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happygirl

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Everything posted by happygirl

  1. An allergist is generally not the right doctor to see for Celiac. However, the fact that your child is gluten free anyways....a doctor would probably recommend that your child eat gluten for a few months, then do bloodwork and biopsy to 'see' if they have Celiac. Problem is---the treatment is the same if they have a gluten allergy or gluten intolerance...
  2. Jerry: The best explanation for the gene stuff that I have found is on wikipedia: Note on DQ Sertoype Names in Relationship with Allele Names DQ sertoypes are usually a recognition of Beta chain isoform groups For example, DQ2 = alleles that start with DQB1*02 (*0201, *0202, and *0203). DQ2 is encoded by alleles that start with DQB1*02 DQ4 is...
  3. Angel, What you are describing is rather common among Celiacs who have been glutened. It is frustrating----but, you are definitely not alone. Many of us call it "brain fog"........its the only way to really describe it! I hope it passes quickly. Laura
  4. chocolate lover: she could still be gluten intolerant, just not Celiac. Same culprit...gluten.
  5. Alyssa, Welcome to the board! I am happy you have found this site, and you have obviously reached the same conclusion as many of us....this is the place to be for Celiac/gluten information, education, and support. It is overwhelming....but the good thing is that we all truly understand. We were all once in your shoes. None of us were born with...
  6. Discuss with your GI before the procedure that you want "multiple biopsies, in multiple locations" to check for Celiac damage, even if it doesn't look like damage while he is in there. Tell him regardless of what it looks like, you want the full biopsies taken, because you don't want to have to go through this again. Best of luck.
  7. Disney: You have to add your picture as your avatar for it to show up on the side. Go to "my controls," "edit avatar settings", add your avatar and hit the update button. It can take a little while for it to go through, sometimes you have to refresh to make your picture show up on the side. For your signature, "my controls," "edit signature," and...
  8. happygirl

    ARCHIVED Looking For New Doctor

    Very few doctors will diagnose you with Celiac based on enterolab's results alone. Most will only agree that it is a gluten intolerance of some sort, potentially Celiac. Is there a specific reason why you need an official diagnosis? Many people on the board have doctors who just know that their patients do well on the gluten free diet, and keep it at that...
  9. It sounds like your problem with the over night issue has to do with your sleep cycle and it being all out of whack (understandably!) and therefore creating problems, not Celiac. You mentioned that you were very sick even while on the gluten free diet....but it was the hours. You are ok when on the gluten-free diet and on a "normal" schedule....so it is...
  10. Kev, it probably took me a solid 2-3 months to feel somewhat normal...and I still had another couple months before I really felt "whole." But, the severe bone/muscle pain started lessening within the week, although mildly, I did see an improvement soon after going gluten-free. Keep in mind....you might be "only" gluten intolerant, you might be "only...
  11. It is not possible to ingest gluten from an animal that is fed gluten.
  12. Did you have the full Celiac panel run? Anti-gliadin antibodies (AGA) both IgA and IgG Anti-endomysial antibodies (EMA) - IgA Anti-tissue transglutaminase antibodies (tTG) - IgA Total IgA level What type of symptoms do you have? Was there reason to suspect Celiac? The AGA IgG could be indicative of a gluten intolerance that is not Celiac,...
  13. Kev, Bone and muscle pain were my two main problems (it made my horrible GI symptoms seem mild in comparison---wow!) I was seeing a rheumatologist and had every test in the book. Started physical therapy, even. All my tests were negative. Then, I was dx'ed with Celiac, went gluten free, and luckily, my pain started to subside. Once I was truly gluten...
  14. Lisa, I am sorry you are having a tough time. The main thing that stuck out for me is the Pamela's cookies. I don't know what it is with them....I do well with her other products, and used to do well with her cookies....but I realized that I just cannot tolerate her cookies. I honestly don't know if its gluten or not....but they bother me consistently...
  15. Anything with wheat is required by the Food Allergen Labeling Law of 2006 to be listed clearly. So if you see something with modifed food starch, but doesn't say wheat anywhere---then it is not derived from wheat. Before, they weren't required to list it, so we wouldn't know if the MFS was wheat derived or not. After that, its oats, rye, barley/malt...
  16. I love those crackers
  17. Patti, I hope that you have a wonderful gluten free (and all those other things!) birthday! Thanks for all that you do on this board. And for being my other mom xoxo, Laura
  18. Thanks for letting us know! I've eaten their personal size pies with the gluten-free crusts (only tried the apple, and LOVE it!) and have enjoyed the crusts...so now I'm going to try this year and make my own pie! Happy that someone else has tried and liked! Laura
  19. tabasco: I worked in a chain (applebee's) during college and the cross contamination issues there were much like you described! Plus, they didn't have any sort of allergy training. Its pretty scary for a Celiac/allergic person!
  20. Cara: Welcome to the board! To be honest....lists are as outdated as the day they are printed or posted, because ingredients could change at any time. The only way to know if something is gluten free is to learn to read the labels (which, it sounds like you and your husband are learning quickly!). The good news is that any "wheat" must be labeled...
  21. There are a few of us.....I am one I've lived here three times now! Welcome to the board, Greg. Will post more later.
  22. J--- You make me laugh Since I'm still trying to gain weight, how bout you donate your extra to me? I have some areas that could use a little help Good luck, girl!
  23. Deb--- I definitely prefer the Whole Foods (I have both in my area)...mainly because of their gluten free bakehouse items, which I love. I like their selection of other gluten-free foods, too. But, I do like TJ's french rolls...I cut them into thirds and use them as sandwich bread. L
  24. gdobson.... are you still around?
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