Jump to content

GlutenFreeManna

Advanced Members
 View Profile  See their activity

  • Posts

    2,755

  • Joined

  • Last visited

  • Days Won

    40

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by GlutenFreeManna

  1. GlutenFreeManna
    When I did my elimination diet I cut out all grains, all sugars, all yeast, all processed food, all legumes, all fruit (except for berries) and the top 8 allergens. I ate mainly organic free-range chicken, bison, lamb and beef plus any vegetables and sweet potatoes for my source of carbs. Most people do this for only a week or two and then add new things...
  2. GlutenFreeManna
    Mine didn't last for more than two days (we ate it all the second day, lol) but I put it in a ziploc bag and just left in on the counter.
  3. GlutenFreeManna
    I think it's pretty normal to be obsessed in the beginning. You've made a huge lifestyle change. And it's not like you can just "forget" you have celiac. You need to eat everyday and you need to plan your food out if you ar eout of th ehouse a lot or traveling. Eventually it might be that you just don't "worry" about it so much and get into a grove of...
  4. GlutenFreeManna
    Soy makes me fatigued and brain foggy in a similar way that gluten does but it doesn't give me any stomach issues or other neurological issues that I get with gluten so that is how I tell the difference.
  5. GlutenFreeManna
    I don't know what protein in milk I'm reacting to, but I had severe reactions to yogurt, plain milk, butter, mozzarella cheese and goat's cheese. That's interesting about the latex, even before I had the severe reactions to milk I would break out in a red rash on my hands when I used latex gloves or in the hospital if they used something with latex on my...
  6. GlutenFreeManna
    Funny you should ask that, I can smell milk strongly only when I'm around a lot of children or when I walk by the cheese section. I just figured the kids were drinking milk a lot and that's why I smelled it. I've only had the dangerous allergy since Feb this year and I still crave cheese like crazy. It's so strange to crave somethign that could kill me...
  7. GlutenFreeManna
    I'm not an expert at explaining tests but those results do appear to be negative. However, your dd can still be gluten intolerant without being celiac. Your next step is to either get your GI dr to do an endoscopy with 8-11 biopsies OR test the gluten-free diet and see if her symptoms go away. If her symptoms go away when gluten-free then you have the...
  8. GlutenFreeManna
    Sounds like you figured it out. If you do figure out a safe brand of tortilla chips you may also want to keep a bag for yourself and not share with the gluten-eating husband. It could be cc from the factory or it could be cc from your husband eating a sandwhich and then reaching in the bag for some chips. Just thought I would mention that in case you are...
  9. GlutenFreeManna

    ARCHIVED Doctors In Tx?

    GlutenFreeManna replied to jswog's topic in Doctors

    Hi, I'm not anywhere near TX, but I wanted to suggest if you don't get any answers here, seek out your local gluten-free support group and e-mail them. They usually have liasions with drs that know about celiac disease.
  10. GlutenFreeManna
    I think most people eliminate lactose because they still have some symptoms when they go gluten-free. If it doesn't bother you (and you have no mystery symptoms you can't pin down) then no need to cut it out. Enjoy just being gluten-free!
  11. GlutenFreeManna
    If you are still on gluten then get to another dr to get retested, ASAP. Your tests that were negative may be positive now. On a full gluten diet I too had periods of time where I felt better than others but my health got worse (new symptoms/problems developed) with each passing year.
  12. GlutenFreeManna
    I use EnerG Tapioca and EnerG potato starch without problems. I also do NOT tolerate BRM products.
  13. GlutenFreeManna
    Yeah, it's much cheaper to go with naturally gluten-free foods. I have pasta and bread only ocaisionally--they are only for when I don't feel like cooking or am in a hurry. Most of my meals focus around cheaper staples such as rice, beans, potatoes and corn products instead. Meat, vegetables and fruit are the same price they have always been. The more...
  14. GlutenFreeManna
    I see. Thank you for making it clearer. I have never considered the last group to be super sensitive celiacs, but rather to have a different condition (i.e. refractory celiac). So when you suggested super sensitives look for other causes that is when I was confused because in my mind super sensitives improve once they figure out what is bothering them...
  15. GlutenFreeManna
    I've never had any problems with nightshades. If you don't have symptoms from it don't worry about it. Not all celiacs have leaky gut problems.
  16. GlutenFreeManna
    That makes perfect sense. I guess I did not take that to be what he was saying since his response came after weluvgators who had said this: "I know that for our family, figuring out those
  17. GlutenFreeManna
    We talk a lot in this section about unusual things that glutened us. One may get the impression that we are living every single day still sick and in misery and afraid to touch anything or eat anything. I just wanted to share that for me, personally, when I'm as strict as I need to be I don't get sick with my glutening symptoms. I have not gotten glutened...
  18. GlutenFreeManna
    I hope that is what he means. Thanks.
  19. GlutenFreeManna
    I'm a little bit shocked at this suggestion coming from admin of this board. Are you really saying that those of us that have found we only heal when eating LESS than the "reccomended" 20 PPM gluten should abandon the super-strict gluten-free diet approach that WORKS for us and go on dangerous side-effect producing drugs for refractory sprue? Or am I misunderstanding...
  20. GlutenFreeManna
    I had bannanas and peanut butter.
  21. GlutenFreeManna
    Well hubby gave me his cold, so we've been living mostly on chicken and rice noodle soup. Today I'm FINALLY feeling better so tonight I made a hash with turkey kielbasa, potaoes, bell pepper and onions.
  22. GlutenFreeManna
    You probably already did this but just in case, I wanted to respond. I was the one that let my bread rise for an hour. gluten-free breads are not the same as gluten breads where you can just let them rise a little longer and no harm done. gluten-free breads often will collapse once you pull them out of the oven if they rose too high during the rise time...
  23. GlutenFreeManna
    With those positive tests and a bad reaction to trying to reintroduce gluten, I would consider myself diagnosed with celiac if I were you. I have both an intolerance to gluten and an allergy to wheat. The wheat allergy was not revealed by the skin prick test, it was revealed by IgE allergy blood tests. My skin prick test was negative, however after leaving...
  24. GlutenFreeManna
    So what are you eating? Did you make your house gluten-free or at least change out the things most likely to cause cross contamination? (toaster, collander, scracted non-stick cookware, etc) Do you have pets or kids or a significant other that still eats gluten?
  25. GlutenFreeManna
    Yes wheat is one of the grains with gliaden as a protein. Just so you know, food intolerance testing is not very accurate. The best test for a food intolerance is your own body's reactions when removing that food for a set time (usually a month or more) and then trying a little to see how your react. The tests for celiac are much more accurate (especially...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.