
chocominties
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by chocominties
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How do you manage your social life?
chocominties replied to Raquel2021's topic in Coping with Celiac Disease
I end up not having one, more or less. Ha ha. Gluten makes me violently and severely ill, which makes me fully immune to peer pressure. But it wasn’t always like that. I would be agreeable and go out to eat at places that claimed to have a gluten-free menu, or I would eat home cooked foods that seemed safe. Then I almost wound up in the hospital. ... -
Eating a lot of fat can also give you digestive woes. Chips and cheese and pizza and more chips could do it. I get loose stools when I eat lots of raw vegetables, and those certainly don't contain gluten. (I've also personally never had an issue with any of the flavored chips even if they aren't tested. I consider them a reasonable risk as shared...
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ARCHIVED how does everyone deal with severity of gluten symptoms?
chocominties replied to SandMer's topic in Coping with Celiac Disease
It is entirely possible that your apple touched residue from the pop tart and caused your symptoms. Right after I "got better" but was still figuring things out I ordered a burger and removed the bun. There was no visible residue on the burger. I still had symptoms (albeit mild ones) after. A crumb, even an invisible one, can be all it takes. That... -
ARCHIVED Smelling gluten in air or fried gluten food mood reaction?
chocominties replied to Awol cast iron stomach's topic in Coping with Celiac Disease
I'm sure it's possible to have a kind of physiological reaction from the resentment one feels about other people eating things they can't have. I know I had a terrible reaction every time I had to walk to work in the cold because my mom had stolen my car and wouldn't give it back. (Made worse those mornings where it was below 0 and she would email to tell... -
ARCHIVED Disappointed At Chipotle - What Should I Expect?
chocominties replied to Nikki2777's topic in Gluten-Free Restaurants
It's not really saying that their chips aren't gluten free. It's saying that corn isn't necessarily gluten free. Corn. Not *their* corn. Corn in general. That's really just the reality of farming and grains. And of cooking, where you're not going to be producing and testing large batches of something like on a production line at a big food company... -
ARCHIVED horrible pain before bm
chocominties replied to ironictruth's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I've had that before, but it's usually part and parcel with a "colitis flare" (scare quotes because I haven't had a real colitis flare of that nature in the last five years that wasn't gluten-related). Honestly, going to the bathroom several times within minutes of eating was plenty bad, but it would feel like my stomach was being twisted in the middle... -
Let me tell you a funny story. I had been gluten-free for years when I developed terrible, painful heartburn. Nothing seemed to work to make it go away. I tried pills and dietary changes, but my esophagus kept burning. Once or twice the acid even went up into my nose. A few months ago I began to notice that my heartburn went away on the weekends...
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ARCHIVED What is y'all's reaction time when you eat gluten?
chocominties replied to Zachm's topic in Coping with Celiac Disease
I would say that for me it can be 24-48 hours before I have a reaction, and its proportionate to the exposure. (More exposure is a faster, more violent reaction.) There needs to be time for the food to digest. But you could also get diarrhea from eating too much of something that doesn't sit well (too fatty, too sugary, too much of something, etc... -
ARCHIVED Luna bars
chocominties replied to Babylemonade's topic in Gluten-Free Foods, Products, Shopping & Medications
I haven't had a reaction to them. I'm extremely sensitive to gluten but have no issues with gluten-free oats. -
ARCHIVED Glutened by ocean spray cran raspberry.
chocominties replied to Kurasz's topic in Gluten-Free Foods, Products, Shopping & Medications
You know what absolutely kills me? Fresh fruit and veg. I tried eating more fruits and veggies, but the result was diarrhea every couple of days. I eventually had to cut back because I was tired of feeling terrible. My point is just that you can think you're being "good" and "healthy" but your body doesn't always think so. I used to eat... -
ARCHIVED How long before you know you were glutened?
chocominties replied to gem1030's topic in Coping with Celiac Disease
It's usually between 1 and 2 days (more than 24 hours but less than 48) in my case. I haven't knowingly ingested any gluten-containing product since late 2009, but I can usually tell I've gotten some CC from a restaurant if I start spotting a day or two later. I take birth control for another medical condition, and when I get a little trace of gluten it... -
Personally, I just don't like the Udi's frozen pizzas. Every time I've bought them, they end up burned on the edges and raw in the middle. I was never able to find the magic combination of temperature and cooking time, so I gave up. But they've never given me a reaction. (Gluten makes my intestines bleed, so you can bet that I would never touch a...
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ARCHIVED The Horrifying Way That Scientists Want To Treat Celiac Disease
chocominties replied to Irma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Many years ago when I was first diagnosed with UC, I read about people drinking worm eggs. It was a treatment you could get in Europe, but not in the US. And I have to admit that I was pretty jealous. It really seemed to bring relief to people, and meanwhile I was trying everything available to me and having no luck. -
ARCHIVED Oh Happy Day, gluten-free Honey Nut Cheerios!
chocominties replied to maximoo's topic in Gluten-Free Foods, Products, Shopping & Medications
I've been working my way through a box of regular Cheerios (my favorite) and I've had some vague symptoms that could be CC or could be "I'm eating more greens and grains than before." (I told you they were vague.) They're symptoms I get from CC for sure, but more of "someone touched a tortilla before touching my chicken, but there were no crumbs" level... -
ARCHIVED Steak And Shake?
chocominties replied to waitingdorothea's topic in Gluten-Free Restaurants
I ate there once recently. It was my first time going there since cutting out gluten. By the way, this is going to be TMI. I had chili cheese fries and a chocolate shake. A few hours later I had to run to the bathroom, and the fries came out looking like fries. It was the weirdest damn thing. You see that with vegetables, but usually not with... -
ARCHIVED Lean Cuisine
chocominties replied to gardengirl77's topic in Gluten-Free Foods, Products, Shopping & Medications
I think it's important to remember that these are frozen items, so they might not get rotated out of the freezer case as quickly as a shelf item would. That said, I've tried a few and they're decent. The ranchero beef was pretty good, and so was the barbecue chicken with cheesy potatoes. The sauce on that one was a little sweet, but it was fine and... -
ARCHIVED gluten-free Special K Cereal
chocominties replied to kareng's topic in Gluten-Free Foods, Products, Shopping & Medications
I saw these accidentally on Amazon, but have yet to find them in a store. I'm still eagerly awaiting the gluten free Cheerios. Someone mentioned gluten free Raisin Bran, which would be great. It sounds silly, but I miss Frosted Mini Wheats and I always wonder if there isn't a way to make a non-wheat version of that. For now I accept Cinnamon Chex as... -
ARCHIVED Go Picnic, Anyone Try Them Yet?
chocominties replied to BethM55's topic in Gluten-Free Foods, Products, Shopping & Medications
The pros, I suppose, of the Go Picnic meals is that they're good in a pinch. If you're in an unfamiliar town for a rest stop or, god forbid, an airport, they present an option that isn't Lays or a Snickers. I get tired of chips and candy pretty quickly. The cons is that they aren't a lot of food for the price, some of them aren't much better than eating... -
ARCHIVED Waffles: Van's Vs Eggo
chocominties replied to plumbago's topic in Gluten-Free Foods, Products, Shopping & Medications
I tried the cinnamon flavored Eggo waffles, and found that they had a very strong brown rice flavor. I think I prefer the Van's. I always liked their blueberry waffles, but I wish they put more in a box. -
I had to see a nutritionist after a blood test revealed low ferritin. She gave me a list of what I should strive for as far as carbs, protein, calories, etc., suggested a particular multivitamin, and told me to avoid aluminum (found in baking soda, I guess). I don't know that it was terribly useful. I was using MyFitnessPal to track my food, and found...
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ARCHIVED Would This Bother You?
chocominties replied to Kimbalou's topic in Coping with Celiac Disease
By now I'm pretty used to people walking by my desk and saying, "Oh wow, did you try those cookies? They're amaaaaaazing!" If we're having a food day I always make sure to bring my lunch, and then consider myself lucky if there's a bag of Tostitos and a cheese or veggie tray. Folks at work (some of them) do know about my food issues, so they're pretty... -
You can just be vague. "No thanks--I have health issues and can't have alcohol." It's hard to argue with it. Most people, if not fall-down drunk, will be very understanding. I've also used medication as an excuse, even though I haven't been on any meds with an alcohol interaction in a while. It's a good lie (if it's a lie) because no one will call you...
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ARCHIVED Handling School Snacks
chocominties replied to kcraft08's topic in Parents, Friends and Loved Ones of Celiacs
Twizzlers are one of those weird things that you would never guess are made with wheat. And they're one of the reasons why we should never, ever assume that something is gluten-free. (Fortunately for me, I hate Twizzlers with the passion of a thousand fiery suns. But the rest of my family LOVES them.) Just because processed gluten free foods are... -
ARCHIVED How Do You Get And Keep A Job?
chocominties replied to Seeking2012's topic in Coping with Celiac Disease
This is just my personal experience: My glutening symptoms are all gastro in nature, but I get something similar when I eat something carb-heavy without eating protein. I basically feel like someone slipped me something, and I get in bed and go right to sleep for several hours. Sometimes four or five. But because I'm a single, adult woman, I have... -
ARCHIVED Fluctuating Weight After Getting Glutened
chocominties replied to RubyRose's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
"Normal" is kind of hard to define. Inflammation can contribute to weight gain and water retention, inflammation in your guts can alter digestion (and food might sit in your body longer than normal), and then there's bloating, gas, mucus production--lots of fun stuff that could make you temporarily gain weight. If you have celiac, getting glutened would...