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frieze

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Latest Celiac Disease News & Research:

Everything posted by frieze

  1. frieze
    the + biopsy trumps the neg blood work
  2. frieze
    Open Original Shared Link don't know this place personally, but would be closer than boston....even boston wouldnt be a bad trip on 395/90
  3. frieze
    you prepare the food, they eat....seems simple enough.....just don't spring any really odd/new stuff right away.
  4. frieze
    ?enzymes also, there may be cross reactivity with kiwi.
  5. frieze

    ARCHIVED F'ed Up Doctor Appt Today

    frieze replied to CruiseWriter's topic in Doctors

    celiac disease is not diagnosed with a colonoscopy (that is from the bottom up), you need an endoscopy (that is from the top down)
  6. frieze
    cyanocobalamin has the cyano molecule, which is cyanide and needs to be remove and the cobalamin methylated to work in the body....a small subset of persons can not do that. so it is best to use the methyl- from the get go. dont know about one brand or another, the sublingual commonly have sorbitol, which you may want to avoid. you want to take the B12...
  7. frieze
    5000 mcg of methylcobalamin daily, on an empty stomache. zinc, no more than 50 mg daily without additional copper. Iron, i would try to increase dietary intake. Do you take any meds? acid reducers will interfer with b12 digestion and iron digestion, and protein digestion.
  8. frieze
    resurecting the finger nail brush may not be a bad idea, as well.
  9. frieze
    Vitamins are called that because they ae VITAL....run from any doc that tries to tell you otherwise!
  10. frieze
    NO! no need to go back on prescription D2! you can get D3 in 50000 units now. and you can simply double/triple the 5000 units caps you already have.
  11. frieze
    if you are taking a B12 supplement, make sure it is METHYLcobalamin and taken on an empty stomach
  12. frieze
    inre: restless legs, research foods for upping your magnesium intake, and, believe it or not try a bar of ivory soap under your mattress. also make sure you are not anemic.
  13. frieze
    were you taking METHYLcobalamin? I would think stopping for a little while, and then maybe once a week. There really is NO upper, unsafe limit. good luck
  14. frieze
  15. frieze
    It is the plant form of the vitamin, not well absorbed. Remember, we are designed to get our Vit D from the sun. not food!...check out the grocery store vitamin section you should ba able to find at least 5000 unit gel caps of D3. check out vitaminDcouncil.org good luck
  16. frieze
    there is very little Vit D in these, you will see VERY little change in you levels.
  17. frieze
    If the 50,000 was little emerald green footballs, they were D2 not particularly good, definetely go for D3 and do some research, a level of 30 is considered insufficient....
  18. frieze

    ARCHIVED Biopsy Normal

    frieze replied to NateJ's topic in Doctors

    Gabapentin (Apotex, Greenstone) these two generics and brand name neurontin are supposed to be gluten free, if your neurontin is not brand or made by either of those two other companies, all bets are off. good luck
  19. frieze
    try another brand, the less ingredients/fillers the better. make sure you are getting enough potassium, it is nec to healing. you could try another form as well, but, since it is having an effect, I am guessing it is being absorbed. try alternating hydroxy and methyl and you would be covering that base. good luck!
  20. frieze
    livedo reticularis -----this can be related to lupus or antiphopholipid syndrome....
  21. frieze
    actually, you may have been gluten free too long for enterolab....good luck
  22. frieze
    if the doc refuses, tell him/her that you want signed documentation that the testing was refused and WHY.
  23. frieze
    ....and at 12 years old, it is possible she was never totally compliant with the diet.
  24. frieze

    ARCHIVED Dr Said Not To Eliminate Gluten

    frieze replied to kayc's topic in Doctors

    Can you invite yourself along on the next doctor visit? If your sister refuses, you may have a good part of your answer.....and if she does, you can ask the questions you need answers to.
  25. frieze
    PLEASE! Vitamin B12 def. should be a differential diagnosis for dementia! the blood testing is of poor quality, supplementation is not expensive, good luck!
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