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notme

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Everything posted by notme

  1. notme
    also: glutendude - i don't get it. shouldn't it be glutenfreedude? lolz i eat out few and far between. most of the times i've been glutened it's been eating out. this weekend i'm getting my bacon cheeseburger on at red robin i always get my 'good' waitress - lucky, i guess, paula takes good care of me and i will eat at bonefish but they have...
  2. notme
    LOLOLZ!! but, dang, that was a Good Sandwich
  3. notme
    find me gluten free has a gps feature - i use it when we are rolling down the highway if we are looking for a place to stop and eat while traveling. LOLZ i have every type/size cooler as well!! hey, cyclinglady, don't ya love this time of year - back to school LUNCHBOX CLEARANCE SALES LOLOLZ ima need a new pantry just for all my lunch coolers!...
  4. notme
    i bring a cooler and usually make up a sandwich or two, depending on how long we will be traveling. those are all good ideas. a box of chex, maybe applesauce or snack pack puddings? and cheeeeese....
  5. notme
    i was just up there (sparta/jefferson twp area) sooooo happy the rockaway mall has a red robin! yummmm! if you are in that area i know a bunch of places to eat but my kids are all grown (and live in tennessee) sorry :/ maybe ask your pediatric gi if there's a support/play group in the area? whereabouts are you?
  6. notme
    good thing y'all can't hear me because i am screaming obscenities - sllrunner, you've done everything right!!!!!!!! i am truly starting to think that nobody is really taken seriously - ibs!!! i heard that for 25 years!!! doctors are either really, really stupid or this sort of DECEPTION is indeed encouraged by them!!! GRRRRRR!!!! i'm so sorry you...
  7. notme
    the whole celiac/doctor issue is as frustrating as it is common, unfortunately my gp, who knows full well that i have celiac, tried to give me this new 'miracle drug' for ibs-d when i told him i was still having indigestion/inflammation for seemingly no reason. "it's expensive, but i have a coupon for the first month" O BOY LUCKY ME! i told him, ok,...
  8. notme
    'cracker' barrel - you *are* new to this !! lolz - nothing with cracker in the name is good for us lolz - what i do when i can't get around going somewhere that there is absolutely nothing i can eat: eat before i go, order bottled water (or a glass of wine ) and go chat. nobody even blinks anymore (except the waitress sometimes haha) my first family...
  9. notme
    one of the kids on my grandson's ball team last year had celiac (grandson does not) so i got to be the keeper of the snack cooler - when the parents would volunteer to bring snacks, i would tell them: fine, but we need to keep this cooler gluten free (dye free, etc, whatever is your situation) and they did their best to comply. i always brought a ton of...
  10. notme
    many of us know exactly how you feel. for twenty five years i was treated for many of the symptoms, as were you, but never presented the idea that all these things were related (and simply treated by the removal of the evil gluten) but, now, you have a new normal - do you think you are done evolving? you mustn't treat your SURVIVAL time (hey, you did it...
  11. notme
    yes, no, yes, yes, yes, yes - just be careful (you are not asking if you can cook gluten-free pasta with regular pasta, correct? just breathing the steam won't make you sick. if you make something with regular flour and it gets in the air, it is possible to breathe it in and ingest it. but making sandwiches is ok (just use separate cutting board than your...
  12. notme
    if i eat blueberries (not only do they not like me, but sometimes ya just gotta have a gluten-free blueberry scone!) they will make my poop green. <i hope my seven y.o. grandsons don't see me talking about poop, lolz
  13. notme
    lolz sorry! i do wonder how many charges people pay without question!! not to mention, next time i go, i'm getting them to write down how many different labs/doctors/etc will be sending me a bill. last time i got, like, 6 bills for one procedure. i swear some of them just jump on the billing bandwagon....
  14. notme
    i always figured it was attributed to vitamin/mineral malabsorbtion. if you've gone undiagnosed that long, you might be in the same boat. lolz, when i went to the emergency room, years and years ago, they told me my panic attack/vertigo/anxiety were caused by allergies. sent me to a specialist who told me the thing in my ears which allow fluid to flow...
  15. notme
    after nearly 6 years gluten free, i still have some balance/anxiety/neuro issues. they're the last to leave the symptom party, i'm afraid. i attribute this to the years and years i went undiagnosed and untreated (25 years~! ) i don't have much faith in the medical field's intelligence or in their ethics. funny story: my obgyn bill had a charge on...
  16. notme
    because they make more $$ treating symptoms every time i see the new 'miracle' pills for 'ibs-c' and 'ibs-d' it just makes me crazy. ibs is just a symptom.......... as are all these other things that can be reversed just by changing the diet. but shhhh let's not talk about it, keep the patient ill and miserable, and keep that $$ rolling in. and to...
  17. notme
    try food journal/elimination diet. i have just recently had to cut out eggs (yay what a difference!!) but it took the food journal to figure it out. i was blaming, like, twenty other foods! it's tricky mixing food allergies/intolerances with celiac. a food journal will help you pinpoint the culprit. don't panic
  18. notme
    eggs are not my friend. unless they're in something baked (ikr ???) i can't digest ANYTHING if i've eaten an egg. somebody told me duck eggs might be ok, but i don't know any ducks <i quack myself up ) i was busy giving up multiple other foods, when the innocent looking (and perfect protein, as i am underweight, so always trying to pack on the protein...
  19. notme
    try skipping the dairy for awhile. if your villi are damaged, the ends of them is what makes the enzyme to digest dairy. so, give them a little time to heal, then you can add it back. i think i stayed off dairy for about 6 months. i still have a little trouble with it, but i went undiagnosed for 25 years, so there was probably lots of damage good luck...
  20. notme
    here is some helpful reading for you good luck and welcome to the club you never wanted to join
  21. notme
    ok, sorry it took so long to get back! my one friend said that he has dr rimma sherman in west orange. i think she is a holistic md but if that doesn't work, she might can point you in the right direction. lolz, from the tone of my friend's answer, i can surmise that he hasn't had such a wonderful time with g.i. docs up there, either!! makes ya wonder...
  22. notme
    i have since moved to east tennessee, but i have friends up there who are celiac - whereabouts are you? i can probably recommend a few restaurants if you're in north jersey
  23. notme
    ps - completely missed that you also have hashi's - and two docs told you it's unrelated??!! wow. just, wow. makes ya wonder if they just want to make $$$$$$ treating the many symptoms of celiac...........
  24. notme
    yes, false negatives are common. my blood test came back neg, but i was already gluten free (at the advice of my doctor....) so antibodies aren't present when we are not consuming gluten. there are other reasons your test could be negative. i know that the science kids on here are going to want the test parameters as well as the results. i went for years...
  25. notme
    well. *iiiiiiiiiii* want a pity party!! after every day eating (what i thought) the incredible, edible egg for breakfast (the perfect protein source) i'm finding out by accident that i need to eliminate it!!! grrr!!! i had my suspicions, but i skipped it for a few days and have had unarguable results. so. mad. evidently, having it baked into...
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