Jump to content

Roda

Advanced Members
 View Profile  See their activity

  • Posts

    2,487

  • Joined

  • Last visited

  • Days Won

    5

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Roda

  1. Roda
    We had this issue last year. My son's teacher revised the acceptable snack list to be not only nut free but gluten free as well to accomidate my son better. Some ideas for you: rice and chex cereal, apples, carrot sticks, grapes, bananas, cheese sticks, yogurt, quaker large rice cakes(if no nut issues), Kinnikinnick makes animal crackers that are gluten...
  2. Roda
    We love Junior Mints!!
  3. Roda
    Unfortunately I am inclined to say yes to not use any of the Bob's products. After 8 months of miserey last year my GI wanted to put me on steroids. I refused. I did accept a script for creon and took it along with further eliminating stuff from my diet. I had been using BRM products since diagnosis and was fine for a year. I think it slowly built up...
  4. Roda
    When we get red irritated bum we either use diaper rash ointment, or if it is really bad we use liquid antacid on the area. Our pediatrician told us to use the liquid antacid to help neutralized the ph from the acidic stool. It works great and I used it as a precaution during my colonoscopy prep. Happy to report no sore bum from that!
  5. Roda
    It took awhile for things to settle down with my youngest son. It can depend on how bad the damage was. My son only had a mildly elevated IgA tTG and we opted out of the biopsy. It was around the three month mark or so when we really noticed he wasn't complainging of belly aches anymore and some of his wierd ocd behavior had vanished along with the tempertantrums...
  6. Roda
    This is how I put it to the doctor that did my oldest son's scope/biopsy. If she wasn't going to take the minimum of 6-8 samples we weren't going to bother with the exam at all! I told her this when she came in the room to talk to us before going back. His biopsy was completely normal, but we chose to do a trial of gluten free anyway.
  7. Roda
    What kind of gluten free products is he eating? If he is sensitive to oats you have to worry about the oat cc in gluten free products. They don't test for this. I had to call companies to find out if there were any gluten free oats used on shared equipment. I definately would avoid Bob's Red Mill products. They get me every time!
  8. Roda
    I just found out that my RF is slightly elevated from my last labs done in June (I just got the results, another story ). I had a bunch of tests run back in Feb. by my PCP for other autoimmune issues and they were normal then. I'm unsure if a RF was done then. I do have a few aches and pains but I can easily explain them away from "sleeping wrong". ...
  9. Roda
    If you can not tolerate Bobs Red Mill products don't eat at BabyCakes in Downtown Disney. It is a gluten free bakery but they use BRM flours/meals. I have to say there stuff was good though, but the after effects wern't.
  10. Roda
    Does she eat gluten free oats? Around 10% of celiacs have a problem with gluten free oats also. I am one who does. I also had to eliminate any gluten free products that that might or does have gluten free oat contamination. For me, I believe it caused the same, if not worse, reactions as gluten. I had a repeat scope and biopsy 1 1/2 years after I was...
  11. Roda
    My reactions have definately gotten worse and changed! I used to get constipated and have horrible reflux. Now I bloat up so bad and end up with violent D and steatorrhea.
  12. Roda
    How are they going to treat the ulcerations? With the doctor stating it could be the early start of celiac, I'd be inclined to try the diet. Why does she want to wait until there is more damage. What kind of symptoms were your children having? There are some people that don't have ouward symptoms that indeed have celiac. love2travel comes to mind.
  13. Roda
    I always had very weak nails and they would peel and break easy. Since addressing my vitamin/mineral deficiencies, (for me it was vitamin D, iron and ferritin) my nails are as strong as ever now.
  14. Roda
    Your TSH is low which ususally indicates hyper. If you are still feeling hypo with it this low then you need to look further. Standard thyroid tests should include TSH, free T3, free T4 and thyroid antibody tests (I believe there are two or three). You could have a problem converting the T4 meds to the active form of T3. I presented to my current endocrinologist...
  15. Roda
    I say go back on it too. A month in some people could make a difference. Keep a log of your symptoms and reactions though in case it gets too bad and you can't make it eating gluent until the scope. Or you can use it as diagnositic info.
  16. Roda
    I was thinking the same thing. Out of your list we have not had the classico pasta sauce or the rice bowls. We have tried the Kinnikinick K-toos and animal cookies and loved them and no problems. We also tried one flavor of enjoy life cookie, while no reaction, we didn't like them. As for the rest of the list we have and do buy and eat those without incident...
  17. Roda
    I get the flu shot. I work in a hospital and x-ray patients all night long that are coughing, have nausea, vomiting and diarrhea. I also don't want to take it home and expose my kids. They usually get the flu shot also, but I forgot it last year. I took oldest to the doctor last season thinking he had strep and nope, he tested positive for the flu on...
  18. Roda
    With a postitive blood work and flattened villi, that is classic celiac diagnosis. Maybe they meant the biopsy was negative for other things, like h pylori and cancer.
  19. Roda
    I don't have girls but have two boys that are gluten free. My youngest son went gluten free last Nov. He was 5 when he was diagnosed. Almost a year later he is doing great. He has learned to advocate for himself and realize it is alright to tell adults no when it comes to food. My 10 1/2 year old son is doing a gluten free trial (no diagnosis) and I...
  20. Roda
    I contacted Blue Bell just the end of last month and they sent me two gluten free lists. Here is their contact number. The representative I spoke with sent me them via e-mail. It made one happy 6 1/2 year old little boy. Now he is able to buy an occasional icecream treat at school. Consumer Relations Blue Bell Creameries, L.P. 979.830.2192 ...
  21. Roda
    Stewed tomatoes and dill relish.
  22. Roda
    I have to disagree with Josh B (sorry Josh, not picking on you at all). He is right in the fact that the blood work is more unreliable in children giving more false negatives. I'm not sure how much more suggestive your report needs to be except with total villi blunting. And I aggree with you if indeed it is celiac from 1.5 years ago, the damage may very...
  23. Roda
    I'm sorry that you have been going through a hard time with your little one. As Raven said his pathology reports are consistent with early changes associated with celiac. In the absence of other illness, then your doctor should have given the diagnosis of celiac and saved your poor child a few years of misery. You did the right thing by requesting his...
  24. Roda
    I wouldn't feel confortable taking the gas-x prevention. It clearly states on the lable contains wheat. Granted it does state less than 20 ppm, but I will avoid it just because it has wheat in it to some degree. Open Original Shared Link Open Original Shared Link I take the gas-x soft gels and have never had a problem with them. I feel comfortable...
  25. Roda
    Are you buying pre packaged or getting it sliced at the deli? I only buy prepackaged now because there is to much risk of cross contamination from the deli.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.