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lucia

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by lucia

  1. lucia
    I love this article by our own celiac hero Dr. Peter Green at the Celiac Center at Columbia University Medical School, because he takes the American medical community to task for being so irresponsible about this disease: Why are U.S. physicians spotting only 3 percent of cases? Part of the problem is that celiac disease, because it
  2. lucia
    Does anyone know what this is about? According to wikipedia, iron supplements come in two different forms, one prescribed by a doctor and the other from the grocery store. And: These 2 categories should not be confused. Open Original Shared Link huh?
  3. lucia
    Indian food is often (especially in India) vegetarian, and mostly gluten-free. I'm pescatarian (vegetarian + fish) and my inlaws are Indian, and I've found a lot of inspiration in the kind of foods they cook. Besides that, knowing that most of the people on the continent of India eat this way proves that it can be done in a healthy way. It just takes more...
  4. lucia
    No, I got the labs back in the mail. Do you think I need to make an apt?
  5. lucia
    Do you live in the City? I live in Brooklyn. The good news about living in NYC is that gluten-free foods are a lot more available here than in other places. Still expensive, but available. You can definitely find gluten-free cookies, flours, grains, and even pizza (although you have to go out of your way for that). Welcome!
  6. lucia
    It sounds like FMLA may be a good option, if you need it. I'm really impressed you worked for 7 years without a day off, and your commitment to that job will always hold you in good stead in the future. Sing some more of that "Kentucky Rain" when you get stressed, and do more good things for yourself. It's a rough time, but it won't be forever. best...
  7. lucia
    Thanks ravenwoodglass! Even though I thought I'd be miserable limiting my diet so much, I'm actually enjoying my new diet because I feel so much better.
  8. lucia
    It could also be secondary food intolerances (unfortunately). It's really common when you have celiac to lose the enzyme that allows you to digest lactose, so dairy intolerance is common. People also sometimes develop other intolerances while they are recovering. In my own case, I am reacting now to soy and to corn, in addition to gluten. I've been surprised...
  9. lucia
    The good news is that I finally got my lab tests back from my doctor's office. My B12 levels are way up after taking sublinguals. My Vitamin D and my Vitamin A are low, but the biggest issue is that my red blood cell count is really low. No wonder I'm so exhausted all the time! I need an iron pill pronto. Only issue is that right now I'm reacting to dairy...
  10. lucia
    I think I may have this issue at the end of August, if things work out and I feel well enough to go on a trip. My husband and I are talking about doing a modified vacation. We'll go somewhere on the train and stay in a hotel, and I can rest while he goes walking around town, inline skating, hiking etc. Only problem is the food issue. I'm on a very modified...
  11. lucia
    Wow! High profile for gluten-free diet! Is that why the catering bill is going to be so high?
  12. lucia
    I wouldn't have known if I had just relied on tests. My doctor diagnosed me on the basis of diet response. The tests for celiac are known to have high rates of false negatives.
  13. lucia
    Thanks so much for your input everyone. I have been able to start a modified elimination diet. I was able to taper off of green tea (albeit with headaches when I finally quit; I think I'm really sensitive to caffeine) Now, I'm only eating: sunflower seeds, tuna, quinoa, sweet potatos, kale, bananas, and olive oil and sea salt. So far, so good. My GI symptoms...
  14. lucia
    I wish you the serenity To accept the things you cannot change; the courage to change the things you can; and wisdom to know the difference. I don't think you could have changed this, but you can change the way you handle your recovery now.
  15. lucia
    This is the one I like to refer to: Open Original Shared Link Although neurological manifestations in patients with established coeliac disease have been reported since 1966, it was not until 30 years later that, in some individuals, gluten sensitivity was shown to manifest solely with neurological dysfunction. Furthermore, the concept of extraintestinal...
  16. lucia
    Cool But ... an alcohol allergy - are you sure you can deal with that? Just kidding, of course.
  17. lucia
    Just wanted to chime in about vegetarians and gluten: while most "meat substitutions" are made of gluten, there are plenty of protein sources that are naturally gluten-free. In fact, a majority of people in India are vegetarian and you won't find such meat substitutions there. What you will find are dishes made out of beans, nuts, soy derivatives, and cheese...
  18. lucia
    Wow, Skylark, thanks for gifting us the benefit of your research background. Really great synthesis.
  19. lucia
    I imagine it's really scary. I was really scared that I'd have neuropathy for life, since it doesn't always resolve on a gluten-free diet, so I can relate. One suggestion - not one that your doctors will make: find an acupuncturist. Acupuncture has been amazing at resolving my neuropathy. http://www.ncbi.nlm.nih.gov/pubmed/9077368?dopt=Abstract
  20. lucia
    You're the opposite of insane. Sounds like you're doing a really good job of taking care of yourself, despite the obstacles. Did you know that on average it takes 9 years in the U.S. for a celiac to be diagnosed after getting symptoms? The American medical community is simply not very good at dealing with celiac - diagnosing it or treating it. I suggest reading...
  21. lucia
    Your story sounds familiar after hanging around this board for awhile. Gluten can really do a number on our bodies. The immune reaction of a celiac (& yes, you qualify) means that our bodies behave like gluten is poison. Just imagine that you've been trying to digest poison your whole life. No wonder you're so sick. The good news is that once we stop...
  22. lucia
    It sounds like you may not have a lot of support with this. These are the kinds of things that you should be able to talk to your doctor about. It would also help to see a good nutritionist/dietician. I know this won't always be possible, since so many health professionals remain ignorant about celiac, but it may be worth looking into finding someone who...
  23. lucia
    Also bipolar. And, also epilepsy.
  24. lucia
    How old are you? Could the hair loss/graying be a normal event due to age?
  25. lucia
    Interesting conversation ... as someone with peripheral neuropathy, I've been paying attention to medical research about it in celiacs. Medical research supports that it exists in celiacs, but have no idea how or why it goes away - or not, which is sometimes the case for people. After 3 and 1/2 months on a gluten-free diet, I was still suffering painful...
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