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notme

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Latest Celiac Disease News & Research:

Everything posted by notme

  1. notme
    ((((((HUGS!!!)))))))) from people who understand!! stress is also a huge cause of digestive distress - i have been reading about the brain/gut connection lately and it's interestingly terrifying lolz - but i also agree with frieze - try skipping the oats. it's frustrating! ugh - just this past weekend my husband had a bbq picnic out of state and...
  2. notme
    not at all lots of good changes! my hair stopped falling out all the time, i had dh that cleared up (my shins used to get so terrible they would bleed from me itching them in my sleep) and honestly: i was skin and bones. people thought i had anorexia or cancer. i am 5'8" and i weighed 97 lbs. so, yeah, there was a big difference when i put on 20 lbs...
  3. notme
    lolz - *i* noticed ! i was so underweight, i didn't realize my smiley cheeks had disappeared until they returned. you know, how you can kind of see your cheeks when you smile they crunch up? i was happy to see them also, husband likes my curvierness back i'm still not to my target weight, but i'm working on it.
  4. notme
    hey, man. don't pick on wine............
  5. notme
    maybe your gut is absorbing the caffeine more, now that you're gluten-free and healing.
  6. notme
    she is fun to watch !! she taught me a few tricks. the prep takes longer than the actual rolling. speaking of rolling - tell him you're never too old i'm a grandma lolz
  7. notme
    i am wary of eating sushi out b/c most soy sauce is made of wheat. i roll my own at home (helps that daughter was a sushi chef ) and i use bragg's amino sub for soy sauce.
  8. notme
    i am still avoiding iodine. and if i eat fish or shellfish, my scalp will break out (i'm assuming because of the ioding) the same places every time. takes about a week to clear. keep a food journal. it's tedious, but the best way to figure out what's causing your discomfort. good luck!
  9. notme
    i feel where he is coming from! imagine food hurting i still am a little bit anxious - which kills my appetite - when faced with eating. and i am 6 years into the diet. so, i have a xanax script for bad days. the best appetite stimulant is still illegal in my state not that i would suggest breaking the law notme! lolz his problem with dairy...
  10. notme
    too many of us are treated this way, unfortunately ^^^^^ and many of us have been in the same (no quality of life! always sick! ) situation and yes, it can be life threatening if left untreated. so glad you're feeling better no thanks to the almighty doctor i have a celiac diagnosis and my g.p. (who i go to - or used to go to - for my check ups...
  11. notme
    my first trip to the grocery store i had a meltdown and didn't buy anything lolz i like udi's bread or rudi's is pretty good. if you have a red robin nearby, they will sell you the gluten-free burger buns (and they are yummy) good luck !
  12. notme
    i've had good luck (and people at my church compliments') with betty the box cake mix - i use melted butter instead of the oil, i add an extra egg, and a tablespoon or so of sour cream. i've doctored the chocolate cake into red velvet, same thing everybody was amazed that it was gluten-free. morna, i would love to hang out with a celiac sista but...
  13. notme
    my celiac was triggered by pregnancy. had no clue. symptoms creeped up (started with indigestion, deemed as 'colitis' or 'ibs') but eventually all the ones you mentioned above all joined the party. sounds like you are headed in the right direction. one of the points of diagnosis is the reaction to the gluten-free diet. keep digging. half the people...
  14. notme
    tom & chee! good to know they grill the sandwich on a separate pan? or do you just order soup and salad. so cool to find more places to eat out!!
  15. notme
    orange juice would tear up my stomach. is there cream in the broccoli soup? i don't do well with lactose sometimes *still* and i've been gluten-free for 6 years. oven issues: use the top rack if baking uncovered or make sure your gluten-free stuff is covered if using middle or bottom racks. i would be cautious to self diagnose unless i was able to rule...
  16. notme
    i have anywhere from 2-5 kids getting off the bus here every day and they are all gluten eaters (although i think one grandson shouldn't be, but that is another fight for another day) so i buy lunchables and keep them in their very own fridge drawer. they bounce in, wash hands, get a paper plate and a lunchable and a juice box or water. they can eat in...
  17. notme
    soap and water. learned that my first camping trip hand sanitizer is made of grain alcohol. also, if you're handling anything wheat-y, (like fixing hotdogs on buns for the kids... ) the hand sanitizer will only spread the gluten around and you'll just have really super sanitized gluten... same thing with clorox wipes. if she can get to soap and...
  18. notme
    i'll hafta try salsarita's!! indeed, it is humbling - i was a spoiled 'food snob' but i have since learned to improvise/compromise (ok i'll eat that because it beats starving lolz) (or, ok, y'all are going to eat at my ex-favorite chinese restaurants, but i'll just eat my turkey sammich in the car. no big. ) i'm from jersey originally, so, my holy...
  19. notme
    LOLZ! and don't forget the bats!! or is that just this side of the atlantic??
  20. notme
    lolz! i *always* eat my bacon cheeseburger at rr like this: OM! NOM NOM NOM! i mean, yep, right out loud!! and i am (regular people don't understand) always sooooo appreciative of eating out - good. ness. one gets sooooo tired of fingerprinting every meal. just bring me food, set it before me, i shall be eternally grateful. aras, if you were at rr...
  21. notme
    i am in roane county DO go to the red robin in turkey creek and if you go on a saturday night, you can ask for paula - she will make sure you are safe! actually, go anytime and you'll be fine. they do a good job. i eat there all the time. i even order burgers to go when i'm going to a cook-out or something that i don't want to hafta fool with packing...
  22. notme
    ibs is doctor-speak, meaning: don't have a clue what's wrong with you..... irritable BOWEL syndrome refers to the small bowel as well as the large. that NON diagnosis and lack of any effort for 25 years to pursue *why* my bowels were irritable just about killed me. was also told i had 'colitis' .... kurasz: you probably have celiac, the diagnosis...
  23. notme
    yeah, what gem said ^^^^ this 'imaginary google disease' nearly killed me, too. i'm 5'8" and i was 97 lbs before anybody even said the 'celiac' word - it must be the voldemort of the medical profession. sorry that you're having so much trouble, but truth be told, it's the last thing they want to test you for. because there are so many treatable symptoms...
  24. notme
    o, i see what you mean. one of the hardest things i had to learn was to stop licking my fingers lolz
  25. notme
    just a note: gluten cannot enter your skin even if you cut yourself, so if you're not eating/drinking/getting it into your mouth, you're good. it's a skin vs molecule thing.
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