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Latest Celiac Disease News & Research:
Everything posted by Chaff
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ARCHIVED How Many Of Us Assume A Gfd Will Fix It?
Chaff replied to WendyLee's topic in Coping with Celiac Disease
Thanks for passing along your neighbor and your doctor's advice. I also can't do SCD (or GAPS) because it makes me sick, and I'm looking for other options. I have iron overload so I'll skip the red meat, but everything else sounds great (except brown rice...need to do white or I'm in trouble). I've found soaking grains for 24h to be IMMENSELY helpful,... -
Sigh. Wine. Wine and baths. Doesn't work at the office, though. Then it's artisinal tea (Open Original Shared Link is my source) and praying that no one comes over to talk to me, or if they do that I can pretend to be a normal person long enough until they go away.
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ARCHIVED Being Pressured To Provide Food For Holiday Party
Chaff replied to Googles's topic in Coping with Celiac Disease
Well, on the one hand it's annoying. I'm an atheist, but everything's all Christmas everywhere, but you know, the spirit of the thing is wonderful, even if we disagree on the technicalities. So I don't bring up my beliefs unless someone asks, I take part in secret santa and sing the carols I like, and we all get along just fine. So you have to go to a... -
ARCHIVED Nyt Article On Cooking Gluten-Free For Dinner Parties
Chaff posted a topic in Gluten-Free Recipes & Cooking Tips
An article on cooking gluten-free for dinner parties came out this week. There are a few interesting recipes, too (at the bottom). I can't eat any of this stuff, since I'm still in the healing phase and have a really limited repetoire of foods I can tolerate, but there may be something here of interest to someone else. Removing ‘Sacrifice’ From ‘Glu... -
ARCHIVED Anyone Have Problems With Rice?
Chaff replied to adambryant's topic in Coping with Celiac Disease
Rice is one of the (very) few foods I can handle, but I can't eat regular rice. Basically, I soak it for 24 hours before preparing it (this ferments it slightly) and then I can eat it just fine. Otherwise, I'm like deb445: it exhausts me. I also take a shot of fermented something first (I'd take actual probiotic pill, but my order's on a slow mail boat... -
ARCHIVED I Had A Nightmare That I Ate A Crouton
Chaff replied to Chaff's topic in Coping with Celiac Disease
Argh -- so it never gets better, then. Thanks for comiserating! I was thinking about this while staring at a plate of wonderful-smelling pastries at an office meeting today. I kept having to remind myself I'm not supposed to reach for it. It was like training a puppy to sit still! (But I resisted). Take care, everyone! -
ARCHIVED Help! Cant Eat Anything!
Chaff replied to Bubble's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Sorry you're in this situation. I can't eat much either. Can you find a small amount of safe foods to eat repeatedly just for now? White rice, potatoes, that sort of thing? I can only eat white rice if I soak it for a day (at room temperature) first. Then find one kind of protein you can eat. For me, only tuna is OK. So I make a lot of tuna-rice casseroles... -
This is my third week gluten-free. Last night I had a nightmare that I ate a crouton. Every day I have a moment where I think, oh, I'll just go grab a snack...get some lunch...have a bite...Wait, I can't have that! What, am I crazy? I haven't cheated, and I haven't been tempted to cheat. I have plenty to eat (although I have a restricted list of about...
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ARCHIVED Please Help Me Understand My Results
Chaff replied to shadowseek's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks for the advice! -
ARCHIVED Please Help Me Understand My Results
Chaff replied to shadowseek's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Lisa -- thanks! It's my GI doctor, who is the only one for the Asia-Pacific region, and a really good guy. All the others I've seen immediately said I need to see a mental health professional (for anorexia and body image issues of all things), and only ordered tests after I begged them. He just heard me out and said -- why aren't you on any medication... -
ARCHIVED My Stomach Is An Evil Dictator And Need Putting In Line, Anyone Wanna Help?
Chaff replied to rgarton's topic in Food Intolerance & Leaky Gut
I feel for you -- that's awful. I know how being on a restricted diet and *still* feeling unwell is so infinitely frustrating. I hate this kind of answer, but my doctor would say you should have more fiber. For what it's worth, you could ground flaxseeds in your cereal or something and see if it helps. I also add prunes to some of my meals because it... -
I have this -- nothing ever worked (including prescription creams). It's annoying. Other people in my family that had it lost it when they went through puberty, but not me. :/ Hopefully it will go away as the GFD goes on?
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ARCHIVED Please Help Me Understand My Results
Chaff replied to shadowseek's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I'll try to convince my doctor to do it (US military doctor) -- thanks for the advice! -
ARCHIVED Please Help Me Understand My Results
Chaff replied to shadowseek's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks for posting this thread. I also got similar results last week...but over the phone, no numbers, and just a two-minute conversation. I don't get my biopsy results for another two weeks, so I went gluten-free on the assumption that my (low? high?) tTg is a diagnosis. I have Hashimoto's and responded well to a gluten-free diet (before going back on gluten... -
ARCHIVED If You React To Oats What's It Like?
Chaff replied to megsybeth's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Everyone will have different reactions. Oats hit my gut hard, I feel like cement is slowly moving through me, I get dizzy and stupid and feel terrible for hours. Gluten affects me differently, but then again I may have an additional oat allergy--no idea. Theoretically it should affect you the same way gluten does, or not at all. I assume you're eating... -
ARCHIVED Nausea?
Chaff replied to missceliac2010's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I've heard B6 and B12 can help (celiacs are often deficient in B12 at diagnosis anyway), but honestly making ginger tea from scratch has helped me out a lot. Just google it for recipes (I just use a ton of grated ginger with a cinnamon stick in water simmering for 20 minutes). It may not help everybody, but it really seems to help me. So far, at least... -
ARCHIVED Sick And Tired Of Being Sick And Tired...
Chaff replied to DucksnPucks's topic in Coping with Celiac Disease
Thanks for posting this. I'm just 10 days off gluten, so no words of wisdom from me, but I appreciate what you're going through. It seems unfair that some people go off gluten and seem to feel better immediately, and other people take forever. But you're healing and every week you'll get a little better. In the meantime, please come back here to rant if... -
Amen! Being uncomfortably underweight against your will is NOT pleasant. Chairs hurt, for example. People think you're anorexic, for another. And you stare at food, wondering what's safe to eat. Dieters drive me crazy. They know what to eat, but still they complain that they can't have their junk food. I love making and eating salads, bean soups,...
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ARCHIVED I Am Feeling So Helpless
Chaff replied to Razzle Dazzle Brazell's topic in Food Intolerance & Leaky Gut
Razzle Dazzle Brazell, I love your quote! Every single doctor before my GI referred me to a mental health professional and I had to beg them for testing. All testing came after a lecture about how I was likely anorexic or had body-image issues. I hate doctors. -
ARCHIVED Gas, Flatulence, And Healing My Annoying Insides
Chaff replied to charisvet's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
rmbyr12 -- I have no words of wisdom, since I'm going through this, too, but I sympathize. It's the holiday season (and today's my birthday...yay...) and I can't even eat really plain food that I made myself, while everyone else is gorging on cookies, cake, and seaweed tempura (I'm in Japan, so this is the holiday food here). It's crazy annoying, I have... -
ARCHIVED Nausea?
Chaff replied to missceliac2010's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Still, a good thread to revive. I'm a week and a few days off gluten, and the constant nausea after eating foods I am 100% sure are safe was driving me crazy. It's nice to know this is somewhat normal. It's a little easier to stop worrying and just accept it's going to slightly suck for a while. (Or maybe my B12 will start kicking in soon?) Anyway... -
ARCHIVED Newly Diagnosed: I Can't Eat Anything
Chaff replied to Chaff's topic in Coping with Celiac Disease
Thanks, everyone! Lots of good advice. Clearly this is a SIBO/leaky-gut/general gut sadness sort of issue first and foremost, and after that is over I can investigate the food intolerances/allergies (I suspect my fructose malabsorbtion is due to this, too, since I can't eat even things the official diagnosed people are OK with). I had a RAST test for allergens... -
Hi! I just got diagnosed yesterday and have been off gluten for just over a week (biopsy was last Monday). And I can't eat anything! My self-indulgent rant: I eat avocado, lime, and corn chips -- brain fog, headache, stomach ache. I eat scrambled eggs with nothing added -- severe GI issues, plus also brain fog, headache, stomach ache. I eat bacon...
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ARCHIVED Fructose Intolerance
Chaff replied to Skittles's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi Skittles, I think I am fructose intolerant (based on an elimination diet) but I am waiting until my gut has healed before getting formal testing. For now, I just avoid things that give me problems, no matter what they are. There are lots of good lists online, but they are all different (research keeps changing). A really good list is here: Open...