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nvsmom

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Latest Celiac Disease News & Research:

Everything posted by nvsmom

  1. nvsmom
    In Alberta: It is illegal to pretend to practice witchcraft. You may never use dice to play craps. You can’t work on your car in the street. In Calgary, Alberta it is illegal to buy and/or sell non prescription contacts at costume shops Comic books which depict any illegal acts are banned. Citizens may not publicly remove bandages. Not only do all exterior p...
  2. nvsmom
    Explaining it like a peanut allergy can work for some. How a small nut contamination can send someone to the hospital... That's down to the immunoglobulin E (IgE) reaction but with celiac disease it is an IgA or IgG (or both) reacting. Same idea, just a different part of the immune system. To be honest, I don't think my hubby completely believed me about...
  3. nvsmom
    I'm another who thinks she's had this from birth, or at least all symptoms seem to point that way. I know I had it as a young kid because I remember the stomach aches, C, and "growing pains" in my joints. My symptoms did come and go even though the overall trend has been a slow decline of my health. I had some years where I felt great, ran half marathons...
  4. nvsmom
    I did the celiac Biocard test over a year ago, but the tester looked quite different and I ended up with two lines, although the second line was extremely faint.... I've never seen the dot before. Let us know what the manufacturer says. I'm guessing it leans towards a celiac disease diagnosis (positive tTG IgA), but that is just a guess. Good luck!
  5. nvsmom
    Celiac disease is an autoimmune disease where the body attacks the villi of the small intestine due to a gluten intolerance. Non-celiac gluten intolerance, or sensitivity. (NCGI or NCGS) has all the same symptoms and inflammation as a celiac but the body doesn't attack the intestines. Celiac can be diagnosed via blood tests or endoscopic biopsy where as NCGI...
  6. nvsmom
    When kids are malnourished from celiac disease, their growth hormone (GH) may be low, and that will result in a low insulin-like growth factor (IGF-1) which is released from the liver and causes growth. You might want to check that her IGF-1 levels are okay for her age. Don't check GH as it is released in short pulses and can really vary throughout a day...
  7. nvsmom
    Welcome to the board. The full celiac blood panel is: tTG IgA and tTG IgG (tissue transglutiminase) DGP IgA and DGP IgG (deaminated gliadin peptide) EMA IgA (endomysial antibody) total serum IgA AGA IgA and AGA IgG (anti-gliadin antibodies) In order to have accurate tests you must be eating gluten in the weeks prior to testing. The first three...
  8. nvsmom
    I think the last one is the only celiac test and it (tTG IgA) was negative at 1.2. The rest are all immunoglobulin tests, of your immune functions in various parts of the body, nd they are normal too. It all looks fine to me.
  9. nvsmom
    A positive AGA IgG, along with symptoms and other autoimmune disorders makes it pretty likely that you have celiac disease, even if the doctors couldn't find the damaged villi. When all of your testing is complete, even if you get all negatives, I highly suggest that you go gluten-free. Those with NCGI should also stay gluten-free as they have all the same...
  10. nvsmom
    I hear you about doctors not catching issues. I first went to the doctor for what was probably celiac disease, when I was in early elementary school - I still remember the doctor saying that I was just one of those people who got stomach aches after they ate. As for my hypothyroidism, I first started having problems in my early 20's but unlike you, I wasn...
  11. nvsmom
    Welcome Robin. You have a lot of issues going on. I think celiac disease could be a possiblity but so could a few other problems that have common symptoms. I can give you my interpretation based on my own experiences and what I have learned (besides the fact that doctors help very little with chronic ill health ). This is what I think: Headaches...
  12. nvsmom
    I had to leave my family doctor and go to an alternative type doctor, and pay out of pocket, to get my thyroid treated better because my family doctor refused to up my dose once it hit 3 something. It was a 2 something years ago and I felt just as bad as when it was 14... I would get that second opinion. Good luck.
  13. nvsmom
    LOL I've got a mental picture of hooded bank robbers running down the street with fat, out of breath cops trying to catch them... Keystone cops... LOL
  14. nvsmom
    Wow! That's a great spread! Looks like a great party... can I come? LO
  15. nvsmom
    have they checked her for postural hypotension? I get faint when I stand up because my blood pressure plummets, and it has been like that since my teen years. It is an issue with the adrenals and not enough corticosteroids (I believe). To check it, have her lie down a few minutes and take her blood pressure, then have her stand up and take her blood...
  16. nvsmom
    I don't have that symptom either but others have reported tingling and numbness... I think when symptoms are nerve/brain related, it can take longer to heal, that and fatigue seem to be slow to go. I hope others can help. Best wishes.
  17. nvsmom
    It can take a while for the antibodies to turn off. It is not instantaneous as soon as gluten is cut out of your diet. If your body have been making tTG antibodies for a while, it may continue to do so for months yet. Some of the antibodies are in response to damage in the gut, so until the damage is gone, you might still have them... I know that seems crazy...
  18. nvsmom
    My GI pain and bloating (mostly) went away when I started the gluten-free diet but at month 3 I felt horrible. It attacked my joints, made my hair fall out, and caused extreme fatigue - it hurt to hold a book and I had to rest going up stairs. It eventually got better, but I guess I needed to get worse before I got better. I agree with ethe others that...
  19. nvsmom
    I think the doctors don't always believe us when we say we are gluten-free. I had my blood rechecked after one year and it was still slightly elevated, and now my doctor keeps rechecking it every month or two like he thinks it will suddenly drop if I am more careful. LOL I couldn't be any more gluten-free. Congrats on the negative tests.
  20. nvsmom
    If you want to be sure that you have consumed enough gluten to create high enough levels of antibodies to register a positive test, then you might want to continue your gluten challenge a few more weeks. Two weeks of heavy gluten eating might not be enough, and then if you get negative results, your doctor may not be willing to retest for celiac disease...
  21. nvsmom
    Welcome to the board. Your symptoms certainly could be celiac disease, those are fairly common symptoms. They are also still symptoms of hypothyroidism. In fact, I started thinking "thyroid" halfway through your post before I got to the fact that you do have a thyroid issue. In your case, I would look into testing both, especially since there is a link...
  22. nvsmom
    Welcome to the board. The celiac screen your doctor used is an older one but a couple of those tests are still used by most doctors. The tTG IgA shows that damage is attempting to be inflicted on the gut but yours is negative. The problem is that your doctor did not test your total serum IgA which is a control test to make sure you make enough IgA for...
  23. nvsmom
    Like Mamaw, I did not get any better on Synthroid. I had to see an "alternative" doctor to get Erfa's Thyroid (like Armour) and I finally feel better. My C did improve slightly while on Synthroid, but I was also starting the gluten-free diet at the time so I'm not sure what effect that had on it. Erfa's Thyroid straightened it out (almost) completely for...
  24. nvsmom
    Toasting the bun helps it have the right texture if you nuke it. If you bake it, it will be less cake like and more bread like too.
  25. nvsmom
    I completely agree with Lisa, not many can have a positive tTG IgA with a low serum IgA. Even though it's a low positive, it's quite a high tTG IgA for your IgA level. With symptoms, a positive tTG IgA and tTG IgG, family history, and other autoimmune disease, I would say it is pretty likely that you have celiac disease. I hope you are both feeling better...
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