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Latest Celiac Disease News & Research:
Everything posted by kareng
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ARCHIVED Test Results
kareng replied to frenchface's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Not sure what your question is, so I'll answer what I think it is. Just having a gene for celiac doesn't mean you have celiac. Open Original Shared Link Do most people with celiac disease have the gene turned on at birth? For celiac disease to develop, you don’t just need the gene(s), but also the contribution of several environmental factors (the f... -
ARCHIVED Alternative Treatments For Adrenal Fatigue
kareng replied to GFinDC's topic in Related Issues & Disorders
Yes, I know there are real serious adrenal diseases, but that wasn't the topic. You are all stating your opinions and experiences, fine. If taking something harmless helps you feel better, that is great. I can choose to want to see the scientific evidence that these things helped you. Do you have before and after lab work we could look at? I realize...- 44 replies
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I got a separate toaster in red ( the color of gluten-free at my house) and keep it in the cabinet. If you only occasionally use a toaster, you could get or make toaster bags. I'll get a link and be back. I'm back! These are the kind I have. You can find them in some stores. I like this brand because its big enough to enclose the whole piece of...
- 11 replies
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- counter tops
- de-gluten kitchen
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(and 2 more)
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ARCHIVED Alternative Treatments For Adrenal Fatigue
kareng replied to GFinDC's topic in Related Issues & Disorders
It is mentioned a lot and I think we need to be careful jumping to these fad diagnosis. It's making me " tired".- 44 replies
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ARCHIVED Alternative Treatments For Adrenal Fatigue
kareng replied to GFinDC's topic in Related Issues & Disorders
What does " fatigue" or " tired" even mean when applied to a body organ? Whole organisms get tired and need a nap or more iron or more exercise. Sometimes we use these phrases to help us understand better - " Grandmas heart just got tired, Honey". But her heart isn't " tired" it has age related issues or arterial blockage. Supplement all you want...- 44 replies
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ARCHIVED Alternative Treatments For Adrenal Fatigue
kareng replied to GFinDC's topic in Related Issues & Disorders
I guess my alternative " treatment" is to be careful self- diagnosing and treating. Not much different that I feel about fad " Celiacs" who decide they have celiac. To be clear - I did not say there are no adrenal illnesses. I even posted a few links that mention some serious ones. If that is the case, self- diagnosing and treating could be harmful...- 44 replies
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ARCHIVED 30 Years W/celiac & I'm Still Coping!
kareng replied to heymom45's topic in Coping with Celiac Disease
Currently,the recommendation for follow- up with Celiacs who are having no issues, is a yearly blood test. You could have an endo to see if you still have damage but there is no reason to do a gluten challenge.Open Original Shared Link How often should follow-up testing occur? New celiacs should receive follow-up testing twice in the first year after... -
ARCHIVED Alternative Treatments For Adrenal Fatigue
kareng replied to GFinDC's topic in Related Issues & Disorders
I see people self diagnosing with " adrenal fatigue" a lot on here. But I would urge some caution. Open Original Shared Link Adrenal fatigue is a term applied to a collection of nonspecific symptoms, such as body aches, fatigue, nervousness, sleep disturbances and digestive problems. The term often shows up in popular health books and on alternative...- 44 replies
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ARCHIVED Catholic Communion - Low Gluten Host
kareng replied to Rosiesallergies's topic in Gluten-Free Foods, Products, Shopping & Medications
You just jump up to the front of the line for wine. You don't need a big gulp, just touch the wine to your lips. A drop is all you really need. Or you may be able to get your priest to give you your own little Dixie cup or maybe you provide a wine glass that he can bless on the alter. The key is to talk to your priest. -
I think we told you that because you seemed to think you had a lot of neurological issues, brain damage and MS. Neurologists aren't going to treat you for celiac Disease but if you have MS or brain damage, those are serious diseases. You had stated that having an MS or brain damage diagnosis meant nothing to you and you wouldn't change or follow any treatment...
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ARCHIVED Gluten Free Paper Plates And Paper Products
kareng replied to ilikechaitea04's topic in Gluten-Free Foods, Products, Shopping & Medications
If you want to post on a very old thread....that's ok. We just want to warn people that the original info may be out of date. This is especially true for product info as ingredients and manufacturing practices change over the years. Also, some people expect the original posters to respond and many times, they have not been on the forum for several years... -
"i Can't Believe It's Not Butter"
kareng replied to steve-o's topic in Gluten-Free Foods, Products, Shopping & Medications
I can eat it and I don't have a problem. I wonder why you think this company wants to hurt people with allergies? What will they gain? But, if you have evidence that. Unilever is lying about ingredients, please provide it to the FDA. They have a way to do that on their website. -
ARCHIVED After You Cook gluten-free
kareng replied to MsMarginalized's topic in Gluten-Free Recipes & Cooking Tips
I have a 17 year old boy. I doubt he eats all by himself, in exile, with no friends. But that's just my son's thought. -
ARCHIVED Infuriating Article On New gluten-free Restaurant
kareng replied to C-Girl's topic in Gluten-Free Restaurants
That's what I thought, too. My hub doesn't mind eating gluten free food but he wants a regular beer. -
ARCHIVED Family Glutening Me In gluten-free Household
kareng replied to skullgrl's topic in Coping with Celiac Disease
Then I don't see how they are glutening you. But, if they put dirty caps back on food, maybe you are getting a touch of food poisioning? Effects you worse right now because you need to heal? Normal guts process lots of germs everyday and don't get sick. -
ARCHIVED Family Glutening Me In gluten-free Household
kareng replied to skullgrl's topic in Coping with Celiac Disease
I would wash the cap off if it touched the floor - germs, dirt, cat hair being more an issue than gluten. I live with 2 (3 during college breaks) gluten eaters. I don't get glutened from crumbs I cannot see on computer keyboards, etc. obviously, you wouldn't be touching things with big crumbs. I think the more likely is: someone using the PB, as an example... -
ARCHIVED Turtles Candy
kareng replied to angelbender's topic in Gluten-Free Foods, Products, Shopping & Medications
You people have to stop this! I NEED to believe all these goodies have gluten in them! My thighs and butt do not need turtles and gelatos and Snickers and flavored pretzels, etc! How am I supposed to lose weight ? OMG! All of my favorite things are gluten-free! -
I found, when I was a gluten eater and gluten baker, that white vinegar helped dissolve the flour stuck on my mixer or cabinet ( OK.....I know....I can't cook with out making a big mess ). Maybe paper towels? The flour should come off a smooth surface. I don't put food directly on the counter very often. I think if you scrub a few times, you should be...
- 11 replies
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- counter tops
- de-gluten kitchen
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(and 2 more)
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ARCHIVED Is It The "g Word?"
kareng replied to Starving Amy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Which leads us back to the First Rule Of Celiac Club - read the ingredients all the time! -
ARCHIVED Is It The "g Word?"
kareng replied to Starving Amy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
A couple of things. Buckwheat is not wheat - it is gluten free. You can have an intolerance to it but it isn't part of Celiac disease. Open Original Shared Link "How much gluten should be consumed prior to being screened for celiac disease? It’s best to continue a normal, gluten-containing diet before being screened and diagnosed. If a gluten-f... -
ARCHIVED Embarrassing Symptoms. Is This Celiac?
kareng replied to JonnyFinale's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Sorry, Lisa, I'm going to disagree a little bit. He has been gluten-free for 6 weeks and is saving for a few months to get the endo. After several months gluten-free, it should be negative for Celiac. Open Original Shared Link "How much gluten should be consumed prior to being screened for celiac disease? It’s best to continue a normal, gluten-containing d... -
ARCHIVED Embarrassing Symptoms. Is This Celiac?
kareng replied to JonnyFinale's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you are eating gluten free for very long, an endoscopy would not detect celiac Disease. An endo or Colonoscopy might be useful to make sure there are no other issues. You might find this thread helpful: https://www.celiac.com/forums/topic/91878-newbie-info-101/ -
She was going last April, so I hope she had a nice time and found a good place to stay.
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ARCHIVED Enterolab Results: Positive
kareng replied to kellysensei's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The blog post you link to explains why Enterolabs are not a good choice for tests. -
ARCHIVED A Shell Of The Person He Once Was...is This Normal?
kareng replied to mom2alex's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I think most people missed the fact that it got worse before he started the gluten-free diet. It has stayed the same on the diet. Obviously, it can take months to feel better - so hopefully, that is all it is.