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tiredofdoctors

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by tiredofdoctors

  1. tiredofdoctors
    I have Neurological Celiac, but the lab which drew my blood did not have the capability for testing for HLA-DQ1!!!!!!! I know I'm negative for 2 and 8 -- but don't know if they did any sub-types of that! I have been referred to a geneticist, and he is actually doing mitochondrial testing. When I return for my follow-up, I do have planned to asked him about...
  2. tiredofdoctors
    I had the big C for two years . . . finally my GI put me on Miralax. I know is gluten-free, because he's a Celiac specialist. I recommend it HIGHLY!!!!!!!
  3. tiredofdoctors
    My daughter was just tested for Celiac because of other things, but my son has not been. My son, however, is WAY on the bandwagon with me with regard to gluten-free cooking, and he has said for a very long time how TERRIBLE he feels after "carbs" (meaning pasta!). Are your kids open to receiving information with regard to Celiac? If not, leave the...
  4. tiredofdoctors
    Yea Colin!!!!! Those are some good fine motor skills he has there! It's not unusual for babies not to talk at age 18 months . . . both of mine were one time, HUGE, and neither talked until 24 months -- then NEVER STOPPED! Eighteen months is a little delayed for walking, but not that much -- and that's for a TERM baby. In school, we were taught -- ugh...
  5. tiredofdoctors
    I have to say that I find it ironic that Karen, Nikki and my crayon name is "Tin Man's Johnson Silver." 'Nuff said.
  6. tiredofdoctors
    Hi Linda -- welcome. Please know that you've reached the right place. The people on this forum are the most kind, nurturing people -- and VERY knowledgeable. Over a year and 1/2 ago, they literally saved me from . . . . well, myself. I was in a turmoil about going gluten-free, that my doctors had said one thing, but the Mayo Clinic and Johns Hopkins...
  7. tiredofdoctors
    Not to worry, Karen. Have spoken with my husband and he feels that the "Goddess of Altoids" cannot go without! We will mail them to you as soon as Terry is out of the dog house. In my humble opinion, however, he should stay there -- out in the cold -- for a little while longer. Again, just my opinion. And Carla -- OF COURSE I would be on an Altoids...
  8. tiredofdoctors
    Patti -- I'm so sorry. I'll be sending good thoughts, prayers, good vibes --- all his way. There's power in numbers!
  9. tiredofdoctors
    Funny you would mention lazy eye, and also Ehler's Danlos Type 3. I had a "lazy eye" as a teen . . . kind of an unusual time to develop one, I'd say -- usually they appear earlier. Also, I was just diagnosed with ED 3 by the geneticist. I now have developed (yet ANOTHER manifestation of this stupid disease, I guess, although I am SO diligent about remaining...
  10. tiredofdoctors
    I agree with the "take a deep breath" advice! Interestingly, I had intermittent enlargement of my spleen, and my doctors would always say, "I have NO idea why it would be like this." Oddly, I mentioned this last month when I went to the allergist/immunologist, and he said, "It was probably when you were producing large amount of antibodies. It stands to...
  11. tiredofdoctors
    My husband's elf name is Booty Sugar Butt (must say, definitely one of his better "assets" ) My rejected crayon name is Tin Man's Johnson Silver ----------does it not figure??????? Dave's ----------- Spank Me Pink Oh my . . . . . . .
  12. tiredofdoctors
    That seems to be a common thread among husbands!!!!! Can't wait til mine hears MY elf name!
  13. tiredofdoctors
    Ahhhhhh, don't "poor Terry" him . . . his doghouse days are well-deserved. Karen should just be stock-piling for when he shapes up!
  14. tiredofdoctors
    Wow -- you have certainly had your share -- Why was 1/2 of your thyroid removed? Do you have continuing autoimmune thyroid disease? According to my neurologist (one of them), autoimmune thyroid disease is NOTHING to be taken lightly. He even called the Ear, Nose & Throat surgeon who was performing my thyroidectomy to ensure that he not only took out...
  15. tiredofdoctors
    My elf name is Trixie Ho Ho Ho . . . . I hope they're referring to my jolly nature and not to some personality flaw!!!!!
  16. tiredofdoctors
    That's the best one yet!!! We had Thanksgiving at my in-laws, and my MIL -- bless her heart -- just doesn't get cross contamination. My SIL, though, does, so she called, asked me about ALL of the ingredients, and made a special dish WITHOUT the cracker crumbs first, then covered it so that I would have SOMETHING to eat. At my mother's, my cousin was getting...
  17. tiredofdoctors
    Hi Lollie! Good to hear from you . . . . hope you're doing well! Hugs, Lynne
  18. tiredofdoctors
    I use all Neutrogena products except their microdermabrasion kit -- which happens to contain the EXACT beads that they use in the dermatologist's office. It does, however, contain wheat protein. So, no way. But like Patti, I use their lipsticks, their lip smoothers and lip tints. Almost all Bare Escentuals products are gluten-free ---- except their...
  19. tiredofdoctors
    My mom has a recipe that uses flour, but she "tweaked" it with cornstarch, instead, for me . . . . I'll ask her about it. She also used the pie crust recipe in "Living Without" (but used regular gluten-free flour substitute instead of mixing all those different things) and "tweaked" it as well, because it was a little sticky . . . I'll let you know . . ...
  20. tiredofdoctors
    Hi and Welcome! It's not in your head, it's in your autoimmune system! Here's to starting to feel better! (((hugs))) Lynne
  21. tiredofdoctors
    You might want to check these out: www.bmj.com/cgi/content/full/318/7200/1710 Open Original Shared Link Open Original Shared Link Open Original Shared Link Open Original Shared Link Open Original Shared Link Open Original Shared Link --- THIS ONE WAS IN 1999, folks. They knew it back then, but the doctors who were verbal about it were...
  22. tiredofdoctors
    The medication could also be why it doesn't look as bad to your PCP or NP. I would still pursue it. Since getting this stupid disease, my thought about investigating something is: can't hurt. might help. Hope the dermatologist will help. Hugs to you, Lynne
  23. tiredofdoctors
    Dave mowed our grass on Friday, I think it was. Every year we wonder if we'll have a White Christmas. It's been quite awhile. I WANT SNOW!!!!! Lots of it -- like when I was a kid -- and we would get to go sledding . . . This is great -- when my kids were younger, it snowed, and I said that I knew of a hill that we could go to that was PERFECT --...
  24. tiredofdoctors
    You guys . . . . I don't think that I do anything more than any one of ALL of you do! You amaze me. Poor Armetta -- I talked with her yesterday, and she sounded terrible. I didn't get to talk with her today -- we were gone all day. I ACTUALLY WENT OUT OF THE HOUSE!!! And not just for a doctor's appointment (although that's what tomorrow is . . . ), but...
  25. tiredofdoctors
    That was an excellent description of Celiac disease. I have neurological celiac, as well. Caught it a little late, so I'm in a wheelchair. If I'm not, then I fall a LOT. I have really poor coordination now, occulomotor apraxia / ataxia, difficulty swallowing, autonomic dysfunction . . . . and on and on and on . . . !!! There is a type of cell called...
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