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Marz

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Marz

  1. Marz
    Does melted cheese on rice cakes count? Good idea to have it for breakfast, I tried this today for lunch with ham, would make a good savoury breakfast too.
  2. Marz
    Oh, oh, this is my favourite hot cereal! My grandfather always ate hot grits for breakfast, so I guess it's a tradition I'm carrying on now. Over here it's just "maize", but coarsly ground so it sounds the same as grits. You can try sprinkling some cinnamon on that, mix it up with lots of milk and a good helping of sugar - can't be good for you, but...
  3. Marz
    Not sure if this has been posted on this forum before, but this quite informed blogger believes gluten intolerance can be caused by the immune system, outside of the antibody mechanism. It's based on the NK immune cells reacting to gluten directly. Blog link Open Original Shared Link. Scientific article on NK cells triggering autoimmunity Open Original...
  4. Marz
    Make sure she orders the full celiac blood test panel - IgA and IgG anti-gliadin, IgA TTG, Anti-EMA, and a total IgA count to check for IgA deficiency. Each of these are very specific, and one may be negative while the other is highly positive, all depends what your immune system is targeting. She should not test for IgE - that's an allergy (what my doctor...
  5. Marz
    Oh hey, did you get a endoscopy done with multiple small bowel biopsies? Didn't see you mention that in your test results, but maybe you did that earlier. Blood tests can be negative, with total atrophy. On the other hand, you can have negative tests, "normal" biopsies like I have, and still see significant improvement gluten-free. But if you're not...
  6. Marz
    Hi Jenny, Hope you find out what's wrong :/ Keep in mind that symptoms from a gluten- binge can happen several days after eating it, or only after several days of eating gluten consistently. The classic "gluten challenge" involves eating wheat 3 times a day for a week or two to see what effect it has on you. Eat a single-ingredient item, like cream...
  7. Marz
    Welcome I thought I'd never be able to do the diet, but after feeling so much better, it was natural to just keep at it! Huge motivation to keep gluten-free when you're feeling so great! I hope that's your experience as well. Sorry to hear about your family - my family was mostly supportive, if a bit confused. I'd suggest you stay away from family...
  8. Marz
    Fantastic, great news Thanks for letting us know how it went!
  9. Marz
    Merry Christmas everyone! Also my first Christmas gluten free. A good friend invited me over for supper during the week - I made a big green salad for myself ("to share"), and just took the bits and pieces she was serving that I knew was definitely gluten free. Same for family Christmas at my mom's - large portion of my own salad, and pieces of...
  10. Marz
    Hoping everyone enjoyed their Christmas, holidays and New Year, and managed to get through unscathed! All the best for the New Year My mom in law went to England over December, and came back with gifts for all of us. She bought a very nice knight on a horse figurine for my hubby (He dislikes horses in general, I love em), and some delicious looking...
  11. Marz
    Aw man, that's awful I feel like crying for you - what a bad experience It sucks always being so careful, and then getting glutened by the carelessness of others... I've had a similar mistake where waiter assured me their Indian Naan bread was wheat free. Turned out later it wasn't gluten free Nausea and D the rest of the night ruined the...
  12. Marz
    Hi there, I'd second the suggestion to order something "naturally" gluten free. But then do stress the fact that you can't eat wheat, flour (some people don't realise white flour is wheat :/), croutons etc. I usually also say no sauces/spices on my steak, no salad dressing on the salad. I'd rather have it plain than have them add some wheaty sauce...
  13. Marz
    I was ordering some take-aways at a new place that had opened up. First day open and they were very busy. The owner who was taking orders said "Wow, that must be hard..." very sympathetically when I explained why I needed wheat-free fish. That was the first time someone actually sympathised with me, instead of staring/smiling/laughing or just no comment...
  14. Marz
    Wow, congrats Raven!! Taking up studying after several years of not studying is hard enough, having to deal with celiac disease and disability on top of that must have been almost impossible. Well done for tackling the impossible, you are an inspiration!
  15. Marz
    Woah, positive blood test and he still eats gluten?? What I'd give for positive tests >.> Perhaps buy/borrow a book on celiac disease, like "Dangerous grains", to try explain the the effects of not following a gluten-free diet when you have celiac disease. The blood tests are very specific, if it's positive it's highly unlikely it's a false positive...
  16. Marz

    ARCHIVED New Symptom!

    Marz replied to K8ling's topic in Coping with Celiac Disease

    Heya, I don't think I got full on ulcers, but I did have problems with biting my cheeks, and having the sore stay around for several days. Nowadays I have a sore spot for an hour and then I'm all better
  17. Marz
    Agree with Peter - the "contains wheat" sounds strange for sorbitol, when it should normally be "From wheat"? My 2 cents - I'm in South Africa, so our glucose/sorbitol might be from a different source, but Nestle chocolate gives me a sore stomach and other brands of chocolate do not. Nestle doesn't have anything listed that I would have considered unsafe...
  18. Marz
    I'm at around 6 months now, and really feeling great! I'm making most of my food from scratch, with a few processed items that I know are safe. Once a month or so I try some new processed supposedly "naturally gluten-free" item, usually it back-fires on me and I chuck it out. But with feeling so much better, I can spot the problem immediately and...
  19. Marz
    I've heard that smoking can mask celiacs disease, and quiting smoking has been a trigger for some to develop symptoms. Perhaps smoking was hiding trace ingestion of gluten, and it's now rearing its head? Doesn't explain anything if you've been strictly gluten-free though. If it was me, I'd go back to basic food stuff and see if that helps symptoms. ...
  20. Marz
    Hooo boy, that's quite a tricky situation, my sympathies With my gluten challenge, which was done after a month gluten-free, I didn't notice that bad stomach problems. What was worse was the anxiety, panic attacks, itching (I starting getting DH after going gluten-free), brain fog, depression, irritability. You definitely should prepare for mood swings...
  21. Marz
    Aaah, I feel your pain I only ever suffered from c after going gluten free! Strange but true I've also thought sometimes C is worse than D, because it's not just one or two episodes on the loo, it affects you for several days! I found that Magnesium supplements (like for sportsmen) helped a lot, I have one that also includes Vit B - needed for...
  22. Marz
    So sorry for you, KaelinG. I'd second all the good advice above, especially mushroom and T.H - they have lots of experience tracking down the hidden gluten in everything. Really going down to single ingredient stuff *really* helps. I was still struggling until I cut out all processed food and made everything from scratch. It's difficult if you're...
  23. Marz
    I avoid soy - bad stomach pain, nausea, running to the loo for a whole day afterward - it's just no good for me Thank goodness I don't react to soy lecithin! I realised it was soy after eating gluten-free "Ensure" - it's a powder mix with milk, soy and maize/corn proteins. Upset my stomach so badly... and I know I'm fine with milk and maize. Then...
  24. Marz
    You might want to look into the Specific Carbohydrate diet - I've heard lots of people with celiac that still have problems after going gluten-free, find relief following this diet. It eliminates all grains, sugar, lactose from the diet, going on the assumption that you have a intestinal overgrowth of "bad" bacteria. You can also try gluten-free probiotics...
  25. Marz
    I'd suspect the pudding - I have had a very strong reaction to chocolate mousse pudding before. No gluten warning on it, made by a company I trust, so I assume no gluten was intentionally added. But... they do make lots of puddings containing wheat as well, so I think shared lines. They didn't warn about it, but it's fairly obvious that is the case. Of...
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