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Latest Celiac Disease News & Research:
Everything posted by Chiana
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ARCHIVED Let's Do Sprinklez - Barley Grass Ingredient
Chiana replied to CeliacMom2008's topic in Gluten-Free Foods, Products, Shopping & Medications
I have *no idea* why they would want to or think to use barley grass powder. Weirdos. -
ARCHIVED Betty Crocker gluten-free Cookie Mix?
Chiana replied to Lori2's topic in Coping with Celiac Disease
I've had the cookies a couple of times without problems, but I'm still trying to ascertain my level of sensitivity. -
ARCHIVED Thank You!
Chiana replied to unknown's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I would keep the appointment for the endoscopy, just in case, but it's good that you are getting to the bottom of this! -
ARCHIVED My Child Craves Cheese
Chiana replied to cows0915's topic in Parents, Friends and Loved Ones of Celiacs
The best sources of calcium are actually green vegetables and bone-in fish, like sardines. (While containing less calcium overall, they are MUCH more efficiently used by your body because of the complimentary nutrients they contain.) I would actually just think that he's a young kid and that's what young kids do. I wanted to live off of macaroni and cheese... -
Cetaphil? Damn it. >_<
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I think this article pretty well reflects my sentiments on this topic: Open Original Shared Link Lymphoma is a terrible, terrible cancer.
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ARCHIVED Does Celiac "define" Who I Am?
Chiana replied to CarolinaKip's topic in Coping with Celiac Disease
The thing is, 50 years ago people didn't eat out like they do now...this is a new thing. My mother has stories of a time when 'eating out' was a hot dog (Chicago-style) at a stand downtown, perhaps once a month. I would say that food 'defines' the general population more than it does us. You know, I don't eat at restaurants like I used to, and I miss it... -
ARCHIVED Ok, Not To Be A Total Skeptic...
Chiana replied to HS7474's topic in Coping with Celiac Disease
Well, the thing to remember here is that it is your immune system hunting down the gluten. Your immune system's job is to be able to find single bacteria or single viruses and be able to respond and take them out. I can't even convey how small and insignificant viruses are, and how few it takes to successfully infect a person with an illness. Your body... -
ARCHIVED Here's A Weird One... Sunburn
Chiana replied to DianeMu's topic in Coping with Celiac Disease
Run out to your doctor's office and have one of the nurses give you a b12 shot. It's b12 deficiency. I was completely incapable of tanning for years and years. I would go out for an hour or so and burn like a lobster, then go straight back to pale after the burn peeled off. Then, about 4 years ago, I was diagnosed with pernicious anemia and started getting... -
ARCHIVED Celebrate Celiac Awareness Month at Maggiano's in Schaumburg - ChicagoNow (blog)
Chiana replied to Scott Adams's topic in Publications & Publicity
Wow. I was going out to see family in Rolling Meadows the day after that. If I left a day early I could actually go to it. -
ARCHIVED Gluten Free...just Because
Chiana replied to NorthernElf's topic in Coping with Celiac Disease
It's so hard being polite in society. I would have had the hardest time not saying, "Well, she's an idiot and is going to die of cancer." That obviously wouldn't win me any fans. ;D I just try to remind myself that most people are uncomfortable with people who do their own thing. A lot of people spend so much time and effort just doing things to 'fit... -
ARCHIVED Yellowtail Savignon Blanc Has Gluten?
Chiana replied to MJ-S's topic in Gluten-Free Foods, Products, Shopping & Medications
While wine is naturally gluten-free, some of the refining additives may contain gluten. (Or who knows what for that matter.) My gent pointed out that isinglass is used in clarifying wine, and it's derived from the bladders of fish (sturgeons.) Other additives are derived from eggs, etc. They don't have to list their ingredients, and additives vary, so... -
ARCHIVED Gluten Free...just Because
Chiana replied to NorthernElf's topic in Coping with Celiac Disease
I think your friend is confusing 'gluten-free' or 'gluten-lite' with 'carb-lite'. :/ I'm mortified by the rash of so-called 'gluten-free' restaurant options. -
ARCHIVED I Might Be An Idiot, But I Am Desperate...
Chiana replied to Dee777's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
It costs a little more, but try picking up some pedialyte, or make this: Open Original Shared Link Gatorade really isn't for long-term diarrhea, and can sometimes contribute to the problem. Have you tried a lot of yogurt/probiotics, and what color is your stool? (Oh, what a terrible question. ) -
ARCHIVED Is This Intolerance?
Chiana replied to hoopshype's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I second those statements! Though, in addition, did they check to see if it was an H. Pylori infection causing the ulcers? Also, have you had your b-12 levels checked? -
Movie Theatre Popcorn?
Chiana replied to anna34's topic in Parents, Friends and Loved Ones of Celiacs
I used to work for National Amusements theaters. Their stuff is fine on the gluten, but I wouldn't eat the buttery topping if you have a soy problem...leave it plain. -
ARCHIVED Chicken Poop Lip Junk
Chiana replied to Roda's topic in Gluten-Free Foods, Products, Shopping & Medications
Just don't get any of it in/near your nose. (I use chapstick for a chapped nose sometimes.) Zinc in your respiratory system can damage your sense of smell. -
ARCHIVED New Symptom; Doctor Won't Test For Celiac
Chiana replied to Nancy19's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Your situation sounds *exactly* like mine. Try to start eating again...it really helps. Let us know what your doctor says. I hope you get feeling better soon. -
ARCHIVED New Symptom; Doctor Won't Test For Celiac
Chiana replied to Nancy19's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
That actually sounds exactly like something I had 4 years ago, but it wasn't Celiac. It was salmonella. After 9 days of diarrhea I got into a clinic and got some hardcore antibiotics, which cleared it up. I had diarrhea for 11 days total. I was told that it was so severe because I 1. took anti-diarrheal medications, and 2. stopped eating, thinking it... -
ARCHIVED Parents Picket Girl With Peanut Allergy!
Chiana replied to Lisa16's topic in Introduce Yourself / Share Stuff
Yeah. I try to remind people - it wasn't that 50 years ago no one had peanut allergies. It's that 50 years ago, these children would die. -
ARCHIVED 4 Year Old With Aneamia
Chiana replied to beebs's topic in Parents, Friends and Loved Ones of Celiacs
I have Pernicious Anemia...if that is the cause of his problem, his symptoms are so severe that a simple blood test for b12 will show his counts at rock bottom, and he either already is, or will start to feel weird sensations in his hands, and have urinary incontinence. You don't have to have the auto-immune version of Pernicious anemia to get anemia from... -
ARCHIVED Parents Picket Girl With Peanut Allergy!
Chiana replied to Lisa16's topic in Introduce Yourself / Share Stuff
They are parents now, but it is very apparent that *their* parents never taught them concern or compassion for others - they are just being selfish. -
ARCHIVED 4 Year Old With Aneamia
Chiana replied to beebs's topic in Parents, Friends and Loved Ones of Celiacs
If it is anemia that you are afraid of, have you tried calling your general practitioner and asking if you can get in to see him within the next couple of days? Most will gladly do so for suspected anemia. Another option, and the fastest for verifying your fears is to go to the ER. They can get test results in a few hours. (Sadly, I had this recent personal... -
ARCHIVED Deboles Pasta
Chiana replied to GFreeMO's topic in Gluten-Free Foods, Products, Shopping & Medications
I sent Deboles a message and let them know that I'll think twice about their products when I'm at the grocery store. -
ARCHIVED Your One Best Money Saving Idea
Chiana replied to aeraen's topic in Coping with Celiac Disease
Saving money on the pill-side: If you don't have problems with dairy, most probiotics can be replaced by good old-fashioned yogurt...they have the same cultures. You can also get vitamin supplements containing the same vitamin concentrations at the local pharmacy for cheaper, so you shouldn't need any pills/treatment from your doctor unless you have refractory...