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sb2178

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Everything posted by sb2178

  1. sb2178
    Crohn's disease affects several layers of the intestines, unlike celiac, which just affects the top layers, and there is often narrowing/scarring/ulcers. It shows up in biopsies in the affected area, and I believe the pattern of immune cells in the mucosa is different. Typically, the symptoms are slightly different as well but there can be a lot of overlap...
  2. sb2178
    Yes, are you anemic? I want to eat everything in sight even when not actually "hungry" when my ferritin drops. A multimineral with iron and occasional additional iron and magnesium calmed that down. Often cravings mean you aren't getting enough of the good nutrients. Try a good MVI. Maybe make your meals beforehand...?
  3. sb2178
    "Sero-negative" just reflects an imperfect screening test. The blood tests correlate to badly damaged intestines, so if you are early in the process, it may not appear in the blood. Partly, they set the standards a little high so that there are not false positives. The other part is that there is no perfect blood marker for most diseases. Rheumatoid...
  4. sb2178
    An insurance company can deny someone for almost anything. However, having kids fed safe food at school typically requires a diagnosis. No, I'd have the screening blood work done for them. The potential for avoiding significant health problems is well worth the time, money, and needle stick. Something like one in 10 first degree relatives has it-- so...
  5. sb2178

    ARCHIVED Pregnant

    sb2178 replied to Hulda's topic in Related Issues & Disorders

    Specific nutrients to watch include: calories, iron, folate, B12, calcium, protein, magnesium, fiber, and fluid (water). Generally, eating dark green leafies (kale, collards, mustard green, bok choy, broccoli, spinach, etc) and fortified dairy replacements can help with that. Try milder greens if the stronger ones are too bitter. Liver also is a very...
  6. sb2178
    1. dark chocolate 2. trail mix 3. dried apricots 4. pineapple (canned, usually) 5. apples 6. sun butter/peanut butter 7. larabars 8. cheese and crackers (crunchmaster multi-grain) 9. homemade cocoa nut bars 10. pickled cauliflower I like cookies, too, but they don't make the list for lack of frequency and the fact that I've never had any that...
  7. sb2178
    Definitely have them tested with the basic blood screening. People do question whether to have the genetics run or not. In that case, having a positive test could possibly weigh against you in the health insurance realm while indicating that occasional monitoring would be wise; a negative test means that monitoring isn't necessary unless symptoms appear...
  8. sb2178
    upland cress, red peppers, that trendy sheep feta sort of like feta, white onion in a salad? leftover Gumbo Z'herbes, maybe a brown rice tortilla Tonight is kinda light-- sort nibbled on trail mix all day.
  9. sb2178
    Yes, based on your intake, it sounds like you would be a false negative just because you probably aren't eating enough for it to show up. Fiber is good for you, but normal amounts shouldn't cause distress!
  10. sb2178
    Allie's 123 Gluten-Free Buckwheat are also quite delicious. Especially with cinnamon, ground flaxseeds/nuts, and apple!
  11. sb2178
    I like Udi's the best of the few commericial crusts I've tried. I'll be happy to send you links to a sauce recipe, and you can probably manage cheese and toppings on your own?
  12. sb2178
    Hormones. The same ones that cause your uterus to contract and relax affect your intestines. It's not uncommon.
  13. sb2178
    I also saw a commerical mix on that allergen-friendly grocer in VA... argh... don't remember the name but I have the link if you want me to look it up. Haven't ordered or tasted it, so the authenticity may or may not hold up.
  14. sb2178
    Elimination diets, if done well, and challenges are the only really reliable test. They're harder to accept sometimes, as the culture of medicine these days wants us to have a test that definitely says YES. Reactions do build up over time for some-- pain starts earlier for me, but fat malabsorption is at it's worst at 2-5 days after exposure. You could...
  15. sb2178
    I was raised vegetarian, and as an adult was almost entirely vegetarian (exceptions for some travel and fish). When I start having gluten issues I ended up adding meat back in-- first, to deal with the pre-dianosis anemia; second, because I was actually digesting lean meats when I wasn't digesting a whole lot else. After having regained some weight (was...
  16. sb2178
    Rainmaaker, also covered by many
  17. sb2178
    I'd say most people get a small amount of exposure normally in the homeopathic sense of exposure, which is what your theory sounds like. I actually didn't get all the way better until I really really eliminated 99.9% of my exposure, and was more dramatically sick after being exposed during that learning curve that I am now. Which means 1) I don't react...
  18. sb2178
    Uptown Girl - billy joel
  19. sb2178
    Lots to respond to... 1) Calcium levels in the blood do not really reflect done density, which is what you care about in the long term. The body stabilizes blood calcium levels by taking calcium from the bones when it isn't absorbing it through the intestines. I, for example, lost almost 6% of my bone density in a little over the year before diagnosis...
  20. sb2178
    You shook me all night long -- ac/dc
  21. sb2178
    with or without you - U2
  22. sb2178
    (I think my internet cnxn went wonky, so this is take two with a better song) without you here -- eve 6 (but depressing, because like miserable teenage boy music the most. will outgrow that someday. or maybe just convert entirely to NPR.)
  23. sb2178
    On the other hand, having the baseline endoscopy can show you how much damage has been done. If they don't recover or respond well to treatment, it can be useful to be able to compare that to repeat biopsies. It's a little old school, and most people respond well, but might be nice to have as a back-up. I'm sort of in favor, as Crohn's can show up as a...
  24. sb2178
    "ok" = Yay! I'm alive, can go to the grocery store without needing a nap afterwards, and am digesting (most) of my food again! no more nosebleeds, no more random bruising 3 weeks goodbye, 95% of random tendonitis and arthritis 90% normal GI 75% to 80% energy level (which was basically everything but endurance athletics or long day trips) 2 months...
  25. sb2178
    That sounds like pretty severe loss, but I don't think you can directly tell a Marsh score from that macro-level description (which would be based on photos/doctor's view). Edit: Yes, that is a typical assessment for celiac disease. Anecdotally, when an MD sees that even when endo'ing for another reason, they know to take biopsies for the micro (villi...
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