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Skylark

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Skylark

  1. Skylark
    Your compassion is wonderful and you are right to feel sorry for these kids. They are creating bad karma in their lives and it will catch up to them eventually. You can't do much about it right now, but they will eventually get put in a situation where they will need to rely on compassion from others and get a chance to learn. Some will learn, some won...
  2. Skylark
    Many people with celiac are intolerant to casein, one of the main proteins in milk. It can look a lot like gluten to your immune system. Lactaid only helps with lactose intolerance, not casein intolerance.
  3. Skylark
    Here is the best explanation of Rice Dream and gluten I can find. Tricia Thompson is a real expert on gluten in foods. Open Original Shared Link I can drink Rice Dream with no reaction. I'm pretty sure we have a few unusually sensitive board members who do react to it.
  4. Skylark
    I don't see total IgA either. I'm not experienced at reading all the blood stuff. I'd also ask for gliadin peptide IgA and IgG. Those can be a little more sensitive than TTG. TSH that high would wipe me out!
  5. Skylark
    I hope it helps! A well-fitted N95 mask makes a huge difference for my asthma in a dusty environment even if it's not gluten dust. They're not too expensive to use occasionally and I consider it money well spent compared to being miserable with asthma.
  6. Skylark
    Wow, so Heidi please don't think we're all wanting to fight with other when you read this. I notice you're new here and I didn't even welcome you. Welcome to board. Feelings run a little high when it comes to how careful you have to be about gluten. We're usually a much more laid-back bunch!
  7. Skylark
    This was a challenge??? OMG you poor thing. Good luck scheduling the blood work and biopsy fast. It sounds like you have your answer either way. Good luck recovering in time for your cruise. I hope it's a wonderful vacation.
  8. Skylark
    The blood work is less expensive and non-invasive so it's usually done first. If you have a regular office visit scheduled, they won't just put you under and do an endoscopy on the spot. It's an outpatient procedure and has to be scheduled at a facility where they have the endoscope set up and they can sedate you. It's rare to get in really fast for a...
  9. Skylark
    You are what celiac experts call latent celiac. You are somewhere in the process of developing full-blown celiac disease and the only way to reverse it is the diet. People with positive bloodwork on highly specific tests (your combo of TTG IgA and gliadin peptide IgG is highly specific) who elected to keep eating were followed in a study and most went...
  10. Skylark
    A trace of CC on a tiny pill is not enough gluten to bother most celiacs. You will typically get more gluten in a couple slices of "gluten-free" bread. The big worry is whether the pill has wheat starch as part of the formulation. The pill sounds fine to me.
  11. Skylark
    When I first read the post I was reminded of a friend with OCD I used to help. She was obsessed with the possibility of germs on food boxes and when she shopped she would wear gloves, line the shopping cart with bags, wipe off the conveyer belt at the checkout, and double-bag all her food. She wanted me to do the same when I shopped for her. Her therapist...
  12. Skylark
    My asthma would be worse anywhere dusty like that, gluten or not! N95 masks are very easy to breathe through and used to be enough for my animal allergies when I had to visit a vivarium where I worked. Breathing 5% of the smallest particles is better than breathing 100%, especially if you're finding that you're not getting too many symptoms. You can usually...
  13. Skylark
    Thanks! I don't eat bread often but when I do eat it I like it to be GOOD. That recipe looks really fiddly, but maybe I can get a San Francisco style starter going on brown rice. I wasn't sure what kind of flour yeast might live on.
  14. Skylark
    The "in a wreck and gluten spilling out" is really over-the-top. I agree with you that capitulating to this and not buying frozen food for work (that isn't even stored in the freezer) is enabling overly fearful behavior. We're in places with gluten all the time like grocery stores, our workplace where people eat bagels and donuts, friends' homes, restaurants...
  15. Skylark
    Has anyone tried to keep sourdough starter alive gluten-free? How did you do it and what bread recipe did you use? All my friends are making sourdough bread right now and it has me thinking it might be fun.
  16. Skylark
    I'm celiac and I ride in my friends' cars all the time without worrying about gluten from their groceries. I don't see any issue.
  17. Skylark
    That would be awesome! It was at the Raglan Road Irish pub in Florida Downtown Disney. I was so excited to have good fried foods. They had a dedicated fryer and everything.
  18. Skylark
    When I was at Disney they said their deep frying batter had garbanzo bean flour and soda water. I don't know what other flours were in there but it was super-crispy and very good.
  19. Skylark
    I don't know what study you picked up but I typically see 75%-80% sensitivity on anti-EMA in studies. A really good diagnostic lab might get 85%. Remember that anti-EMA is hand-processed and read so there is a lot of diagnostic lab variability. In the real world rather than studies it's RARE that people test positive to every celiac test. Spend a little...
  20. Skylark
    Here's a different perspective. I had tons of stomach trouble as a kid from food allergies and undiagnosed celiac. (I tested negative for celiac but I was off wheat at the time.) As well as the allergic/celiac stomach trouble, I would get psychosomatic stomach-aches. The stomach-aches were plenty real - I really was in pain - but Mom noticed I was usually...
  21. Skylark
    Yeah, most of the stuff that could make TTG positive besides celiac is both rarer and much scarier than celiac. Sometimes it comes up with other autoimmune diseases - I think we have a board member whose doctor decided her elevated TTG on the gluten-free diet might have been from Hashimoto's. I also don't associate Crohn's with joint pain, while some people...
  22. Skylark
    I take them during, at a different time from the antibiotic dose, then continue for a couple months. It's never caused me any issues and probiotics + yeast-killers like caprylic acid will usually head off the feminine yeast infection I tend to get after antibiotics.
  23. Skylark
    Specificity of TTG IgA in adults is maybe 95-98% (studies vary). Celiac is by far the most common reason for elevated TTG, particularly in people with celiac symptoms, which you have. Chronic diarrhea, bloating, and joint pain are all celiac symptoms. Endomysial IgA does not have a terribly high sensitivity. It is around 75-80%. TTG IgA is the more...
  24. Skylark
    Seems like they're saying that maybe probiotics help avoid converting from gluten sensitivity to celiac disease? Seems like I remember reading some research that gut dysbiosis may be involved in the development of celiac a couple years back. That makes sense.
  25. Skylark
    Yep, me too. When I swap out starchy foods for veggies I lose weight. If I eat potatoes and rice, the weight comes right back on.
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