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ladymiss

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Everything posted by ladymiss

  1. hi foam, thanks for documenting your story for all of us. It was an interesting read, so far. sorry to hear of all your suffering! I know your story will help others in search of clues! best wishes for your health and recovery!
  2. "But I did it--for 11 months and now, happily, I can have some cheese without any trouble. That first pizza? HEAVEN." = HOPE!!!!!!!
  3. awesome advice here. i'm going to re-read for a few new ideas myself! (junior mints!!! hooray!!) wanted to note for original post-er that you'll need to use your own condiments and keep them free from others dipping in and spreading on bread or anything else with gluten. also, have your own gluten free, dedicated toaster and pots/pans. took me awhile...
  4. wow! sorry you feel crummy! hope you are better soon. thanks for sharing info about this shampoo and the good advice.
  5. thanks for posting your stories. always good to read. i had an overall good experience as my in-laws tried very hard to accommodate my needs with asking questions and buying certain things i ok'd and only cooking food for me in my pots and pans. but i realized my reluctance to talk "too much" about celiac/gluten intolerance has led to some confusion...
  6. i've been thinking a bit today about having perioral dermatitis. here's a few more things worth mentioning. if i remember correctly from what i had read from a few sources- there was uncertainty if PD was caused by food or cosmetic allergies or if by fungus or bacteria in immuno-compromised individuals (which would make me wonder if the latter would apply...
  7. i had perioral dermatitis and visited my dermatologist who prescribed the usual tetracycline and steroid cream. in the end, i only took the antibiotics for 3 days because they did a number on my stomach. i read that it is hard to get off of the steroid creams so i never used them. i visited with my naturopath who suggested grapefruit seed extract. you...
  8. thinking and over thinking. thinking..... -can i eat it? -what can i eat? here? now? at that store? at that restaurant? at his/her house? at the party? at the event? on vacation? on the road? in the car? as a snack? -planning ahead....hmmmm what/how/when will i be able to eat? -if i eat it, will i... be sick? from what? and for how...
  9. i know i shouldn't be, but i'm surprised that people don't read. it seems that those who are determined to believe that having gluten intolerance or celiac is a fad or some form of hypochondria , they have not and/or will not educate themselves about it. frustrating!
  10. all of this courage is inspiring! maybe someday i will be able to do what you all have done. kudos and happy cheese!
  11. i envy those who say they have been cooking some really wonderful things. i hope to be in that boat someday. i just need to devote some time to cooking & experimenting.... i have yet to find out if i can tolerate dairy again.... so going with the fantasy of no ill effects- i must say that i would pay at least $100 to eat a slice of veggie pizza...
  12. hi all, can someone tell me if it is possible to not be celiac and still have damaged villi and vitamin deficiencies from gluten intolerance? any references available to share too? thanks!
  13. hi, i developed a peanut allergy just prior to going gluten-free. actually the food sensitivities and allergies tipped me off that something larger was at work- celiac or gluten intolerance. a time before i had the all-out peanut allergy, i had eaten pad thai and got an incredible buzz from it (just thought it was extra spicy...which it was). but looking...
  14. hi miss bonnie, i've been wondering about you since i read a previous post. i don't want to say anything that seems to disregard how tough the day to day can be. it sounds hard. please try to hang in there! i do want to say, try to infuse your day with things that you love and enjoy and make you laugh. laughter is good medicine as they say.... give...
  15. sorry to hear about the panic attack. not fun stuff! hang in there! also- i wonder about possible new food sensitivities/allergies. i experienced this from nuts out of the blue one afternoon after a thai food lunch. it turned out to be an allergic reaction. for me these always start with an anxiety attack (the rush of histamines, as i understand it...
  16. while it's true that each dr. or naturopath is an individual with their own strengths and flaws- i have to say my naturopath has been wonderful!!! she really listens to me and studies my results. i feel like i get the attention to my specific case that MDs don't usually give. i always feel like it's been money well spent, whereas the experiences i've had...
  17. hello! im sorry to hear you are not feeling well. i hope you are able to see small gains that give you hope! gotta have hope! when i was not working and laying on the couch all day recovering, i tivo'd the entire series of 'ugly betty'. it was light, entertaining and made me laugh. maybe you can find something similar to bring a smile to the time...
  18. You may have a delayed gluten reaction or an additional food sensitivity. Could take some sleuthing to figure out what is bothering you. Don't forget, the high fructose corn syrup in the Vernor's could make one feel sick.
  19. aww geez, sorry to hear you are feeling funky! please let us know you're ok when you are up to it. i got the shakes last time i had an allergic reaction.
  20. yes, please share or just send some over....
  21. hi- i am so sorry you are feeling so bad! hang in there! there is a website i've found to be very interesting re: celiac and gluten intolerance. it is put together by a doctor group in CA. they specialize in celiac/NCGS. not sure if this is what you are looking for....but perhaps they would offer another viewpoint and some immediate help. there is...
  22. hang in there! though i didn't suffer from fever, after a 10 hour night of sleep i would wake up feeling exhausted and like i had just been hit by a truck- this was the case for the first two weeks of gluten free. i had some freaky, middle of the night heart palpations. the severe fatigue started to gradually go away at week two and about 6 weeks into...
  23. hang in there, J! sounds like you've been having a very rough couple of days! i read your other post on benedryl. i've been dealing with food sensitivities, before and after going gluten free. i still don't have it figured out. seems like it's just going to take time and healing. just wanted to send positive wishes! feel better soon.
  24. newbie- i can understand your logic from where you are standing today. it is incredibly shocking to hear you have to make a dramatic change without any dramatic symptoms. and like all of us, we have the right to choose what we do with our bodies. i think the encouraging comments here are great and food for thought (sorry for the pun). i just...
  25. hi, wanted to share my experience. please be careful dying your hair again. you could just be allergic to the harsh hair dye chemicals-not necessarily a gluten response. two months before i had my all out health crisis, which lead me to discover my intolerance to gluten, i had an allergic reaction to hair dye. it was severe- 'D', a panic attack feeling...
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