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AVR1962

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by AVR1962

  1. AVR1962
    Sorry! I always have activated charcoal tabs at the house just in case. They definately are not the fix but they do help get past the systoms the first week. Take care of yourself!
  2. AVR1962
    Goodness, like I have mentioned here before, I saw myself in a wheelchair. I had so many issues buit one by one I have been able to find an answer. I thought this went too long by what the doc said but reading here I see some of you have waited even longer. Aly1, I do hope you get better and I wish for the day you can leave that wheelchair for good. Thank...
  3. AVR1962
    What the podiatrist told me is that celiac effects everything about your body.....joints, ligaments, everything and that is how he made the connection.
  4. AVR1962
    This is where things all messed up for me right now. I was on a thyroid med for over 6 months, a iodized med docs were using to try and shrink a growth on the thyroid despite the fact that my thyroid tests were fine. Meds made me sick going on them and then I adjusted. It was actually in this time that the planter's fasciitis started. I then was taken off...
  5. AVR1962
    I did check this out and compared to what I am currently taking. The only thing my Nerve Support supplement lacks is the B5. I am finding that the drandruff shampoo and the T-gel conditioner is working.
  6. AVR1962
    You are going to go thru alot of emotional ups and downs and there may be times where you wonder if the diet is worth it. The cravings may call your name and you may cry BUT once you get past the withdrawls and you actually see for yourself how much better you feel, I can guarantee you that you will never go back and you will not miss these foods anymore...
  7. AVR1962
    It is very hard to understand celiac and I am wondering if maybe your system might need some more time to heal, I didn't see how long you have been gluten-free. It is a slow hard process in the beginning and it might be that some of what you are eating still might be bothering your system even if it is not gluten. Keeping a food diary might be helpful. ...
  8. AVR1962
    I think with many of the cases where you hear of people going off gluten and making life-long improvements with days, these are people with an intolerance to gluten but not celiac. Looking back at my own situation I can see where it would have been very hard to label of earliest systems as a child as celiac but it was there and I had this and that coming...
  9. AVR1962
    Finally got in to see the doc about my foot and he said it was planter's fasciitis. He is going thru my history, said usually this is brought on from a change in weight, exercise routine or shoes but made no connection. So I asked him if it could be connected to celiac, BINGO! Doc told me that there is more awareness being paid to celiac than ever before...
  10. AVR1962
    Thanks, I appreciate your reply. Today I was looking at various shampoos and picked up some T-gel conditioner but will see if I can find the Peppermint soap.
  11. AVR1962
    Found this and thought I would share: Open Original Shared Link This is another classic example of blaming an infectious agent for the
  12. AVR1962
    Thanks for that info. I did some reading and found out that seborrheic dermatitis is yeast on the scalp that can be helped out by using an anti-fugal cream. I may try that too.
  13. AVR1962
    I do understand, I am 49, and it sounds like you and I have been thru alot of the same. I do hope the dietician can help you with your diet.
  14. AVR1962
    Thank you. I will look this up and see if the systems match what I am dealing with. I have never heard of B100. Vits have helped me with everything, could be exactly what I need.
  15. AVR1962
    Head and Shoulders.....I think I was using a gluten-free shampoo before. I had been using the original Pantene for a long time without any problems. When I started having issues was when I tried a different hairspray. My scalp felt burnt and itchy mostly on the top and I guess that's why I thought it was the hairspray. I tossed the hairspray and at the same...
  16. AVR1962
    Just wanted to share something I stumbled on for anyone dealing with sensative scalp issues. I don't have dandruff but my scalp had been burning from (what I thought was) an incident with hairspray that didn't go away once I tossed the can. I had small sores on my scalp and around my neck where my hair touches my skin. So I tried a medicated shampoo for dandruff...
  17. AVR1962
    Have you had your vit levels checked? Because of the tingling I wonder if it could be linked to your B12. I was having funny crawling sensations on my legs, nose and cheeks. Kind of felt like I had a hair that was not there or like some bug was under my skin but I would look in the mirror and nothing was there. I told my doc about it and he looked at me like...
  18. AVR1962
    If you are planning on going thru with the blood test for celiac you need to be on gluten for at least 2 months so keep that in mind. However, testing for dceliac is not real accurate. You may have celiac and your test could come back negative, a year later you may test again and then get a positive reading so keep that all in mind. There is a connection...
  19. AVR1962
    I do believe you have found the right place. Hypothyroidism and fibromyalgia are all too familiar terms for me. If you are still on glutens I would suggest that you have the blood test for celiac and see if they can do a scope on you. I swear docs continue to throw tests at you left and right without a diagnosis. If you have gone off, give it time, it...
  20. AVR1962
    The emotions and the changes your body is making is normal. You wouldn't think the body would be effected by gluten to the point you'd go thru a detox stage but it is. Hang in there!! About the indigestion....my gut was really tore up so I was taking Nexium twice a day plus shots of Pepto in between. I stayed away from all acidic foods, caffiene, soda...
  21. AVR1962
    Tell me about it! I realize you just finished testing. Have you tried going off glutens yet? It might be worth trying, especially if you are at a stuck poiint and docs can't figure out what is going on. If I would have waited on docs I am afraid where I would be right now. One of my first signs that something was definately wrong was my vision but all...
  22. AVR1962
    Goodness, family situations are hard enough and then your inlaws start this stuff? That's enough fuel to add to the fire, unfortunate. Reality may come knocking on her door one day. If she would stop for a moment and relaize that maybe she isn't right about evreything, and actually took the time to read about wheat, maybe then she would understand the destruction...
  23. AVR1962
    Marilyn, that is great! Pets are wonderful, they are comforting and give a reason to keep moving at times. Great tidbit on the exercise. Not only is it good for the body but it is actually good for the brain as well. Exercise helps make proper circuits in the brain.
  24. AVR1962
    YYYYYAAAAAYYYYY!!!!!!!!!! What a good spirit too! Good for you!!
  25. AVR1962
    BE VERY VERY CAREFUL! I amn not familiar with the program you are using however I did an herbal liver detox by Elemis just over a year ago. At first I was doing really well but then it went real bad. I ended up in ER with my heart going nuts (48 years old), my blood pressure was high. Doc said I reacted to the herbs, that they were too strong and that the...
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