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Latest Celiac Disease News & Research:
Everything posted by cap6
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ARCHIVED A Relative Is Diagnosed Celiac- Won't Go Gluten-Free
cap6 replied to LeahBanicki's topic in Parents, Friends and Loved Ones of Celiacs
Peter is so right. You can give her the info but you can't force her. I have a brother who doesn't care and three friends who I feel certain have celiac or would benefit from the gluten-free life. One friend told me she could never give up her bread and pasta and continues to suffer from chronic D. You can give it out but some people just don't want to... -
ARCHIVED Still Constipated!
cap6 replied to Skittles's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I have to agree with mammaw on this - sometimes we just don't work. I am all in favor of being as natural as possible, supps, water, fiber, exercise, etc. Sometimes it just doesn't work. I have had two colonoscopies and was told that I have a badly twisted colon and scarring from years of C. After 60 years of chronic constipation I really believe that... -
ARCHIVED Applebee's Restaurant - Gluten Free Menu
cap6 replied to CalicoSue's topic in Gluten-Free Restaurants
We take a risk whenever we eat out...but...I have been to Applebees twice and sick twice. That's enough for me. -
ARCHIVED Still Constipated!
cap6 replied to Skittles's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I wish coffee had that affect! Have tried drinking it, not drinking it but makes no difference. I do flax oil caps, magnesium supps, flax seed sprinkled on veggies & salads..... Honestly, I think I have tried it all. Imho it just comes down to finding your own personal "cocktail" so to speak. -
ARCHIVED Still Constipated!
cap6 replied to Skittles's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I am running out the door but had to take a minute to answer you as I soo understand! I have been gluten-free for 2 years and constipation has been the bane of my existence, and still is. At first, after being gluten-free for about 3 months I had a bout of constipation that four enemas didn't take care of. I understand being told drink more water,... -
ARCHIVED Constipation Please Go Away
cap6 replied to Ninja's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I have been gluten-free just over 2 years and still suffer from chronic C. It is better...some. Like you I drink 3/4 gallon of water a day, eat lots of fiber, the whole healthy thing. Take probiotics, suplements, molasses (to heal the gut), aloe and then I added a herbal laxative tea, Smooth Move (hate that name!!). Went over it with my dr and she said... -
Today I celebrate 2 years since Celiac diagnosis and without the support of family, friends and this board it would have been, well, so much harder than it has been. At two years I can say that I can finally meet Celiac with a sense of confidence and have come to accept it as part of me. That's not to say that at times I don't wish that I was like everyone...
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ARCHIVED Brother In Boise Looking For Md To Do Initial Testing
cap6 replied to Cara in Boston's topic in Doctors
I don't live there or know any drs but when traveling through we found a store called Jakes that is all gluten-free. The best home made french bread Ihave ever had! -
ARCHIVED Distended Abdomen
cap6 replied to Dr. Jill's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
lol My flat one has always been a joke in our circle of friends. My daughter once offered to buy me "butt pads" to round me out! -
I go when I have an issue and get yearly blood work done. My iron & vit levels are low but other than that there isn't much to be done
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ARCHIVED Has Anyone Been Glutened From gluten-free Chicken Broth?
cap6 replied to shayre's topic in Super Sensitive People
Costco has an organic gluten free chicken broth, their Kirkland brand. I've tried it and with some spices added it is pretty good -
ARCHIVED Is It Too Late To Do Anything? (Celiac And Probable 22Q.)
cap6 replied to RK22q's topic in Coping with Celiac Disease
I was 59 when diagnosed. It has taken almost 2 years to heal and even now there are some bad days but the good far outweigh the bad. The older we are and the sicker we are the longer it can take to heal. It is never to late to start. -
ARCHIVED Celiac And Bi-Polar Disorder (Or Serotonin Syndrome)
cap6 replied to Lincoln's topic in Related Issues & Disorders
My story as well! I was on drugs for years but after being gluten-free for about a year I slowly started weaning off the drugs. It has been 8 months now of weaning and I am almost off of all the drugs and I feel good! How do you explain to someone that one day you wake up and the world just seems a little clearer, a little brighter, happier. -
ARCHIVED How Much Acommodation Should We Expect?
cap6 replied to Irishgirl76's topic in Parents, Friends and Loved Ones of Celiacs
ok, nope not a good idea! -
ARCHIVED How Much Acommodation Should We Expect?
cap6 replied to Irishgirl76's topic in Parents, Friends and Loved Ones of Celiacs
I run both gluten & gluten free through the dishwasher together with no problem, however I use the pots & pans cycle so it has several rinses. Don't know if that is necessary but it makes me feel safer. -
If you are celiac you can not eat things from a shared fryer whether it makes you sick or not.
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ARCHIVED Just A Vent- In Laws Are Making Fun Of Celiac
cap6 replied to MitziG's topic in Coping with Celiac Disease
excellent book! I have told a couple members of my family about it, they have a glazed look on their face & change the subject. Celiac or not i think if you were to read that book you would Never touch wheat again. -
ARCHIVED Need To Vent Because Mom Is Not Helping
cap6 replied to Goof's topic in Parents, Friends and Loved Ones of Celiacs
I think family goofs are pretty normal. We live and breathe it 24/7, they don't. My partner & son are good about 98% of the time but every so often forget and put something down on my counter.... -
ARCHIVED Has Anyone Had Experience With Amitiza? gluten-free?
cap6 replied to cap6's topic in Coping with Celiac Disease
I was referred to a GI dr who tried to get me to take that but after reading about the side effects I decided not to. I do take a herbal laxative tea called Smooth Move and it works well with no side effect, at least for me. Can't go with out it. Wish I didn't need anything but feel like I have no choice. Eat lots of veggies & good stuff but doesn... -
ARCHIVED I'm Tired Of Cooking!
cap6 replied to bartfull's topic in Gluten-Free Recipes & Cooking Tips
I'll join you with the I hate to cook. Have never liked it or been good at it. 20 months later and.... I still don't like it. I bought several of these plastic divided dishes made by ziploc and then make up some meals from my leftovers. That way I always have something to fall back on - or to grab when my partner wants to go out to eat. Also bought... -
ARCHIVED Mother Drives Me Nuts Cooking Gluten Laden Foods
cap6 replied to catlover0329's topic in Coping with Celiac Disease
Can you look at this as a learning experience. We all learn, sometimes the hard way, to never assume something is ok for us. Also in your mom's defense it's a learning time for her too. The first holiday for all of you and it's still a rocky time with learning the ins and outs. As you learn share with her and hopefully by next year you will all be better... -
ARCHIVED "my Kids Can't Have Gluten So I Have To Get Whole Wheat Spaghetti For Them"
cap6 replied to their-aunt's topic in Parents, Friends and Loved Ones of Celiacs
A child that is told "no" when they are still hungry would concern me and sister or not I would report them. -
ARCHIVED Ruby Tuesday's - Cincinati Location
cap6 replied to Chalula88's topic in Gluten-Free Restaurants
We have two Ruby's near us. One offers gluten-free (udis) bun and the other does not. I haven't had the courage yet to eat at either one although I do know that Udi's requires the restaurant to go through a cc training. -
ARCHIVED Experience With Nylabone Pet Products?
cap6 replied to livelifelarge24's topic in Gluten-Free Foods, Products, Shopping & Medications
when we switched to grain free our old girl (16) and one of the little ones lost their flaky skin and the big girl stopped with her smelly gas.