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nettiebeads

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by nettiebeads

  1. nettiebeads
    I also highly recommend them. I got mine the same day we were taking my mother out for her 84th b'day. I showed the american to the waiter and told him I was thinking of the beef tips. He took it to the chef, came back with the report that the meat comes preseasoned with soy sauce and couldn't recommend it. But any of the grilled chicken or fish dishes...
  2. nettiebeads
    There are posts on the web from people who cannot tolerate Splenda. Even though it is made from sugar, the source of the sugar is the problem - methyl alcohol I believe, or commonly known as wood alcohol. Anyhow, it's hard on the liver supposedly. I would highly recommend trying going w/o and see what happens. Couldn't hurt.
  3. nettiebeads
    I agree with Rice Guy. It wouldn't hurt, and you might be surprised by the results.
  4. nettiebeads
    Good for you!!!!! We have to be so proactive to the point of others thinking that we're plain obnoxious. But that's their problem. Here's to a healthier future.
  5. nettiebeads
    Oooh, let me know! I miss my oats terribly. So filling and satisfying. Quinoa is a fair substitute, but not the same. I haven't had any problems with quinoa. Maybe yours was contaminated. And completely off of the subject, is that an african grey?
  6. nettiebeads
    Okay, there's some more clues that something isn't working right. I don't know what kind of school you are at, if it's a major medical teaching school, then they may be able to do it. Otherwise, you'll need a more sophisticated lab to do the panel. If you can get to a GI w/o a referral and jumping through hoops, I would highly recommend it. And one who...
  7. nettiebeads
    Well, if it makes you feel better, I don't think you're insane. I can't tell you exactly what your problem is, but your body is telling you something isn't working right. You may have a simple wheat allergy, a gluten intolerance, or celiac. For starters, I'd get another dr if possible, he's obviously not giving serious attention to your problems. And...
  8. nettiebeads
    The first part of your post got me going "yep, celiac" then the rest sort of confirmed it for me. That's exactly what my D was for six weeks before I went to my dr. And the fatigue (swimming upstream in a molasses river in Jan?) is so very much a part of celiac. I'd love to tell you to go on the gluten free diet now, but since you're seeing the dr. in...
  9. nettiebeads
    EWWWW!! Scary stuff. And (I'm telling my age) it's like life imitating art. Brought to mind two scifi flicks Attack of the Pod People and Soylent Green. Scary, scary, scary. And what's worse, I'm a Missourian.
  10. nettiebeads
    Well, just how long were you sick before dx and gluten-free diet? And are you 100 gluten-free? I don't mean just foods (no barley, malt, wheat, rye, spelt, tritical, barley grass, wheat sprouts....) makeup? lotions? supplements? Okay, what do you mean by not a lot of progress? If there is progress, even a little, it means you are on the right track...
  11. nettiebeads
    I googled both awhile back for my own curiosity. I loved Pamela's cookies and would always have an itchy mouth afterwords. Everything on the ingredient list I knew I was okay with except for xanthan gum. I can't remember what the source is for making that, but it does not agree with me. I use guar gum (cheaper too)
  12. nettiebeads
    You might go lactose free also. I had to at the onset of my celiac disease. The part of the villi that's damaged by the celiac disease is the same area that produces lactase. W/o lactase you can't digest lactose. After your intestines heal the lactase producing ability returns and then you will be able to tolerate milk products. I still don't drink much...
  13. nettiebeads
    Didn't anyone ever question WHY you were deficient in vitamins and minerals? That would be a big clue that something wasn't functioning right. Your body is telling you NO to gluten. Simple as that. Start the gluten-free diet now and start getting healed and healthy. Believe me, you won't miss the gluten; you'll consider it a minor trade off for being...
  14. nettiebeads
    Fantastic article!! Many thanks!
  15. nettiebeads
    I"ll have to remember that. I opted out from the stuffing so dh only had to make one style for the 13 other people at dinner. But I wanted to save room for pie anyhow. Real pie with gluten-free crusts!! I finally broke down and learned how to do that. But will have to try your version of stuffing sometime.
  16. nettiebeads
    Oh, yeah does that sound bi-polar. And his problems are compounded by celiac disease, but I think mental problems came first. He is much more than clinically depressed. Has the dr. recognized the bipolar? Please feel free to come here for venting, ranting, and support. You sure need it. Big hug and a shoulder for you to lean on. Annette
  17. nettiebeads
    I agree with RiceGuy. The lab is Enterolab by Dr. Fine. My dr. dx'd my celiac disease with diet alone. Had real bad D for six weeks - pale frothy and REALLY bad smelling. He put me on the gluten-free diet, went back 2 weeks later; the D was gone, he pronounced me having celiac disease, stay on gluten-free diet. No tests. Your body is telling you that...
  18. nettiebeads

    ARCHIVED Bone Health

    nettiebeads replied to Nadtorious's topic in Sports and Fitness

    I would definitely recommend the bone density test. You really do need to know where you are regarding your bone strength. As a woman, your best years of building bone strength are behind you (yes, I read your age) and you do need to think about the future. My mother didn't ingest enought calcium for over a decade, and now she has to look up to me (I'm...
  19. nettiebeads
    I think your lawyer is right. And all the defense would have to do is tell the jury that your husband may not have had celiac disease at the moment of the accident, but he could have developed it later on in life even if the accident hadn't happened. I know in civil court you don't need 100% agreement from the jury to win, but getting a majority probably...
  20. nettiebeads
    Well, other than store-bought gluten items are filled with preservatives, I would feel safer putting them in the freezer.
  21. nettiebeads
    Hi to all three of you! and a big welcome. I've done this for 9 yrs and yes, negative association does work when it comes to gluten containing foods- I see things (like Aunt Esthers apple dumplings at TDay yesterday) but gluten = pain, D, depression to the max, unexplained uncontrollable anger, and overwhelming fatigue. Thanks, I'll do w/o. But I didn...
  22. nettiebeads
    I was dx'd through diet challenge 9 yrs ago. I agree with Rice Guy, in that if you do the gluten-free diet, and your symptoms disappear, what else do you need? And yes, many of your other gi problems may lessen and even disappear if gluten is your problem and it is eliminated from your diet. Celiac is the great imitator of autoimmune diseases. With 2...
  23. nettiebeads
    Yep, there you have it. You gave yourself a test, although you didn't know it. It's called the diet challenge - no wheat, no problems. Gluten, problems. You could stay on gluten and get tested, or decide today to go gluten-free and feel better! Although if you could get a dr. to do a biopsy it would be interesting to know how much damage has been done...
  24. nettiebeads
    So long as the ingredients are your basic cream, sugar and egg, any brand should be okay. Or: In a small bowl, beat until light: 1 egg yolk Beat in slowly: 1 tbls sugar 1/4 cup cream 1/8 to 1/4 cup rum, brandy, or whisky a few grains salt Whip separately until stiff: 1 egg white Fold white lightly into other ingredients. Transfer mixture to glass...
  25. nettiebeads
    Maybe neuropathy related? And maybe you need a new dr? How old is your son? How long was he sick before dx'd with celiac disease? Has he been glutened lately? Need just a little more info. Could be he's not getting quite enough minerals absorbed into his system. I hope he feels better soon. Annette
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