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Skylark

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Skylark

  1. Skylark
    I should add that once she's had the medical workup, try her gluten-free even if she doesn't meet a GI doc's definition of celiac. With those results she is very likely to feel better off gluten. It's just that you want to be sure what's going on first.
  2. Skylark
    I've done them with softened butter and they worked just right. I think it was your melted butter.
  3. Skylark
    I was thinking the same thing about the cravings and nutrition. I used to crave fruit too. I would buy smoothies, V-8, and those heavy-duty Odwalla juices at the health food store and I usually felt a little better. Emergen-C was another thing I used to really like. I stopped craving fruit so much when I got onto my heavy duty mulitvitamin/mineral/trace...
  4. Skylark
    Yes, glutenings can feel different. I get any random combination of stomach ache, diarrhea, anxiety, fatigue, and canker sores. Roll the dice, pick at least two. There is an element of malice in your description which is troublesome. There is a difference between living with someone who just doesn't believe you but humors you (been there, done...
  5. Skylark
    My understanding is it depends whether you have the really severe hereditary fructose intolerance, or just fructose malabsorption. If you have the hereditary form, they're a no-no. Mom just has fructose malabsorption, and she finds that she can tolerate a little beet or cane sugar because they're 1:1 fructose:glucose. If she eats a lot of sugar she'll...
  6. Skylark
    Hi there. Please, please, please don't take your daughter off gluten until she's had a proper medical workup for celiac disease. Something is going on with her but Enterolab tests are NOT diagnostic. They cannot discriminate between Chron's, microscopic colitis, other inflammatory bowel diseases, and celiac. With her genotype, she is at relatively low...
  7. Skylark
    Well, Enterolab is not diagnostic. Your husband's results are not strong at all. He's got a low positive on the anti-gliadin IgA and nothing else. Despite what Fine says, it's been shown that normal people can have anti-gliadin IgA come and go in their stools. There is no harm in him trying a gluten-free diet with the Hashi's. I don't think the Enterolab...
  8. Skylark
    This diet is hard, no question. When you get up in the morning, you have to ask yourself whether your food preference is more important, or the chance to test for sure whether celiac is the cause of your crushing fatigue. I tend to eat fruit and some cheese or a Larabar or a Kind bar in the morning. Sometimes I eat peanut butter on gluten-free toast because...
  9. Skylark
    That is scary. What has changed since the baby was born? Look at vitamins, medicines, lotions, soap, baby wipes, diaper lotion, anywhere gluten could be getting on your hands and into your mouth. Also, if you have become hypersensitive to gluten, you may not tolerate "gluten-free" products like breads and cereal any more. Many of the commercial products...
  10. Skylark
    Your GP sounds great. As for the Seroquel, as well as being gluten-free I had to go pretty heavy-duty nutrition to get my bipolar to resolve. I take a fairly expensive chelated vitamin and micronutrient supplement from TrueHope called EMPowerPlus that's designed for people with bipolar illness. I also take fish oil, which is fairly important for maintaining...
  11. Skylark
    I thought I was the only person who used straight oil when my skin was dry. I use rose hip seed oil with a drop of lavender.
  12. Skylark
    Those cow eggs get really big and tasty.
  13. Skylark
    Neuropathy can heal, but it may take a while. Nerves heal slower than anything else in your body. Things that help nerve healing are B complex (You need B1, B6, and B12), and a healthy balance of fats for rebuilding myelin. CoQ10 is supposed to be helpful too. B12 is particularly important and you might want to get a sublingual methylcobalamin supplement...
  14. Skylark
    Stick with it. You also have the low vitamin D which is a sign of malabsorption, and Hashimoto's thyroiditis, which is associated with celiac. In a few more months you need to ask your doctor for follow-up testing with another anti-TTG test. I think testing at 4-6 months is typical. If the levels have fallen a lot, you'll know gluten was causing it...
  15. Skylark
    What I'm trying to say is that the anti-gliadin IgA can be positive in non-celiac people who have a normal biopsy. Wouldn't that be a false positive? I'm horribly brain fogged today and can't figure out why. I'm really sorry if I am writing confusing posts.
  16. Skylark
    Anti-gliadin IgA has a high false positive rate for celiac disease with villous atrophy, and in some people it can appear and disappear. Doctors don't think much of that test alone, with no anti-tTG or anti-EMA and a negative biopsy. Thing is, you don't have to be celiac with villous atrophy to feel awful when you eat gluten. The anti-gliadin IgA means...
  17. Skylark
    The "blood type" diet is rubbish. That fellow is laughing his way to the bank. Notice how the most popular American foods are lined up with the most common American blood type, O. The classic way to test is to eliminate both nightshades (all kinds of peppers, eggplant, potato, tomato, tomatillo) and onions and garlic (they're related) for two weeks....
  18. Skylark
    If you don't think you need Prozac, get off it! Taking it for a long time made me bipolar!
  19. Skylark
    There are no specific problems with caffeine. A lot of alternative health people will tell you it's bad for you, but there are just as many studies showing that it has positive effects including increased alertness, improved mood, and possibly helping to prevent Alzhiemer's. Some people get the "jitters" and anxiety from caffeine; those people tend not...
  20. Skylark
    How exciting! Good luck. I buy things that are harder to make myself. I buy gluten-free sandwich bread and bagels most often. I haven't seen gluten-free focaccia bread. I used to get one that had herbs and Parmesan cheese on the top that I really miss. If I found something like gluten-free cream puffs or pastry I'd definitely get some to try. I...
  21. Skylark
    Sorry you're feeling so sick. It's so tempting to test whether you still need the diet, especially for something good like pizza. You pretty much have to weather the storm. There is no way to "undo" eating gluten. Drink lots of water to help your body flush toxins and take whatever you usually do for stomach aches. Pepto Bismol (brand name is gluten...
  22. Skylark
    The muffins are very good. I had the blueberry. They are a touch more "springy" than normal ones, but the flavor was fantastic. I haven't seen Udi's bagels. I'll have to keep an eye out. There is only one store reasonably close to my house that has Udi's. I usually eat the Glutino poppyseed ones and like them well enough, but they're a little lighter...
  23. Skylark
    Enterolab has their tests set to have a very high sensitivity. This has the associated issues with high false positive rates. It's on their website, buried in the "lectures" section.
  24. Skylark
    It sounds to me like you're still too focused on food. I never go to social events hungry. Friends and family can offer me all the gluten-containing things they want. I don't take it personally and if I'm not hungry I really don't care. Vacationing is a pain, for sure. I do things like buy tortillas or rice cakes and lunch meat at a grocery store...
  25. Skylark
    OMG. That sounds awful. I hope your GI gets it sorted out. This sounds like more than just gluten, though with a celiac brother going off gluten was a good idea. Good luck.
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