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notme

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Everything posted by notme

  1. notme
    good for you, sweetie. i know, it's sad, but the right one will take proper care of you. i say PROPER because this lifestyle is (sorry) Detail Oriented. if anything ever was, this is. honestly, when i read this thread, i want to say to your ex-fellow: i'm so sorry that my DISEASE is an INCONVENIENCE to you. that's my standard statement to self centered...
  2. notme
    soy. dammit lolz, i'll just eat those wraps during 'hormone week' when it doesn't matter what i eat (because, chocolate)
  3. notme
    obviously, jane fonda is making you sick hahaha j/k! gem's story and mine are very parallel, so, welcome to the skinny girl's club lolz - i am 52, been gluten-free for 5 years (hey, my annibirthary of finally getting diagnosed is coming up soon!) still struggling to keep weight on. (haha yeah, i hate the scale. surely i must weigh more than that...
  4. notme
    i've eaten them and i'm fine. they also have the chex gluten free granola (which i love to sprinkle on greek yogurt) i guess my body is just picky (REALLY?!! big surprise. HUGE...... ) because the bob's red mill didn't agree with me. NOT because of gluten, just because........ blue. or whatever, idk. or maybe i'm healed up more now - wish i had...
  5. notme
    if you have a brand of hot tea that you like <and it likes you back! ), you can make your own iced tea (or "sweet tea" as it is known as down here, lolz) just brew a pot of tea and mix it with simple syrup (3/4 c. sugar, 1 c. water, heat it until sugar is dissolved) i like to put lemon in mine sometimes
  6. notme

    ARCHIVED I Need Help

    notme replied to moka's topic in Coping with Celiac Disease

    hey, keven, my son was diagnosed type 1 'betes' when he was 19 and away at school - out of the blue, seemingly, because nobody else in our family ever had diabetes. what we didn't know, until i was diagnosed with celiac, was that it's the same gene that makes both of these things possible he is 29 now, but it has been a rocky road for him, i'm not gonna...
  7. notme
    spare grass, lololz
  8. notme
    last night i made stuffed Giant Zucchini - honestly, idk why, but our garden produces ABUNDANTLY ! we plant less and less plants and we end up getting killed with veggies. i stuffed it with fresh sausage that i jazzed up with some garlic, onions, oregano & mint. mixed with romano cheese & mozzarella and topped with more (i pre-cooked the giant...
  9. notme
    mine is generic: alprazolam. i've got a pretty healthy fear of addiction, so, only use it under duress. there were tons of other meds that my docs have thrown at me pre-celiac diagnosis - they all knocked me out. even the one they gave me for increasing my appetite: well, you can't eat if you're sleeping at the table, lolz. it's been trial &...
  10. notme
    being as your grandmother has celiac, and it is a genetic disease, certainly you could have celiac. but you could also have something else..... you should go and see a doctor. they can test you for celiac and also other things which may be your problem. can't remember b.c. pills ever making my digestion any better? but everyone is different. really...
  11. notme
    i have a script for xanax. i don't take a whole lot of it and only a little at a time (like i break the tablet into 6 pieces and eat 1 every few hours - i originally got it for traveling and the dosage is 1/2 tablet who needs a plane lolz - GI doc said to use it to help with D during stress) when i'm stressing. the worse part is realizing i'm stressing...
  12. notme
    i started out cooking 2 meals when i was first dx'd but soon found that i was wasting my time - there are plenty of things that can be made for meals that are completely and naturally gluten free. (mamaw - i did the same thing you did, just didn't tell them, lolz!) most of the time the only thing you can reallly not fake is the bread. (as in, i make my...
  13. notme
    there is an app called 'find me gluten free' - lots of options and i see a whole foods and a trader joes just plug in nashville or mt juliet and you should be fine
  14. notme
    where NOT to eat: jimmy buffet margaritaville & wild horse saloon - last time we were in nashville, we ate at both places on the same day, so, one or both were the culprit..... they both have gluten-free options/menu, but they were both so busy, i was really foolish to not think i would have gotten cc'd. i think next time i'm going to try the rodrizio...
  15. notme
    i had a good one, too, and i hung on to it (didn't use it, just didn't want to give it away..... denial, lolz ) for, oh, 2 years then finally got rid of it i had watched it pouf flour all over the inside of it while it mixed the bread. i'm sure there was flour dust that was inside the thing that you couldn't clean, but could potentially pouf back out...
  16. notme
    well, i finally got to get my burger!! hahaha i don't get out much, but we were on the way home and stopped at the red robin in knoxville tn. we ordered at the bar, to go. indeed, the chick brought me the ipad - IT WAS FILTHY - (i have a pretty high eew threshold lolz and if *i* think it was dirty,, it was gross) i really wanted that burger, though, so...
  17. notme
    lolz newsflash: WOMAN PASSES OUT FROM HOLDING BREATH IN BAKERY that would be me........... reality is, if you live in The World, you stand a chance of getting cc'd from just about anywhere. think about it, do people wash their hands *after* they eat their meal/sandwich? nope. but they sure do open doors and turn on lights, etc.
  18. notme
    if you are breathing flour dust from baking that can be in the air, it's a thing. because you breathe it into your mouth and then swallow it (ingesting it) and then a reaction can be a reality. the bread aisle at the wal-mart = not so much. because they aren't actually baking it or mixing it, you can just smell the aroma. so, dust = maybe a possibility...
  19. notme
    the sad reality is, that is exactly what you would need to do at this point to be tested. the same thing happened to me (so, my blood test came back negative because i'd been off gluten, therefore no antibodies to detect) hopefully they will develop a better test soon. you could get an endoscopy, but, same thing: you would need to go back on gluten...
  20. notme

    ARCHIVED Winston Salem Nc

    notme replied to notme's topic in Gluten-Free Restaurants

    and, in the end, went to bonefish again hahaha - getting out of the hospital late and having to check in to the hotel (then i wanted to have a beer, mercy in heaven!) and the bonefish was not too far and stayed open till 11. getting there around 9:30 it it not crowded and lolz making friends with the wait staff. i had the chef talked into making me some...
  21. notme
    bonefish. it'a a little pricey, but i figure i save money by packing my own food for other meals. some of them have chefs who will fix something special that you want (i wanted something off the 'special of the day' menu, so he/she tweaked it to be gluten-free) i've been lucky enough to find a bonefish in most cities i've traveled to. except tuscaloosa...
  22. notme

    ARCHIVED Winston Salem Nc

    notme replied to notme's topic in Gluten-Free Restaurants

    thanx, mamaw - yes, he is in a lot of pain but the medical care/team/nurses are extraordinary. he made it through graft surgery today and it went well. he is my father-in-law and he is 82 so i appreciate the blessings. my neice is actually a ccu nurse (not in nc) and she is helping us to understand what he is going through (and when to panic/not to panic...
  23. notme

    ARCHIVED Winston Salem Nc

    notme posted a topic in Gluten-Free Restaurants

    i am having to travel to winston salem, nc as i have a relative in the burn unit there and he will be there for several more weeks. i found a nice hotel that suits our needs (we were there this past weekend) but have to go back. anyplace good from anybody local? i want to try 'loop's' and we ate at bonefish last visit. thank God for bonefish. i can usually...
  24. notme
    yes, that sounds like gluten withdrawal. mine lasted about 2 weeks - feels like the flu. have you had any other tests, besides thyroid? dark blood in the stool sounds like something different to worry about :/
  25. notme
    many of us have delayed reaction to being glutened - mine is 24 (starts with a headache) to 48 or so hours after ingestion. then all the lovely symptoms return and it takes me 14 days for my body to go back to 'normal' - keeping a food journal will help you figure out where you have consumed the poison gluten. like you, i was cutting out safe food just...
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