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sb2178

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Everything posted by sb2178

  1. sb2178
    Realized that actually, I was mildly bloated and am no longer. Pretty close to digesting fat again (yea!!) and concurrent return of ability to not be close to a bathroom for the first 4 hours of the morning. Like, I could go hiking! Greatly reduced acid reflux w/ no meds. Significantly decreased tummy pain. Probably decreased joint pain (this was variable...
  2. sb2178
    kayo, what i remember from research was that we depended on 24 hour urine collections to see how your body was doing with calcium absorption/release. Go off the supplement for one week, then collect for a full day, and if it's over a certain amount you're either not absorbing or have some hormonal imbalance that causes you to release... PTH and serum...
  3. sb2178
    Maybe add in digestive enzymes if he's old enough to swallow them? They cut down on my pain while I was still eating gluten. But, possibly just because it helped with lactose issues.
  4. sb2178
    blunted villi plus positive bloodwork? Seriously, still questioning? umm... yes... that would be celiac disease. Can CU get you in sooner? Are you still eating gluten? Ask them if you can stop if you are since you already have the biopsy and bloodwork. And STOP. Three things you can follow up on with them: bloodwork shift to normal after going gluten...
  5. sb2178
    Just want to throw in there that you might want to be a little considerate of "pickiness" in terms of alternate food. I discovered when I went to college that my aversion to citrus or tomatoes was actually probably based in fairly severe GERD, made worse with those foods. Not something I was able to put into words, but valid discomfort that is pretty easy...
  6. sb2178
    i vaguely think there are some yoga poses that can move things along. maybe check around to see if you can find a 5 or 10 minute routine that helps?
  7. sb2178
    You may need an official diagnosis to get insurance coverage for additional testing like a bone density scan (highly recommended with multiple fractures, even stress fractures) at a younger age. Alternatively, it's probably not that expensive to just pay for one compared to the assorted co-pays and may be worth the money to avoid the pain. If you're planning...
  8. sb2178
    I haven't tried much yet. Mostly eating sweet potatoes, lamb, summer squash, applesauce and millet with an odd shot of fish, rice or rice pasta these days. I think that about anything that doesn't upset the digestive system and is not on the above list will taste great when I get to it. Awful: Annie's boxed mac & cheese --- what soggy white rice...
  9. sb2178

    ARCHIVED Garden

    sb2178 replied to Roda's topic in Introduce Yourself / Share Stuff

    Planted: spinach lettuce radishes peas mizuna chard kale: red russian and dinosaur (black tuscan) broccoli raab squash yellow wax beans green wax beans purple romano beans leeks basil parsley nasturtiums (lots of perennial herbs) Coming: geraniums cucumber turnips Maybe: chinese long beans collards Harvested: lettuce radishes...
  10. sb2178
    You could also switch to ground turkey if you can stomach that. Then, work on moving to beans instead of ground meat. Say you're concerned about his cholesterol is he asks... or e. coli. week one: 1/4 beans 3/4 meat week two: 1/2 beans 1/2 meat week three: 3/4 beans 1/4 meat week four: 7/8 beans 1/8 meat week five: 100% beans and beans are cheap...
  11. sb2178
    No sinus infections, but definitely ear infections and bronchitis. Acupuncture was the best non-med solution to ear infections (as opposed to however many rounds of antibiotics). Seriously instant drainage, decreased inflammation, and then I could heal. Would imagine it works similarly for sinus infections.
  12. sb2178
    Yet TBD-- but one round of negative bloodwork with negative biopsy. Round two of bloodwork (IgG based, with a total IgA not done previously) pending, along with allergy testing. I'll be happy if it's not celiac, but really unhappy if it's something worse (that just happens to be responding to a gluten/lactose free diet). Diet seems to be a great long...
  13. sb2178
    Oh and you may be able to add things back in over time-- dairy usually comes after a few months, but sometimes it can take years. I have a friend who is finally able to eat legumes after about five years. Ditto that on making sure that the blood tests correlate with internal misery via an elimination diet or variation. They don't always.
  14. sb2178
    I'd suggest sitting down and making a list of what you CAN eat by food group. It's far more encouraging than a list of what you can't eat. Maybe even start in a grocery store or from wikipedia or a cookbook so you don't forget the things you don't usually eat. Caveat: I don't really know what you have to avoid for the fructose issues, so don't actually...
  15. sb2178
    Don't know their ages, but blood tests are notoriously unreliable for young kids (I think it was up until age 5 or so...). The other issues is if you don't eat wheat and keep them on a similar diet, they may not be eating enough gluten for the either of tests to come back positive. Does your insurance cover the genetics? Will their docs diagnose based...
  16. sb2178
    Sounds more like an allergy, but celiac shows up in many varied ways... are you avoiding rye, barley, oats too? Do they make you sick? If they don't, it's less likely to be celiac.
  17. sb2178
    I like a dense, wickedly rich variation of mark bittman's chocolate tofu pudding. take equal weights of soft silken tofu and high quality bittersweet or dark chocolate. Melt the chocolate (stirring frequently). Puree the tofu in a food processor or blender. Add the chocolate, and any additional flavors like cinnamon, rosewater, or citrus juice. thin...
  18. sb2178
    It's possible to have both, but I'm pretty sure that fever and strictures are Crohn's symptoms. Celiac, not so much. I have a couple of friends who have Crohn's and they absolutely have to avoid whole grains, so if you tended to eat whole wheat that would definitely exasperate Crohn's while refined grains less so. You may also have some food intolerance...
  19. sb2178
    Check out the cooking board too. If you can still eat grains, try a variety of new ones. Quinoa, rice, wild rice, millet, amaranth, corn, and buckwheat (kashi) are all options. Vegetables and fruit are great-- substitute sweet potatoes and potatoes in for grains. Beans are also a great source of carbohydrates and protein. Lentils cook fast, canned beans...
  20. sb2178
    nice story! other non-food ideas: kayaking/canoeing, a short hike on a populated trail, a bike ride, a festival or fair (take your own food), apple picking, a tour of someplace like a glass blowing factory, horseback riding, DIY picnic, some sort of athletic event whether it's the local high school team or something bigger (again, take your own food...
  21. sb2178
    It happens. There are also people who don't produce (much) IgA, so don't test positive because they just don't make the antibodies, and have to be tested using the less common IgG tests. You also have to be eating enough gluten for your body to make the antibodies. Find out if you doc did a total IgA with your blood tests and if that was normal. If...
  22. sb2178
    A ferritin of 10 is low enough that you might want to follow up on that-- doesn't leave you much iron in storage. (Over 25 is where my doc want mine.) Interesting to see that B12 level, as mine was definitely under 500 despite supplements.
  23. sb2178
    Make sure they are taking biopsies to check for Crohn's/colitis while they do the colonoscopy -- they would need to be eliminated as problems. Maybe you can see if they will do an endoscopy with biopsies at the same time so you only have to undergo the sedation once. Good luck.
  24. sb2178
    Just a heads-up, when you start you might find it helpful to be sure that you eat some yogurt (or other probiotics) and maybe take an OTC digestive enzyme if it's been a long time since you ate meat regularly. it can be a shock to the system. And start small/dilute. Been there, done that. Definitely source responsibly produced animal products of all...
  25. sb2178
    You might want to actually head off to the hospital or check in with your doctor about that-- it sounds a little like it might be pancreatitis (not uncommon among celiacs). If it's acute, I think they can treat it and you might be able to avoid developing it as a chronic problem. Also, I've found that "digestive enzymes" help a lot with general stomach...
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