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cyclinglady

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Everything posted by cyclinglady

  1. cyclinglady
    Item C. What did your GI say? The small intestine is as large as a tennis court when spread out. Easy to miss damaged areas. How many biopsies were actually taken? I would recommend a second GI consult. Obtain all your records, including those blood tests. Just looking at what you posted does not tell the entire story.
  2. cyclinglady
    Again, my money would be on celiac disease. It has been a year since you were last tested. You could have had some gluten exposure. Maybe a tiny amount every single day. Maybe you have become more sensitive to gluten. Maybe 20 parts per million is too high for you personally. There must be a reason why people with celiac disease are not always healing...
  3. cyclinglady
    Yes. I assuming you are not doing the slaughtering and are buying the meat from a butcher/store. But check the label if buying it at the store. Some companies will add gravy mixes, etc. So, read the label!
  4. cyclinglady
    I think you are correct in standing your ground. Statins have had documented side effects. Only you, along with a supportive doctor, can determine what is the best course of treatment for you. We all have unique sets of cirmcumstances. When I fractured some vertebrae (celiac disease complication), everyone thought I had suffered a heart attack....
  5. cyclinglady
    So nice to hear a success story! Congratulations. It sounds like you worked hard to avoid gluten!
  6. cyclinglady
    Are you guys kidding? This topic about sourdough bread has been floating around the internet for years. It is not advisable for a celiac to consume sourdough bread made with wheat. Read what the Gluten Free Watchdog has to say: https://www.glutenfreewatchdog.org/product/dan-the-baker-country-sour-bread-not-labeled-gluten-free/333 https://www...
  7. cyclinglady
    It sounds more like KP (Keratosis Pilaris) or chicken skin instead of DH. Open Original Shared Link
  8. cyclinglady
    Thanks! I hope she enjoyed all things Harry Potter!
  9. cyclinglady
    This product is being recalled due to wheat ingredients which are not disclosed on the label. Open Original Shared Link
  10. cyclinglady
    All those symptoms can be attributed to several autoimmune disorders. If you have celiac disease, how are your antibodies? That would be the place to start. I have Hashi's but also had an enlarged thyroid and nodules for years. My TSH would have to exceed a 5 for me to really feel or see the effects (everyone is different). You could insist on...
  11. cyclinglady
    Did he measure LDL particle density? There are two types: hard/tiny and soft/fluffy. What about your triglycerides? I have been reading about inflammation has a cause for heart disease and not cholesterol. We have rejected statins for my hubby for this reason and the side effects from a statin just do not justify "supposed" benefits. But that is...
  12. cyclinglady
    Well, the "gold standard" of diagnosing for celiac disease is still biopsies via endoscopy. However, there are exceptions for many reasons. For some, it can take up to a year to get an endoscopy due to health insurance/provider constraints and they just want to get well. For others, it can be out of their budget, while others just simply do not want to...
  13. cyclinglady
    It looks like she just had one celiac test, the TTG which was negative. If you suspect celiac disease, you should ask for the rest of the panel. Kids that young might not get a positive on the TTG (even old people like me). Then there is the possibility that she is seronegative which affects about 10% of celiacs. So, you can not rule out celiac disease...
  14. cyclinglady
    Hi Tootie! Four weeks of consuming 1 to 2 slices of bread (or equivalent) should be enough time for an endoscopy per all the experts. The blood test requires a much longer period of 8 to 12 weeks. I would go as long as possible, if you can stand it. Some people develop antibodies fast and others develop them slowly (it can take a long time for...
  15. cyclinglady
    Who is the customer here? You have a RIGHT to your medical records. It is in your best interest to get and obtain all medical records (including lab results). Chances are your doctor ordered the very good (but does not catch all celiacs), TTG. This is the preferred test because of cost. If you could only choose one, then this would be it. But,...
  16. cyclinglady
    Yes!!!!!! Me! Run, don't walk, to another GI who is celiac savvy!!! Like you I tested (and still continue to test) the VERY SAME WAY. Only my DGP IgA is elevated. All other tests (TTG and EMA IgG and IgA versions) are negative. There is a reason there is a celiac panel. The most common and preferred TTG (very good test and due to cost restraints...
  17. cyclinglady
    Gee, I add Nisin to my homemade soups just like my Grandmother -- NOT! ?
  18. cyclinglady
    Errors are made during ANY manufacturing process. Take a look at this mis-labeled product now being recalled because it contains wheat: Open Original Shared Link DO NOT panic! Fortunately this type of occurrence is RARE. Odds are that your soup does not contain gluten. But as I stated earlier, celiacs can have or develop food intolerances or...
  19. cyclinglady
    The issue here is that it could be ANYTHING and there is no way to really determine exactly what hit you. What I would suggest that as a Newbie, try to avoid processed foods even if they do not contain any gluten ingredients. Celiacs usually have additional complications. We often have or can develop other intolerances or allergies. When you are...
  20. cyclinglady
    I am sorry that you are still feeling icky!
  21. cyclinglady
    You could just consume foods rich in those vitamins or minerals that you are lacking. Get a little sun for the vitamin D. Not sure where you live or work, but deficiencies in Vitamin D are common during winter. If you choose to supplement, follow the recommended dosage. Anything amounts higher and you should probably consult with a doctor. Your results...
  22. cyclinglady
    Yeah, your GI seems like he does not know anything about celiac disease. Run, don't walk, to another GI for a consult. If celiac disease was suspected, a simple blood test could have been ordered prior to the endoscopy. Even the endoscopy without the blood test and before recommending that you go gluten free, the blood panel should have been ordered...
  23. cyclinglady
    Call the hospital or the clinic where you are taking the CT scan. They will be able to tell you if there is a possibility of a gluten exposure (though very unlikely). Also, ask them about how they handle reactions to the dyes. I am sure they have a crash cart near by with epi pens/meds nearby. You will not be the first to react. If you can eat shrimp...
  24. cyclinglady
    Celiac disease is like a chameleon. Symptoms vary from person to person. They can change after each gluten exposure. I was just anemic when I was diagnosed. I was shocked! But now after being gluten free. I can get all the classic GI symptoms. it can drive me crazy trying to guess if my symptoms are celiac-related or not. There is a steep learning...
  25. cyclinglady
    Your nurse is wrong. It only takes one positive in the celiac blood panel. It does not have to be the most common positive which is the TTG IgA. There is a reason why there are several celiac tests! The next step is a referral to a Gastroenterologist to obtain intestinal biopsies. Keep eating gluten until all testing is complete and you have the...
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