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domesticactivist

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by domesticactivist

  1. domesticactivist
    I agree that the OP sounds like a great guy, and I really do hope that he just got unlucky with her and will be able to easily move on now that he's seen this side of her. However, most people I have observed have a more difficult time than that, no matter how good they are as people. If it is more difficult than just throwing this fish back for the OP, it...
  2. domesticactivist
    No matter how old you are or how much rent you are paying, they are your parents and will feel like it's their house to call the shots in. I agree with the others who say make your own kitchen in your room or move out. It's just not safe for you if they will not respect your need to live in a gluten-free environment. Good luck!
  3. domesticactivist
    It's normal to miss things, and yes, the Burger King experience is now out of the question. Sometimes I feel awful because people at school are eating Sun Chips and Snickers bars in front of me. It's hard to be faced with temptation. When we first realized my 10 year old had celiac, he definitely went through a lot of drama about having to give things...
  4. domesticactivist
    People tell you who they are. No amount of cleaning her cupboards or helping her shop is going to change this. The way she handles this conflict is the way she will handle other conflicts. The way she treats her own health is the way she will treat her children's health... should she ever recover enough to be able to have them. She may decide to change, but...
  5. domesticactivist
    Dried beans may have been cross contaminated. I would call the supplier and ask about processing and packaging circumstances. It could also be trouble dealing with beans in general.
  6. domesticactivist
    You might benefit from the GAPS diet which is aimed at restoring gut health. It starts off in stages - homemade bone broths and thoroughly cooked veggies, and homemade probiotic foods are first, then you slowly add more foods. I've posted a lot about it and you can message me or search on my other posts if you want more info. It's also completely grain-free...
  7. domesticactivist
    Um, by gluten-free foods I meant packaged crap that's marked "gluten-free", and even things like baking mixes.
  8. domesticactivist
    I agree with the others who say to check into possible complications from the endoscopy, and to avoid gluten-free foods and dairy for now. I'm not celiac, but when our family went off gluten I suddenly developed horrible constipation and all my neuro stuff got worse. It was related to gluten-free products and flours. I also discovered that corn wasn't...
  9. domesticactivist
    Haha, that's funny, Mack the Knife. Were you friends with all of them before the diagnosis? Sometimes I think groups of friends end up self-selecting for their similarities. On top of that, friends educate each other and then kind of spread the knowledge of certain conditions. It's surprising how many of my friends are homeschoolers, in similar financial...
  10. domesticactivist
    I totally understand the impulse to want to carry out experiments. I'm glad you and he have your proof now and you can get back to feeling better!
  11. domesticactivist
    I am not celiac, so I thought (after months of being gluten free) that it would be ok to have a piece of gluten free banana bread at a friend's house who I know used an old pan and would have cc in her kitchen (didn't let the kids have any). I definitely experienced symptoms from it. I also know that until we did the deep clean and declutter on our own...
  12. domesticactivist
    Maybe he should stay home with the kids, take care of all the chores, and wait on you until you feel better.
  13. domesticactivist
    I think the main difference is how seriously people take you. If you have an actual diagnosis, insurance may be harder to get, but once you have it, they'll cover more. If you have to deal with getting accommodations at school, work, or in other situations, an actual diagnosis will make all the difference. It's also effective in shutting down people's "a...
  14. domesticactivist
    Thanks. I got some other responses somewhere else that mentioned more. I'm already taking drops with Mg and have noticed that the Mg helps with dd's Tourette's so maybe I just need more of that. I also heard that vitamin D and B vitamin deficiencies can be related. I've been bad about taking my fermented cod liver oil but the weather is finally changing,...
  15. domesticactivist
    BTW my son (whose mainstream dr's are 99% sure has celiac, but who has not been officially diagnosed because he refuses to put himself back in pain/the hospital to find out) takes this diet more seriously that any adult I've ever met outside our family. Yesterday a friend came over to play. I told his parents to pack him a lunch since he doesn't like to...
  16. domesticactivist
    That support group sounds bad not because the people aren't celiac enough but because the person running it is an insensitive twit. If you want to have a support group where people have to show their dr's signature to get in, I think you should start one. You might be surprised to find out, though, that plenty of diagnosed celiacs don't take the diet...
  17. domesticactivist
    I'm glad you are all safe and sound, and I hope your families are, too! I wanted to add that I recently had to take 12 kids to camp in a similar set up for 2.5 days. I imagine you will be doing this trip again so I thought I'd give some input on how we handled it. They normally serve meals that are entirely based on gluten and sugar (pancakes, sausage...
  18. domesticactivist
    As I've posted on other threads, I went gluten free with the rest of my family after we realized my son has celiac disease, and in the past few months took it further and we're now doing GAPS. I've noticed many, many health benefits, both physical and neurological. However, in the past several months I have developed a terrible stutter. It happens when I...
  19. domesticactivist
    Celiac is not an allergy! It is an autoimmune disease! There are not always visible and identifiable symptoms, especially early on. I have not seen any studies about celiac disease and the diet of the non-celiac mother during pregnancy. Anecdotally, I have heard of effects on sensitive babies/toddlers breastfeeding from mothers who eat gluten. I'd do my...
  20. domesticactivist
    Corn is super hard to avoid. Since it is not a top 8 allergen it doesn't have to be labeled, and CC doesn't have to be labeled. Our strategy for avoiding it is to: 1. Use almost nothing that comes from a factory. 2. Call manufacturers and ask questions about produced things that we do need to use. We probably do touch things with corn - so much stuff...
  21. domesticactivist
    Some people do have allergies to wheat. That is different from celiac disease.
  22. domesticactivist
    I don't know about the obvious gluten reactions, I do think change is possible. There can be so many other factors involved as well. I do wonder why your dr would recommend sneaking a little gluten in for the younger siblings. I've tried rewriting the following but it keeps coming out like an attack - I don't mean it that way. I just hope you'll consider...
  23. domesticactivist
    My son wasn't diagnosed until he turned 10. However I thought I'd share that while he was exclusively breastfed, he always had unidentified problems as a baby. He would scream and cry every evening for HOURS. He was a normally happy baby (could be put down and smile and look around), but he was definitely in pain toward the end of the day. He also had eczema...
  24. domesticactivist
    <3 That really sucks.
  25. domesticactivist
    We went to camp for a camp fire activity a couple weekends ago and they let us bring all of our own food. A hassle, but it gave me so much peace of mind. My dd will be at sleep away camp alone for 7 days this summer at the same camp and again, I will be sending all her food. They are going to give me the menu and activity plan so I can prepare. The councilors...
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