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Alwayssomething

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Alwayssomething

  1. Cooper's Hawk is a place we frequent often when we are in Orlando.
  2. Pins and needles and neuropathy can also be a sign of low B-12. Have you had your vitamin levels checked?
  3. I have been to Aruba 3 times for a least 9 days each time. The last two times I was gluten free. Although I never did all inclusive and can not comment on that, I have never had any trouble eating on the island and have never gotten sick. I do take some things with me as everything in the grocery store is written in Dutch so I can't always read ingredients...
  4. I don't know that I have a lot to offer, but wanted to address the shared household. I have successfully shared with gluten eaters for 9 or 10 years now. It is very possibly but precautions have to be taken. Have you read the newbie101 section it will give you a lot of good advice. Do you have your own separate condiments (I have bright tape on mine...
  5. Sorry, I didn't see this until today. I will share it so you have it for future functions 1 Tub of Frozen Strawberries 1 small container of cool whip (or whipping cream if you prefer to make your own) 1 cup chopped walnuts 1 Large Box Strawberry Jello Defrost Strawberries and separate juice from the berries. Make Jello with the...
  6. I have the same issue, gained about 15-20 pounds. People love to tell me that it is all the processed gluten free food, but the only processed food I eat is 2-4 pieces of gluten free bread a week. Here is my opinion of why this happens, or at least for myself. When I was consuming gluten I was so sick that I never made it through a meal before I hit...
  7. Rotisserie Chicken Ham Green Bean Casserole Deviled Eggs Potato Salad Spinach apple salad with this amazing dressing Strawberry Dessert The only thing we will have that will not be gluten free is Mac n cheese. Because we make it for the kids and we use a old recipe and I don't care if I don't have it, we just continue...
  8. It has been 4 years since I was there, but Blue Heaven was great, Satiago's Bodega is a Tapa's place, I ate successfully there, but it wasn't my thing, super busy and crowded and I learned I wasn't a Tapa fan. The best meal I had in Key West and we actually went twice was at the Southernmost Beach Café.
  9. I used mine for the first three years I was diagnosed. I used it for several reason, one it protects me legally from a company letting me go if I exceed my sick/personal time off. Some companies even have a max of unpaid time you can take, but the FMLA allows me to use that as well and not be affected. I didn't have a manager that was treating me bad...
  10. Vanicream works great, they have a Vanicream Light as well. I like the regular one best as it goes on nice and thick and isn't oily, it is what my dermatologist recommended years ago and at that time you needed the pharmacy to order it for you. I find it at Target and CVS. My DH did not fully clear until I also changed out all my body products to gluten...
  11. I have something that sounds very similar in description to yours, but mine is followed by a headache and was diagnosed years ago as an Opthamalic Migraine. Mine are not caused by gluten. But since I have had celiac my prescription in my glasses has changed every 4-6 months which is rough since glasses are not covered that often, and it isn't cheap to...
  12. I actually gained weight after going gluten free, and I eat little to no processed food. But prior to diagnosis I was underweight because I could not finish a meal, I never cleaned a plate or even consumed many ounces of my meal. Every meal had gluten and most of the time I would get sick a few bits in. Now I can actually eat and finish a meal and am...
  13. I have not been to Panama City in many years, but we were trying to return recently and I did some research. I do not have personal experience but in my trip planning notes I noted these places based on reviews on trip advisor for gluten free food. Andy's Flour Power Firefly Another Broken Egg Cafe Also First Watch is a place we have...
  14. In 2011 I started off with Weekly injections, for one month then every other week for 5 months. Retested my B12 was barely in the normal range. Dr stopped the injections to see if my body could maintain (then I would have started oral) but it didn't. I was taught how to do them monthly at home and have been doing that since. My last test my B12 number...
  15. Don't know if you are already doing this, but for me I had to stop wearing certain things to avoid the extensive pain in my legs, arms and even in my hip from neuropathy. I still can't wear some of them without getting a flare. Nothing with elastic in the arms or legs, socks were tough but I just wore the ones that were lower on the foot. This helped...
  16. It has been several years since I was there but I ate successfully at: The Pottery House Café and Grille, I believe I only had a salad here though. The Old Mill Calhouns and the Alamo We cooked in several nights due to a Rod Run being in town and traffic being insane and had one night where I got glutened at Johnny Carino's.
  17. When I had no gluten free children in the house I used a over the door shoe holder with clear pockets and each pocket had a fruit cup, bag of chips or a fruit cup and cheeze it's or cookies or something in it. The kids just grabbed and put in their lunch, sometimes it had other things like fruit leather or nuts. Worked great and was convenient.
  18. Misschell24 - I have both Hoshi and Celiac. I have not given up soy it was never suggested and I don't seem to have a problem with it. Dairy for me is iffy. I am lactose intolerant, I use lactaid milk and if I do have icecream or something with milk in it I take a Lactaid chewable tablet first, and this seems to solve all my issues. Of course going...
  19. The first time they tested me for Celiac I only came back with Micro Colitis and I was given medicine to take daily. I was actually diagnosed with Celiac through the skin tests for DH at a later time (after more suffering) I ditched the medicine for the colitis and went 100% gluten free. (I was also diagnosed with a couple other auto immune all around...
  20. Is the peanut butter from your pre gluten free days and maybe cross contaminated?
  21. A lady I work with just discovered the same thing. She too was gluten free but continued to be sick, then a year or so ago nausea was added to her symptoms and a new doctor ran genetic testing and found the same thing. She is doing very well on her new diet and has added some gluten in but very little because she still feels better without it in her diet...
  22. In case you are ever in the Orlando area the Kona Café in the Polynesian resort has WONDERFUL gluten free waffles. They also have pancakes and French toast as well, I just haven't made it past the waffles. I am sure they are sold on all the Disney properties serving breakfast, but I can go to the Polynesian without entering a park and without staying ...
  23. My feet started burning after a few years gluten free. Mainly at night, and I mean on fire! I asked my Endocrinologist about it at my next visit and knowing that I did not have Diabetes, he said it was most likely B12 deficiency. Ran tests and it was, I started injections and 3 years later I am in the normal range I no longer have this issue.
  24. We have purchased an fresh Amish turkey from one of our local meat markets for many years, before I was ever gluten free. They cost probably double the price per pound and the first year my parents thought we were nuts, until they tried it. Then they asked if we could get one for Christmas. They are fresh and raised cage free and the "old fashion way...
  25. We travel a lot and we eat out while traveling. If we are in the US I will take some snacks depending on how we are traveling, car or plane. Then I shop local for snack type foods, if we have a kitchen or kitchenette we will make breakfast in the room, but after that we are on the run so I do TONS of research. Tripadvisor is my friend. I look up places...
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