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happygirl

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Everything posted by happygirl

  1. happygirl
    Thanks for sharing that, Bev.
  2. happygirl
    What blood tests were run? There are five main tests that need to be run, and often doctors do not run the full panel, so that's why I'm asking. Has she been gene tested to see if she has one or both of the Celiac genes (which are present in about 98% of Celiacs)? I think that the positive dietary response is enough to say that she is gluten intolerant...
  3. happygirl
    Hi Trev, Welcome to the board! I am happy you have found it...it is the best resource out there for education, food/ingredients, support, recipes, and dealing with Celiac. Although it really is daunting to start with, the good thing is there are a ton of people on this board! And we all started where you are. The other good news, is that while it...
  4. happygirl
    Jaynee: Lab results vary per lab. That is why they list the reference ranges, because what is positive on one, is not on another. So, it depends on which lab was used and their methods (this applies to many other tests, not just Celiac). Hope that clears up the confusion! Laura
  5. happygirl
    Whole Foods not only carries many gluten free products (crackers, cookies, mixes, pastas), but they also carry their own line of gluten free products. It is called the "gluten free bakehouse" and is in a frozen section, near the regular bakery. All of their items are together in one place. I LOVE THEM!!!!! I could not live without their pizza crusts and...
  6. happygirl
    I'm not sure if Prometheus is blood or salivea....ask your doctor to test your child for the Celiac genes, and send it out to their genetic lab....very often, it is Prometheus. Given that a parent has dx'ed Celiac, there is a medical reason for it, and insurance should cover it. (It wouldn't be any different than taking your child at any age to the dr....
  7. happygirl
    Ken's Salad Dressing gluten free list: Open Original Shared Link For marinades: McCormick's will clearly list all gluten sources in their ingredients, so you can trust their labels. www.mccormicks.com Most ice cream is okay...like mentioned above, its the "ingredients" in the ice cream types like brownie, cookie dough, cheesecake/graham cracker...
  8. happygirl
    Very rarely is maltodextrin derived from wheat. I am not a coffee drinker, but there are many Starbucks fans on this board, so I'm sure others will chime in.
  9. happygirl
    Karen, You should call/write them and complain about this. I'm so sorry you are reacting! L
  10. happygirl
    Yes, dogs can have Celiac. In particular, Irish Setters are "known" for having it. from Iams.com: Gluten-Sensitive Enteropathy Gluten (a protein found in wheat) is responsible for wheat-sensitive enteropathy, occasionally found in Irish Setters from the United Kingdom. Gluten enteropathy of Irish Setters is a malabsorption syndrome, which responds to...
  11. happygirl
    Rene, I am so sorry to hear of the tough time you are going through. Its sad that so many of us can emphathize with you....but we most certainly can. My undx'ed Celiac started at age 22. It is so frustrating! Couple things: you might want to have your doctor repeat your full Celiac panel, to see if you still have elevated levels. This can at least...
  12. happygirl
    We have two main options when we go to people's houses: Once I learned enough about the diet, learned enough to clearly express what I needed, and was lucky enough to have friends that wanted to cook for me, we would discuss a meal, and go through it step by step. Ask the person what they want to make, ask them for their brands/ingredients (or, tell them...
  13. happygirl
    Congrats!!!!!!!! Wow, what an accomplishment! Where are you going?!
  14. happygirl
    I merged two topics together, so that they would be together and get more responses.
  15. happygirl
    Welcome to the board! Try finding Tinkyada's rice pastas. Most of them are brown rice pastas, so they are very health and nutritious. www.tinkyada.com Many grocery stores, health food stores, or places like Wegman's, Trader Joe's, Whole Foods carry them. I am the only Celiac in the house, and my husband and I both eat them....as well as our extended...
  16. happygirl
    Jeanne: I think this was a reference for people who have multiple food intolerances, that sometimes things like canola (and other oil sources) can cause problems. In terms of Celiac, it is safe. And to my knowledge, there is no link between Celiac and canola (i.e., like Celiac and lactose). I think it was just meant in terms of anecdotal evidence on the...
  17. happygirl
    Yes, they should have taken "multiple samples from multiple sites"...not just two samples. When I had an endoscopy to check for other problems, as well as persisting Celiac damage, my GI took 10 biopsies in my small intestine. Now, two biopsies is better than one, of course, but you are right---since Celiac is so patchy, it increases (but does not ensure...
  18. happygirl
    Let's see....you have already mentioned some of the possibilities Considering you have "only" been on the diet three months (and it seems like forever!), you still may very well have not healed fully. It can take months to fully recover. Do you have a good doctor? It might be worth having a routine check up, and then ask to be tested/referred...
  19. happygirl
    Its frustrating (and you know that I have "been there, done that" with food issues). I would say its worth a shot...not everyone has a prob with canola oil...never know til you try Once you start eliminating more than casein and gluten, finding a butter substitute is pretty limited besides ghee and a coconut type shortening. (I spent countless hours...
  20. happygirl
    generally, the total IgA number is important if it is low, which means that you can have trouble scoring positive on other tests, even if you actually are positive. the absence of tTG doesn't mean 100% that you don't have Celiac. Higher levels of intestinal damage are correlated with tTG, so you could be mildly damaged, and not scoring positive (yet)...
  21. happygirl
    Hey momma, Welcome to the board! Happy to have you here and hope that you find some much-needed answers. I think that it varies per family.....some are completely gluten free, others are gluten "lite," others are "normal" with some gluten-free products. I think its a trial and error for most people, to find a routine that works. In general...
  22. happygirl
    Ghee: Open Original Shared Link this is the brand that I have, and have seen it at Whole Foods, and health food stores.
  23. happygirl
    Ghee (like Carla mentioned) Some/one of the fleishman's margarines is dairy free, if I remember correctly. Spectrum makes some spreads that are dairy free as well: Open Original Shared Link Smart Balance's buttery spreads are gluten and casein free (per the company, talked to them on the phone) but their cheese products have casein. (this is who...
  24. happygirl
    Cory: You might be interested in the book listed in my signature. Dr. Green discusses pregnancy/fertility in it, among other things, and I think it is a wonderful resource. I hope that you will be able to have children! Best of luck, and keep us updated. Let us know what we can do! Laura
  25. happygirl
    stepford: Welcome to the board! I think you'll find a lot of other parents on this board that have been in very similar circumstances. Hope that you find some answers. Let us know what we can do to help! We can find a replacement to anything. Laura
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