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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by lucia
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ARCHIVED Old Celiac Patient And New Problems
lucia replied to dee53140's topic in Food Intolerance & Leaky Gut
Do you mean that you were occasionally eating gluten in the interim between 2005 and now? If so, it's likely that your intestines didn't entirely heal. If you've really cut gluten out this time, then it's like starting the healing process from the beginning. And our bodies often can't handle lactose after so much damage from gluten. That changes over time... -
ARCHIVED Munich, No Schnitzel Or Beer Steins...paris, No Crepes And Pastries
lucia replied to The Glutenator's topic in Coping with Celiac Disease
I don't know what your dietary restrictions are, but if you can eat cheese ... there's also milk chocolate bars (Swiss chocolate!), cappuccino, ice cream/gelato, and - in Spain - hot chocolate. Just make sure that you're getting drinks and ice-cream made from scratch, so no accidental gluten sneaks in. I'd be really happy to be forced to eat European... -
Just wanted to chime in that gluten-free beer is good, and some it is great! RedBridge is pretty good, and the others that I've tried have been great. Turns out there's no reason beer has to be made out of wheat. If it's less about the beer though and more about the experience of hitting the bar after work, there are plenty of substitutions. The best...
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ARCHIVED Munich, No Schnitzel Or Beer Steins...paris, No Crepes And Pastries
lucia replied to The Glutenator's topic in Coping with Celiac Disease
P.S.: I would be bummed too anticipating traveling through Europe and knowing I couldn't eat all the great food. I've been in that position for a long time to some degree since I'm a vegetarian. For what it's worth, I probably enjoy a good meal more after hunting around for it than I would if it was easier to find. I see tourists all the time in New York... -
ARCHIVED Munich, No Schnitzel Or Beer Steins...paris, No Crepes And Pastries
lucia replied to The Glutenator's topic in Coping with Celiac Disease
I'm so excited for your trip!!! What a great experience! I think you'll find it's basically easier to eat in Europe than it would be if you were traveling across the U.S., because Europeans eat less processed foods. It's easy to find fresh fruits and vegetables, cheeses, unprocessed meats, olives, etc. in European groceries. In the U.S., farmers receive... -
Sounds like she's been testing you ... maybe you passed the test??? Yes, I really do get sick when I eat that stuff !
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Congratulations! What a great surprise! I had no idea that mothers could be so mean to their adult children. My Mom died when I was 14 so I don't get to experience the bad or the good. I hope that there is some good.
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ARCHIVED Publications/organizations/foundations!
lucia replied to Frances03's topic in Coping with Celiac Disease
What about "Living Without" magazine? Is that any good? -
Oh, thank-you so much! I'll try it. I've never cooked with amaranth before, so this is good inspiration to go get some.
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ARCHIVED Did You Have A Trigger That Started Your Symptoms?
lucia replied to afreeclimber74's topic in Coping with Celiac Disease
Afreeclimber, Interesting that you can relate your symptoms to traveling in SE Asia and then coming back to the U.S. Did you eat much gluten when you were there? I'd had neuropathic pain for years, but my gastrointestinal symptoms arose only after trips to India. The first time (in 2006) I was there for 6 weeks. My symptoms were severe enough when I... -
ARCHIVED Total And Complete Exhaustion
lucia replied to snow white's topic in Coping with Celiac Disease
Hi snow white, Don't worry, no one feels the same way over 2 years, even if it takes that long for *all* the damage to heal. Know that the damage is reversing with every day that you don't eat gluten. You'll start feeling better soon. It's like the Beatles song: "getting better all the time ... " -
A very Happy Birthday to You!!! You sound like you've really triumphed over your challenges. Thanks for being an inspiration to us all.
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Same thing for me. And the life-cycle for the depressed mood is also about 3 days.
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hi there, I was reviewing the first couple of chapters of Dr. Peter Green's book (now that my brain fog has lifted somewhat), and I came across info about Vitamin K deficiency that may be related to what you're experiencing. Vitamin K is related to clotting of blood. Vitamin K deficiency can lead to bruising and easy bleeding. Hope you've already...
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ARCHIVED Trader Joe's gluten-free Pasta
lucia replied to Becksabec's topic in Gluten-Free Foods, Products, Shopping & Medications
It's the same stuff. I don't know why TJs can sell it so much cheaper. They even have the same name-brand bread I've seen at Whole Foods, but they sell it for 1/2 the cost. -
Thanks everyone for your responses. I don't know what I'd do without my forum friends! It's so hard to get so sick from food that other people take for granted. I watch tv and see people taking eating dinner at a restaurant for granted, and I feel so jealous. I'm feeling somewhat better today, although I had a rough night that interrupted our 4th of July...
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ARCHIVED Celiac Disease And Infertility
lucia replied to taradorff's topic in Related Issues & Disorders
According to Dr. Peter Green at the Columbia Center who is a world expert on celiac, the disease does cause infertility. Couples with unexplained infertility will often be tested for celiac, and the rate of positives for celiac amongst infertile couples (women & men) is much higher than in a standard population. But infertility clears up once celiac... -
I've already cut dairy and soy out of my diet. In both cases, it was pretty obvious I was having gastro reactions to them. At least I wasn't reacting with an increase in depression, neuropathic pain, or any of the rest of my neurological symptoms. All of a sudden now I'm coming down again with gastro symptoms without the neurological stuff. I don't think...
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You poor thing ... I'm so sorry! And on a holiday too!
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We have an odd healthcare system. I didn't know that about Reagan's "ketchup as vegetable" program. Depressing ...
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Yikes! So many diseases (especially in the US) are related to diet, and this is what's on offer? Shouldn't nutritional counseling for a heart attack victim or a celiac patient start right there in the hospital? Wouldn't that make sense? What is up with hospital food? Does anyone have any guesses? Is it an extension of budgetary decisions? After all, good...
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ARCHIVED Help..please
lucia replied to CarolinaKip's topic in Gluten-Free Foods, Products, Shopping & Medications
Don't worry - it gets easier! I was accidentally glutened 3 times in my first 3 weeks of trying to be gluten-free. I'd start to feel better, then - bam! - stomach cramps for the next 5 days. There is a learning curve. It sounds like you have a really positive attitude, and that's great. I just have one suggestion: look out for food intolerances. Since... -
ARCHIVED Total And Complete Exhaustion
lucia replied to snow white's topic in Coping with Celiac Disease
Hi, You are not alone! I definitely recommend following up on suggestions that others have made, but the exhaustion may just be your body's response to healing. It takes a lot of energy to recover from something as debilitating as celiac/gluten intolerance. Our poor bodies have been essentially poisoned for years. Our bodies hold out on gluten the best... -
ARCHIVED All Tests Were Negative, But I Can't Eat Gluten
lucia replied to Kay DH's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
There is medical research coming out that suggests that there may be forms of gluten intolerance besides celiac. I think that this doctor Q & A (following) from the NYTimes does a pretty good job at explaining current medical thinking. The most telling line from the article, in my opinion, is this: I hope that, with time, we will understand gluten... -
ARCHIVED What And How Do You React To Foods?
lucia replied to T.H.'s topic in Food Intolerance & Leaky Gut
This is controversial, but after hearing what you've been through with doctors I just have to state my opinion: The entire world relies on American medical research to advance medical knowledge. I guarantee you that the cure for cancer, if it comes, would be impossible without the benefit of research from U.S. labs. For good or bad, funding for this research...