcorn, etc.), asparagus, and dairy in certain parts of the...
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