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lucia

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by lucia

  1. lucia
    Lindsay, Hang in there! And you can always talk to us here on the board. We do understand! Going gluten-free is a huge change for your body and your lifestyle. It takes time to adjust. People experience physical withdrawal from gluten too. You can expect to be out of sorts the first couple of months. But try to remember that you're doing the right thing...
  2. lucia
    I know this may not always be practical, but given that you were recently diagnosed and need to focus on whole foods not processed foods, the best solution would be to make your own. It only takes buying some raw beef (you know, they sell the ends for this purpose) and simmering it with water (and spices) for an hour or so on the stove. Then, you just strain...
  3. lucia
    I also recommend talking to your doctor. S/he may recommend a thyroid test. What you describe does sound concerning.
  4. lucia
    Welcome to the board, Travis! Celiac is genetic so having a parent with it is a major clue. It sounds like you've been able to self-diagnose, and I'm glad to hear that you are feeling better off of gluten. I would still encourage you to talk to a doctor since there are so many associated risks with eating gluten for celiacs, such as vitamin deficiencies....
  5. lucia
    Ravenwoodglass, your posts have made a big difference to me. And I'm sure that's true for many people on this board. You often have just the right thing to say - sometimes comforting, and other times honest (when that's needed). I think that often the people who have struggled the most are the most qualified to support others on similar journeys. I'm glad...
  6. lucia
    Wow - I thought this thread would be depressing, but instead everyone is so happy with their new gluten-free lifestyle and happy to make do with substitutes! That's pretty impressive. I can't even remember the last time I ate something with gluten. I think I must have had other things on my mind, such as prolonged stomach pain.
  7. lucia
    It sounds like you've already identified corn as an issue. Try eliminating it to see how you feel off it. Make sure that you completely eliminate it for a substantial period of time, at least one week, before you make any decisions about how it effects you. I was shocked when I eliminated corn to discover that not only did my stomach stop getting queasy...
  8. lucia
    Hurray!!! Sounds like we're on a similar diet (although mine is technically SIBO) - basically whole foods, protein in the form of fish, chicken broth, or eggs, and lots of cooked veggies and fruits. It's working for me too!
  9. lucia
    And what a memorable experience that must have been for your son! A great send off! I'm so glad that gluten-free is becoming an option throughout the U.S. My husband is doing some work right now in the U.K., and he says that all of the food is labeled there if it has gluten or doesn't. I hope we'll see that someday here! I'm so happy for you, Ravenwoodglass...
  10. lucia
    CoolClimates, My impression from reading everyone's posts is that for both these questions, the answer is going to depend on your body. For awhile, I could tolerate goat's cheese and yogurt even though I couldn't tolerate other kinds of cheese or milk. Then, I started reacting to goat's cheese and yogurt as well. Lucia
  11. lucia
    I don't think my neuropathic pain would be gone (at 5 months) without acupuncture. What has helped me most has been 1) acupuncture, and 2) the SIBO diet that eliminates all grains and artificial sugars (I react strongly with neuropathic pain to corn). Unfortunately, acupuncture is not covered by health insurance (unless you live in CA), and it is costly...
  12. lucia
    Well, you definitely did the right thing, since blood in stools can be serious.
  13. lucia
    gary'sgirl, The SIBO diet is designed to treat bacterial overgrowth. I was getting sick from eating/drinking everything, so I suspected that I had bacterial overgrowth. It's definitely a desperate measure. cassP, You reminded me how hard this diet is. I wouldn't be doing it if I didn't need to to recover. This experience has made me think that I need...
  14. lucia
    The good news is that I am feeling better everyday on the SIBO diet. One week ago, I pretty much had continuous stomach cramps, and those are gone. As I feel better though, I'm beginning to experience real hunger again. I'm only eating fish, eggs, and fruits & vegetables, no grains at all. I can't seem to satiate this hunger. Has anyone else done...
  15. lucia
    Wow! I'm so often blown away by the arrogance and ignorance of the medical community. I was told by a GI doctor who has a university-affiliated hospital appointment that the numbness & tingling in my hands & feet could not be related to my stomach issues. Turned out that when I typed "neuropathic pain" and "gastritis" together into a search engine...
  16. lucia
  17. lucia
    Barley grass and wheat grass technically do not contain gluten, but the seeds often cross contaminate the grass. I got glutened early on from a bottle of Naked Spirulina drink with wheat grass. You'd have to trust that the manufacturers of the drink powder are extremely careful to avoid cross contamination from seeds. If you haven't reacted to the drink powder...
  18. lucia
    I noticed that lactose in dairy products hasn't been mentioned yet as a possible culprit. Celiac usually destroys the digestive enzymes for lactose in the small intestines along with the villi. People are commonly not able to eat dairy products in the early stages of healing. Try removing them from your diet and seeing how you feel.
  19. lucia
    Kaique, Your instincts are completely right about this. The American medical profession doesn't understand celiac very well, and that leads to irresponsible behavior from doctors. According to the Celiac Center at Columbia University Medical School, it takes an average of 9 years in the U.S. for a celiac diagnosis from the time symptoms appear. It's interesting...
  20. lucia
    With celiac, the autoimmune reaction from gluten will destroy your villi, and that has ongoing consequences until you heal entirely. You don't want to risk that. (While the others likely cause inflammation, there is not actual physical damage.)
  21. lucia
    About a year before I came down with the GI symptoms of celiac, I started suffering crazy panic attacks. They started as if out of nowhere. I saw a therapist, but nothing worked until I started taking an anti-depressant. Finally, my panic subsided on the medication. After 3 months gluten-free, I went off of it (because of concerns about soy and corn in...
  22. lucia
    It is great news! I'm so glad to share it. I found out that corn was effecting my neuropathy when I cut it out (after it started giving me GI symptoms). I never in a million years would have dropped it otherwise. But it was a happy surprise when, after not eating corn for 3 days, I realized that my neuropathy had receeded. Acupuncture was amazing for...
  23. lucia
    How is your pregnancy going?
  24. lucia
    It seemed to me like all of a sudden my poor body just broke down, and i've been struggling ever since to regain my health. In retrospect though, I realize that I had symptoms years ago, but not GI symptoms. I attributed the pain at the bottom of my feet when waking to getting older. Luckily, getting older (I'm now 39) isn't that bad. Medically, I...
  25. lucia
    I realized today that my neuropathic pain formerly in my hands, forearms, lower legs, and feet is gone! At least for now, fingers crossed it won't come back. It seriously feels like a miracle!!! But, more accurately, I think it's a result of: 1) Being gluten-free now for 5 months 2) Eliminating corn (my symptoms were reduced immediately after I did...
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