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nettiebeads

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by nettiebeads

  1. nettiebeads
    You definitely are a survivor kid!!! And the world of celiac disease isn't all that bad. And I've always believed things happen for a reason - that last glutening you got was a real wake up (ooh, is there a pun in there-hives keeping you awake..sorry) so now you can start on your new life of becoming healthier than you've been in a long time. And yes, celiac...
  2. nettiebeads
    First, kudos for you for recognizing childhood depression. I've suffered since I was 9, was never properly treated and so it eventually developed into dysthymia- I'm on zoloft for life. So anyhow, it may be awhile for your daughter to completely get the gluten out of her system since she was such a carboholic. Is she a caffeine drinker also? Caffeine...
  3. nettiebeads
    Yeah!!!! I breastfed my daughter until she weaned herself off of me at 8 months. Being a mother, I can't help but worry if she'll develop celiac disease later in life like I did. It's nice to have something reassuring for once.
  4. nettiebeads
    I'm very thankful for this forum also. I was on my own for 9 yrs before breaking down and sought support online. Thank God I found this place!! My knowledge of celiac disease has improved considerably and so has my health. Welcome to the site, and please feel free to post any questions. None are to gross or silly! After all, it's only your health! Annette
  5. nettiebeads
    Are you gluten-free right now? Have you had gluten? How long have you had celiac disease? I think it's your body's way of protecting itself from what it considers harmful, rightly or wrongly. Mucus in stools is one of the symptoms of celiac disease.
  6. nettiebeads
    I had a cast iron stomach throughout high school. No real problems until I was 35. First an ulcer caused by misuse of NSAIDS. Then the next year I had (all at the same time) a very severe sinus infection being treated with strong antibotics, worked full time, school in a different county at night two times a week, very very disfunctional home life. The...
  7. nettiebeads
    I never did have the "official" tests - bloodwork and the like. My dr put me on the gluten-free diet - no wheat, barley, rye or oats. Two weeks later no diarrhea, said it was celiac and stay on the diet. Of course, I'd have liked more information, but since coming to this forum I've learned so much more and have really improved health-wise. Anyhow,...
  8. nettiebeads
    I don't know why there is such resistance to its recognition here in the U.S. celiac disease generally seems "below the radar" of most of the medical community. Probably because there isn't a prescription or regime other than diet to treat celiac disease. I have the impression that in other countries medicine isn't so isolated as it is here. More holistic...
  9. nettiebeads
    Have you mentioned it to your dr? How long have you had celiac disease and how long have you been gluten-free? The fact that it happens only when you drink, maybe it's the very first stages of Lupus? Definitely talk to someone about it though.
  10. nettiebeads
    Yep. I was dx'd 9 years ago with celiac, but continued to eat cold cereal with malt, malt flavorings. And I so loved the malt drinks from Bicardi and Smirnoff's. I gave those up a little over a month ago, thanks to this forum. My energy level increased dramatically and the numbness in my legs and face, which I had associated with just plain getting older...
  11. nettiebeads
    Go to search up at top and type in tests, or go to members and enter KatieUSA and then search her posts. I've never had the tests done, well, not the blood or stool or anything. I was dx'd by the diet challenge by my dr. 9 yrs ago. But I don't think that the tests, if any, at that time were very sophisticated anyhow. I believe the bloodwork would tell...
  12. nettiebeads
    I've been thinking about my answer since I first read your post. I don't think positive or negative. It just is. Period. Maybe you would consider me a fatalist, but I don't waste emotionally engergy deciding if something is "good" or "bad". If I can't control it, then I just control my reaction to it and go with it. Which is for the most part what I...
  13. nettiebeads
    Or how about a cold cereal? My dogs will chow on anything that's human and I accidentally spilled some chocobursts (gluten-free) I know that dogs aren't supposed to get chocolat, but after all of the processing, I doubt that there's enough in one little piece to hurt them. Mine like carrots, cheese, and of course, deli meats. Just a little bit will do...
  14. nettiebeads
    Oats is still an unknown quantity. I think the current official verdict is that those with celiac disease who are super super sensitive cannot tolerate oats, because the protein found in them is so very nearly identical to the gladian protein that sets off the reactions in those who do have celiac disease. But the other problem is that oats in the US are...
  15. nettiebeads
    K, here's what I think -celiac disease is a possibility, or at least gluten intolerance or wheat allergy. Why was the celiac test denied? What test - blood work, gene, or biopsy? Where are you? do you have health insurance? It's not like the Dr. pays for the test. That part always ticks me off. If you ask for something, drs act like you may know more...
  16. nettiebeads
    Me- I'm a Well's Blue Bunny fan. And not because my cousin works at the plant in Le Mars, IA. Whatever happened to their exquisint Mint????
  17. nettiebeads
    I got some at my local health food store. I can't remember the name, but they were also 100% organic from California and bland and pricey.
  18. nettiebeads
    I hate it when formulas are changed. Malt-o-Meal started using malt in more of their formerly gluten-free cereals But I did find some chocoBalls (think coco krisp) by Always Brand (Big Yellow bag) that are gluten-free!!! and crunched up should make an acceptable chocolate graham cracker crust - just a little more coco powder and potato starch. I better...
  19. nettiebeads
    Okay, here is part of the answer from Quaker concerning gluten free "...Grains are handled and transported in bulk by our suppliers...It is important we let you know the this product may contain trace amounts of grains that may be grown, harvested or stored with other grains and we cannot guarantee that this product is gluten free...." I quit them, better...
  20. nettiebeads
    I actually email them concerning their products - they don't guarantee their products to be glutent free. So I quit them. I miss them, but I like my health much more than a product.
  21. nettiebeads
    I've found most ice creams safe - just read labels, but of course if it's cookie dough, or brownie or something like that in the flavor, then it's out. Splenda is supposedly the closest thing to real sugar w/o the calories because it is made from sugar. But I did some internet reading on it, and it's made from alcohol, but not grain alcohol - it's derived...
  22. nettiebeads
    Thanks from me, too! I was thinking about this board and how much healthier I've been from all of the things I've learned Definitely strength and wisdom in numbers!!!!!
  23. nettiebeads
    When did you get the b/w done in relation to your carb-free timewise? That may have skewed the results. It seems to me that gluten is definitely the enemy. But just what you have is what needs to be defined.
  24. nettiebeads
    I'm happy for you. It's the little things that really do count, and when people show just that extra consideration you just melt. Have a really great time!!!
  25. nettiebeads
    Hmm.... That's a good one. I'm stumped. I mean, can they 100% guarantee that it won't gluten you? I'm with you - I'd be so very leery of anything with the "W" word in it....But when they process it, how is it done? Do they take every little bitty grain and separate it with tweezers to make sure the bad stuff doesn't cross-contaminate the rest of the grain...
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