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Latest Celiac Disease News & Research:
Everything posted by Chiana
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ARCHIVED Generally Much Better But New Symptoms Appearing
Chiana replied to alesusy's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
It means that you think you're gluten-free, but you're not. You're gluten-light. Look for sources of contamination you might be missing. I tend to get hit with barley because labelling laws ignore it. Check BBQ sauces, cereals, and chocolates for malt. Along that line, my fiance picked up two containers of dry roasted peanuts from the same manufacturer... -
I'm not a stomach celiac. My big issues were psychiatric, cognitive, and neurological. I will say a couple of things. 1. A positive on *anything* on the test is a positive test. It doesn't matter if it's by a narrow margin or it's only one of the markers. Positive is positive. Current medical guidelines support treating even so-called 'silent' Celiacs...
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ARCHIVED I've Decided I Don't Want This...
Chiana replied to sophienina13's topic in Coping with Celiac Disease
Redbridge is a great gluten-free beer. I once heard a professional beer critic say that it was the only 'good' beer Anheuser-Busch has ever made. lol Take this as an opportunity to get everyone eating better things. My gent eats the same things as me, and he has gotten much healthier since I went gluten-free. Carbs and pizza and beer are tasty, but they... -
ARCHIVED How Much "cheating" Is Allowed ?
Chiana replied to Tamber's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Imagine for a minute that you have the flu. There are millions of little viruses in your body, all smaller than anything you can imagine. Your immune system systematically finds and wipes them out. It can locate a single virus or organism in your body and irradicate it. Now, think about this by logical extension: you are turning the most powerful part... -
It might be time to head to a dermatologist. It could even be a third type of problem -- skin stuff is very difficult to tell apart.
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ARCHIVED Possible Acid Reflux That Won't Go Away
Chiana replied to MIgrainePosterChild's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I'd cut out all of the dairy products. That's what really gives me reflux. If you can't go cold turkey, you could switch to all almond-based products. Also: green vegetables are your friend. Try eating a cup of green vegetables at lunch and dinner for awhile. I go with Tums for acute reflux, but you may want to ask your regular doctor for a daily pill...- 14 replies
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- acid reflux
- burning chest
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ARCHIVED Anyone Get Gluten Type Reactions From Coffee?
Chiana replied to gluten-is-kryptonite's topic in Coping with Celiac Disease
Coffee is very acidic and high in caffeine, which can be hard on your stomach -- especially an empty stomach. Both me and the non-celiac gent get a little stomach upset with coffee. (I am not a stomach celiac.) -
ARCHIVED Anyone Here Have Diabetes Insipidis?
Chiana replied to gluten-is-kryptonite's topic in Coping with Celiac Disease
This is actually a more complicated issue than you might think at first glance. I've had problems with drinking lots of fluids and urinating every 20 minutes for several years now. I've had all the crazy work-ups. I've been scoped and poked and prodded. There are a dozen possible causes of the issues you've been having, and I started to compile a list... -
ARCHIVED Strangest - But Positive - Effects Of The gluten-free Diet?
Chiana replied to ButterflyChaser's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I don't get cold sores like I used to anymore. I was getting them every other month or so, and now I get maybe one a year. -
ARCHIVED Changing My Life Style And I Need Advice
Chiana replied to TightLoli's topic in Coping with Celiac Disease
I've heard of people who have quit their jobs waitressing because being that close to the food was making them ill, and they weren't even physically touching it. I can't imagine that handling a wheat-based product for hours every day is a good idea. I even switched to gluten-free hand lotion. The quantities that can make us sick are so small they are not... -
ARCHIVED Solaray Astaxanthin Is Not Gluten Free
Chiana replied to WhoKnew's topic in Gluten-Free Foods, Products, Shopping & Medications
They know that a certain percentage of people will take it anyway, if they don't know any better, since it takes so long to get ahold of pharm. companies for info. I was on hold several times for multiple hours over a medication and finally said "Well, I'll just go with their more expensive competitor. Screw them." I would imagine that they also don... -
ARCHIVED Been Gluten Free For 2 Weeks Now Sudden Reaction.
Chiana replied to Cobalt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you're on a gluten-free diet, especially a trial diet, you should never eat something if you are "not sure what ingredients were in it". Start with the chutney. -
ARCHIVED Anxiety, Ocd Started After Re-Introducing Gluten?
Chiana replied to JohanJohan's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Worrying about schizophrenia (which is extremely unlikely) is just going to make things worse. Relax, and realize that this stuff takes a lot of time. You can check for hidden sources of gluten, like in your raw chicken (sad but true..some companies inject their raw chicken with mystery broth for 'added juicyness' or whatever they want to claim to sell... -
It's hormonal fluctuations. My hormones went *crazy* for a couple months after going on the diet. It will even itself out soon.
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ARCHIVED As A Celiac, Do You Notice Shorter Or Longer Recovery From Stomach Flu?
Chiana replied to laurielikesthis's topic in Coping with Celiac Disease
The one thing I've learned about the flu is that it is not predictable in any way. It doesn't seem to correlate with anything I can think of. I know 'healthy' people that get the flu and feel like junk for a month, and I've taken care of / lived with them and not gotten the flu, even pre-diagnosis. I've also had flus that knocked me out for a month when... -
ARCHIVED Does Feeding Baby Gluten Early On Cut Celiac Risk? - Webmd
Chiana replied to Scott Adams's topic in Publications & Publicity
I don't know about you guys, but does anyone actually follow or pay attention to feeding guidelines? This sounds like they could be completely unrelated, unless they called the parents of all of those children to see if they followed the guidelines, which the article does not suggest. -
Hemochromatosis + Fructose-Free, Gluten-Free Diet = Fun Times
Chiana commented on Chaff's blog entry in Thesmophoria
Could your doctor draw smaller amounts of blood for you? I had much better luck gaining weight when I started eating beef two meals a day. I gained three pounds a week, when I had trouble maintaining my weight before that. Also, where are all the vegetables? Eating white rice is going to make your blood sugar spike -- you don't have fiber to slow the... -
ARCHIVED I Want My Pre Gluten-Free Life Back
Chiana replied to KristenS's topic in Coping with Celiac Disease
For several months after I started the diet, certain things got much, much worse, mostly in the hormonal department. But about 6 months in, I started to feel better...so much better that I realized that even what I thought of as 'normal' before or 'healthy' before paled in comparison. If you had anemia, you were not 'fine' before, and you need to remember... -
ARCHIVED For Those Who Are Self-Diagnosed...
Chiana replied to gatita's topic in Coping with Celiac Disease
Your family doctor can order nutrient tests on his own, and it will usually be covered by insurance, even if there is no clear diagnosis. Some doctors do it routinely as part of the physical. Though, I think my doc said it best: "The result of any nutritional deficiency test is not going to change what we do, since supplementation is not nearly as good... -
ARCHIVED Fatigue And Muscle Weakness
Chiana replied to DucksnPucks's topic in Coping with Celiac Disease
You're getting there! It took me probably 4-5 months for the excessive sleeping to stop. I was sleeping excessively before (12-14 hours a night), so for me it felt like it would never end. I can now set my watch to my BMs. I have found I am more regular than non-celiacs, and have fewer digestive issues than non-celiacs, as long as I avoid the gluten... -
Pleurisy is a possibility. It happens to be associated with auto-immune diseases. Open Original Shared Link Also, there is a type of hernia that can present that way. (It does not need surgical intervention, just an experienced doctor with the guts to push it back in place for you.)
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ARCHIVED Anybody Else Have Endometriosis And/or Interstitial Cystitis As Well?
Chiana replied to livelifelarge24's topic in Related Issues & Disorders
I used to have IC symptoms. I wouldn't really recommend the IC diet...it didn't help me at all. It operates on the concept that acidic is bad and basic is better, which is silly. Whenever I have symptoms and do a UTI test strip, my urine is invariably alkaline. I just try to lay off the caffeine and booze and drink lots of water. In the long term,... -
ARCHIVED "But You Can Eat Whole Wheat, Right?"
Chiana replied to earthtoneNJ's topic in Coping with Celiac Disease
It's possible that he has had other bypass patients report that cheeses, etc. did not give them issues. I know someone who still drinks milk post-bypass, so I think problems/severity is variable. If the cheese is properly aged (which almost no cheese is these days) then it should contain no lactose. But that takes years. It's just like dry wine - given... -
ARCHIVED Repercussions Of Cheating! :(
Chiana replied to a84c72's topic in Coping with Celiac Disease
The Italian study (someone can throw a link up if they like, though it's been posted sooo many times here) stated a 20% chance of celiac-related cancer as cause of death in non-compliant celiacs. As in, if you are not compliant with your diet, you have a 1 in 5 chance of *dying* of an aggressive, not-very-treatable cancer. *Hugs Colleen!* I went... -
Gluten They Are Missing In Drugs!
Chiana commented on GlutenFreeInSC's blog entry in GlutenFreeInSC's Blog
It also needs to be stated that broad spectrum antibiotics are going to be killing off your good digestive flora along with the bad bacteria. That's going to make you feel like crap, regardless of whether or not it contains gluten.- 3 comments