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Skylark

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Skylark

  1. Skylark
    Thank your ANRP for the help and decline further evaluation. Doctors like to hear that they got a diagnosis right and it will improve your relationship and care. It also might be helpful for her to know what you did that did and didn't work, so she can pass on the information to other patients. I had a doctor ask me a lot of questions about my gluten-free...
  2. Skylark
    Don't be scared. I know someone who was 200+ lbs. and doctors said she couldn't be celiac despite her IBS and anemia. She finally found a doctor who would test her and it turned out she was celiac with a positive biopsy. She went off gluten, and stopped being hungry all the time because her body could absorb nutrition from food again. She dropped 60 lbs...
  3. Skylark
    If you look in the biomedical literature, there is virtually nothing about stool antibody diagnostic testing. Enterolab has made the decision to only patent their tests, rather than doing proper controlled studies and publishing in the peer-reviewed scientific literature. This means that anyone with good scientific training (like me) will regard Enterolab...
  4. Skylark
    I was just about to post the same thing. Sometimes the histamine in red wine will trigger my asthma. White wine is much less of a problem.
  5. Skylark
    I've found enough pebbles in bags of lentils that I always pick them over and rinse them well. I haven't found wheat in them, but I'm not terribly surprised.
  6. Skylark
    Oh, bummer. Herb-Ox is gluten-free for your next batch of cubes.
  7. Skylark
    Marsh 1 biopsy is not positive for celiac in the strictest sense. There is research showing that some people with positive bloodwork and mild blunting feel better off gluten, and that some convert to Marsh 3 or Marsh 4 biopsies if they keep eating gluten.
  8. Skylark
    Does anyone use Bentyl these days? It helped when I was a kid.
  9. Skylark
    No beer made from barley malt is gluten-free. https://www.celiac.com/articles/798/1/A-Word-on-Gluten-and-Beer/Page1.html You need to find one of the sorghum craft beers if you want to drink beer.
  10. Skylark
    Most of the time I tolerate shared equipment food OK but I've had an occasional glutening where that was the only sensible explanation.
  11. Skylark
    Ativan is also anticonvulsant and a muscle relaxant. Don't assume doctors are writing you off. I'm sorry it's not helping.
  12. Skylark
    You are not alone. IBS, depression and anxiety (which later turned into bipolar), chronic fatigue, hypothyroidism and gastritis for me. I was so tired I didn't want to get out of bed some days. Going gluten-free pretty much cleared things up and now I feel so much better.
  13. Skylark
    Funny, I came here to ask exactly the same question. I've gotten much more sensitive since I went gluten-free about five years ago. I didn't have to worry about little bits of CC in restaurants or "shared machinery" labels. Now I am reacting to tiny bits of gluten too. It's really a pain.
  14. Skylark
    That's scary stuff. You had my hunting down non-GMO corn chips at the grocery store yesterday.
  15. Skylark
    I went to visit my brother's family last year. My sister-in-law had a basket of gluten-free snacks and cookies on the counter, had picked up gluten-free soy sauce for the stir fry she was making for dinner, and had baked me a loaf of gluten-free bread.
  16. Skylark
    A lot of the chronic fatigue went away within a month or two, but I had to get off my meds and go onto probiotics and a special vitamin supplement made for bipolars before I stopped having mood swings entirely. It took about three months for the supplement to really kick in, and it gave me candidiasis at first (not uncommon) so I felt worse before I felt...
  17. Skylark
    At events where I have to eat, like conferences, I contact the organizer ahead of time and politely ask about gluten-free food. I've always been accommodated with very little fuss. People who run dinner events are accustomed to vegetarians and people with allergies, and I find a lot of them are getting very used to celiacs as well. As you know, it's really...
  18. Skylark
    You might try writing the corresponding author on this research paper as to whether it's possible. He is a world expert on gluten ataxia. Open Original Shared Link The other obvious thing is to take your son off gluten and see if he improves. I think there are problems getting accurate anti-gliadin blood tests in kids under 5, so even if you can get...
  19. Skylark
    Don't wait a couple weeks. Call your primary care doctor!
  20. Skylark
    Promethus is testing both alpha and beta chains, so you find out if you have the high-risk DQ2.5. I'm not sure Enterolab does that.
  21. Skylark
    How bad shape are the pots in? Can you give them a good scrub with steel wool and the strongest soap you can find? Also, how gluten-sensitive are you? It's kind of unusual to be so gluten-sensitive that residue on a freshly-scrubbed metal pot is troublesome. Then you just need to be sure that your cook knows to use a separate, clean spoon in something...
  22. Skylark
    Glad you're feeling better! An allergy test is not going to help with a celiac diagnosis, although it's not impossible to have both. Celiac is not an allergy. It's an autoimmune disorder more akin to rheumatoid arthritis or lupus. There seems to be a pretty wide spectrum of gluten sensitivity, and you're not unusual around here for having negative bloodwork...
  23. Skylark
    Could you share some dishes that we could ask for? I'd be so grateful. You mentioned pad Thai and yellow curry. Any others that work well?
  24. Skylark
    I just got glutened at a new Thai place I visited with a friend a couple weeks ago and I made sure the curry had no soy sauce. I asked here and other folks told me that as well as watching out for soy sauce, you can't count on fish sauce or oyster sauce to be gluten-free. Also someone said they asked to see the ingredients on rice noodles at one restaurant...
  25. Skylark
    Interesting that they don't feel like they can provide gluten-free organic corn at all. I knew there was CC in the grain industry but I didn't know it was that bad.
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