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frieze

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Everything posted by frieze

  1. frieze
    Methylcobalamin 1000 mcg (Vitamin B12) on an empty stomache daily. Are you taking an acid suppressor? if so you may need even more B12. I would try CoQ10 as well, anyone in your family have trouble tolerating statins? AND, yup clean up the diet to the nth degree. Does anyone use your work station beside you? If so they may be contaminating you. Same...
  2. frieze
    I would wonder if there could be wheat in with the rice in the "wild" rice....and the rice pasta would be questionable about manufacturing conditions...also maybe what you are getting is a low blood sugar reaction?
  3. frieze
    before you give up on the ataxia, try CoQ10, this turned out to be my issue, rather than gluten. Though i wouldn't swear that the gluten didn't make it worse.
  4. frieze
    Methylcobalamin 1000 mcg (Vitamin B12) on an empty stomache daily. Are you taking an acid suppressor? if so you may need even more B12. I would try CoQ10 as well, anyone in your family have trouble tolerating statins? AND, yup clean up the diet to the nth degree. Does anyone use your work station beside you? If so, they may be contaminating you. Same...
  5. frieze
    Unfortunately, if you want traditional testing, you need to be eating gluten to get it done.
  6. frieze
    I would not challenge, if i wanted him to remain alive....
  7. frieze
    I am thinking you are talking about the 4 "Fs" of gallbladder disease? Fair, Flatulent, Fat, and Forty?
  8. frieze
    they might not have been there, then. or smaller.
  9. frieze
    gluten free on processed foods, doesn't really mean gluten free.....perhaps under 20 ppm....if you eat too much of that you will being taking in too much gluten and thereby slowing the clearing of antibodies....
  10. frieze
    don't ask!!! demand!! not ranting or raving, just go in with the expectation that you will get it done, if she declines again, get it in writing with her reasons.....sometimes docs will be "scared" into doing what you want when you try that tactic.....it is quite likely that she HASNT documented your request and her refusal in your chart....good luck
  11. frieze
    I'm...thnking..you're..in..UK...but..why..can't..you..go..to..police..and..file..a..complaint...
  12. frieze
    this is battery and willful child abuse, these workers should lose their ability'license to work in that venue, immediately.
  13. frieze
    He probably is NOT lactose intolerant, but casein intolerant. And why can't parents send packed lunches for their children and simply explain that their child is to not have any food that was not brought from home.
  14. frieze
    remember that you were gluten free for 3 weeks before the testing....so the blood is probably not accurate....and the biopsy number was not enough/up to the standard of care......AND the diet is working.... the elevated eos is a sign of infammation/allergy good luck
  15. frieze
    the neuro issues take the longest to heal, that said, sometimes they don't completely go away. The best that can be done is to stop progression. However, be for you give up on that, i would try CoQ10 supplimentation. Good luck
  16. frieze
    This seems rather unethical to me, but she may have done you/your kids a favor......this way they don't carry the dx of celiac, so insurance can't discriminate later.
  17. frieze
    ?IGg testing? otherwise tell the husband to back off, lol
  18. frieze
    taking that much B12 make sure you are getting ample potassium
  19. frieze

    ARCHIVED Grr...

    frieze replied to Roda's topic in Coping with Celiac Disease

    Tell him to make sure his life insurance is up to date.
  20. frieze
    your son received a gene from ea of you....if he is positive for celiac it is likely that he has one of the major genes, and whatever genes he has he got from his parents.
  21. frieze
    I'm thinking that the 128 would be as high as they test for, therefor it would be QUITE elevated.....
  22. frieze
    is it cyano or methyl? and if you are over 40 you may need to supplement in perpituity,
  23. frieze
    perhaps a money order?
  24. frieze
    Open Original Shared Link
  25. frieze
    check and see if the individual ones are marked "not for retail sale" if not complain to the company.
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