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GottaSki

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Everything posted by GottaSki

  1. GottaSki
    Yes, in my opinion you should have the balance of the Celiac Antibody tests you listed in your first post before removing gluten. My celiac doctor ran everything you listed along with nutrients -- at diagnosis and annually since: B1, B2, B6, B12, D, K, Iron, Ferritin, Copper, Zinc CMP - Complete Metabolic Panel - includes several other key nutrients...
  2. GottaSki
    and here is an excellent place to start learning more to avoid a several of the pitfalls many encounter during the early days -- https://www.celiac.com/forums/topic/91878-newbie-info-101/
  3. GottaSki
    Welcome Jessica! Two weeks is not a long time -- you are still adjusting. The transition is not easy -- I imagine you already know how serious it is that you are intentionally eating gluten so I don't see a reason to give you a hard time -- simply remind you that healing can't happen until all gluten is removed once and for all. Tomorrow is another...
  4. GottaSki
    I'll PM you...as we have added way too much speculation and additional question to this new member's thread. TF15...let us know if you have anymore questions
  5. GottaSki
    Some of us do not improve after completely removing gluten - in fact I got worse. Without the initial endoscopy along with full celiac antibody panel and nutrient level data obtained at my diagnosis - I would have had a much harder time remaining completely gluten-free -- after all removing gluten wasn't helping. I had annual biopsies...not to simply...
  6. GottaSki
    Yes, gluten should not be removed prior to diagnosis -- but some do have an endoscopy after gluten is removed without a challenge as they are not able to tolerate the challenge to take a look at damage and/or biopsy. I was answering only the question as posed. This member said they already know they are intolerant -- which I took to mean they can not...
  7. GottaSki
    I don't disagree with much of this -- except -- I have not heard any major Celiac Disease Center suggest more than the equivalent of 1-2 pieces of glutenous bread when conducting a gluten challenge. To be clear...in this case I was suggesting that this person go ahead and have the endoscopy the doctor recommended -- it didn't sound like they were talking...
  8. GottaSki
    In my opinion - yes. You have no way of knowing at this point what damage has been done. For some of us healing takes a very long time - and in rare cases (mine) damage continued for several years after gluten was completely removed. While I hope that you heal quickly, I think it prudent to take a good look along with biopsies even if you recently...
  9. GottaSki
    I agree with Peg. Other intolerances have impeded my healing and when ingested cause a wide variety of symptoms. Any food that causes symptoms should be avoided for six months and then reintroduced. If they still irritate wait another six months...most folks get many of these foods they are intolerant of back - given time.
  10. GottaSki
    Was this a gasterenterologist that specializes in Celiac Disease? - sadly not all do. With deficiencies, AI symptoms and a positive DGP I would remove all gluten after the biopsies...regardless of results - then retest the celiac antibodies and nutrients at six months and a year. Sometimes AI symptoms take longer than digestive symptoms to resolve so the...
  11. GottaSki
    Ditto for me...and since my antibodies were all barely positive at dx it is likely I had negative antibodies for years -- my kids all had negative blood work except one with positive DGP-IgG -- although all have had every health issue improve or disappear gluten-free. Two have now been diagnosed based on improved blood nutrient levels along with symptom...
  12. GottaSki
    Welcome Kris! I assume you had a tTG-IgA and tTG-IgG. Many doctors only run the tTG. The problem is without a total serum IgA to make sure you have adequate IgA there is no way to no if the tTG is accurate. With familial history along with symptoms I strongly suggest you have a complete Celiac Antibody Panel. Should they all come back normal it...
  13. GottaSki
    It certainly makes it tough when you have known wheat bothers you...going gluten light is enough to make the tests inaccurrate yet it seems it has not been enough to completely restore your health over the years. Another challenge certainly doesn't sound like a good option. Seems your best option now would be to remove all gluten....this means no gluten...
  14. GottaSki
    Hi There! FYI -- The OP hasn't been active since 2008.
  15. GottaSki
    Hi There! It can take time for all your antibody tests to get back in normal range if your initial numbers were high. The numbers don't mean much without comparison. If your initial tTG was over 100 then 45 is the right direction -- make sure the Gliadin numbers have also fallen from your initial blood tests. My antibody tests were all relatively...
  16. GottaSki
    just noticed you said 7 weeks of eating gluten for gluten challenge...how long had you removed gluten before re-introducing for the seven weeks of challenge?
  17. GottaSki
    The damage is consistent with Stage 1 and 2 on the Marsh Scale for Celiac Disease. These first stages are not specific to Celiac Disease, but when coupled with symptoms and or blood work it would confirm Celiac Disease with minor damage. Did you have any positive celiac antibody tests or nutritional deficiencies, elevated liver enzymes or other variances...
  18. GottaSki
    Exactly what I was going to say.
  19. GottaSki
    One of my sons had a six month serious autimmune symptom flare ... this was before our dx ... interesting thing was when he was finally feeling better docs tested him for mono....they could determine he had had mono but not when. Sorry I have no recent research into the connection.
  20. GottaSki
    Sounds like glutening from the road trip rather than wine...actually sounds like you may have had a couple glutenings...road trips are great, but do need extra care and a bit of steering wheel/gearshift cleanings if driving is shared with a gluteneater.
  21. GottaSki
    Hi Tiny! You mention quite a few episodes of CC during your time together....how long would you say you and your guy tightened down on being careful. He may still be healing if these episodes were very regular for a significant amount of time. For now you have been given at least twenty activities that do not involve dining/drinking out...but if...
  22. GottaSki
    This is great news...I bake most things from scratch...but used to use gluten filled premade cookie dough often when traveling, etc. Sure to have some happy campers - thanks for sharing
  23. GottaSki
    Good to know you had a positive biopsy result after challenge...and happy for you that you can be sure of the transitioning to a completely gluten-free life. Thanks for sharing
  24. GottaSki
    Yes symptoms from accidental glutening can vary and change a bit over time. Mine sound like an adult version of his. I get a strange kind of tired and spacey within an hour of ingestion -- often followed by "out of the blue" anger and then flu like symptoms for several days.
  25. GottaSki
    One to two pieces of glutenous bread per day is plenty.
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