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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Welcome! There are over 200 symptoms attributed to celiac disease and those often overlap with other autoimmune disorders. The only way to know is to have your son tested. Learn about testing: Open Original Shared Link Because he has been gluten free or light, he might need to do a supervised challenge under at Gastroenterologist's care...
  2. cyclinglady
    You only need one positive on the celiac panel. Four weeks is iffy despite being gluten free for just a month. No problem, you can always retest after continuing on for another two months of gluten. The issue will be with your doctor or insurance. You might have to pay out if pocket. Even if negative, keep in mind testing for someone that young can...
  3. cyclinglady
    The flour you are using is okay. I personally prefer Pamela's but that is because I have an intolerance to Xanthan Guam and Pamela's uses guard Gum (these gums sub for gluten which is a good binder). Open Original Shared Link However, you can not sub gluten-free flour cup for cup in regular recipes (there actually is a gluten-free flour brand...
  4. cyclinglady
    Do you mean chilis? As in a hot pepper? It might be an intolerance or allergy. I can not eat them. ☹️ Open Original Shared Link
  5. cyclinglady
    Hi Evelyn, My FIL has MD, dry. His doctor suggested an AREDS2 supplement. He is debating the value. He does not have celiac disease. According the original study, about 25% of the participants did see a benefit over a course of five years. https://nei.nih.gov/areds2/PatientFAQ Consider going without the supplement for a while and focus...
  6. cyclinglady
    Your blood test is a positive. Normally, that means you would be recommended to see a GI for intestinal biopsies via endoscopy for final confirmation. But you have a very long wait time! You can choose to go gluten free now and consider a two week gluten challenge prior to your endoscopy. If this seems unacceptable, you are still eating gluten, and your...
  7. cyclinglady
    Psawyer answered your specific question about A KRaft product. Read this about looking for gluten when reading labels: Open Original Shared Link Open Original Shared Link
  8. cyclinglady
    Hashi's and celiac disease are both autoimmune diseases like MS, R. Arthritis, lupus, Diabets Type 1, etc, but they are most commonly linked. Researchers are not sure, but genes probably come into play. An elevated DGP IgA can occur at any age. Usually the ages are under 2 and over 70. It is not common to only have an elevated DGP IgA. I have searched...
  9. cyclinglady
    Looks like you are special! ? karen is right. You can not rule out celiac disease yet. Ask for the rest of the celiac panel. You may be too IgA deficient for the other celiac IgA tests to be accurate. You need the IgG test versions.
  10. cyclinglady
    Yes! You just need ONE positive on the celiac panel. Intestinal damage is microscopic, so you need to wait for the pathologist's report. Keep in mind that even if negative, he still might have celiac disease. The small intestine, when spread out, is the siz of a tennis court. Easy to miss patches of damage. Six or more biopies should have been taken...
  11. cyclinglady
    Since I never had a genetic test, I have not really researched it. I think it they are sub-variants. Definitely not lab coding.
  12. cyclinglady
    Try rotating every four days. It can take a while to feel the effects of an intolerance. Moderation can be key. I can not eat garlic, onion or leaks. Accidentally put some green onions on my salad last week (took hubby's salad plate). They were so tasty! Had slight GI issues but my face! My rosacea acted up. Itching, inflammation, redness,...
  13. cyclinglady
    My girlfriend was recently diagnosed in her 50's with celiac disease. Her sister was diagnosed as a kid. Doctors then told her parents that she would out grow it. So, in her late teens, she went back on gluten. She did well for years. A few things, but she ignored it. Got re-tested after my girlfriend's (her sister) some 50 years later. Yep, the celiac...
  14. cyclinglady
    The odds are that you do not have celiac disease. You could be one of the rare cases of alternative genes (less than three percent), like Raven. Your DGP IGA was elevated. Did he do a repeat celiac panel? You could have Crohn's. I thought for sure my niece had celiac disease. She went to four GI over a three year period. She did not have the predominant...
  15. cyclinglady
    Did the GI order this genetic test?
  16. cyclinglady
    This video was presented by the Anerican GI Association. Interesting in that they identified 3% the population as having celiac disease in their study of 30,000 adolescents. Higher than previously thought.
  17. cyclinglady
    Symptoms can overlap between so many illnesses. The only way to know if you have celiac disease is to get tested. Be sure to keep gluten in your diet until ALL testing is complete. Open Original Shared Link I wish you well!
  18. cyclinglady
    I think erasers are just fine. As a celiac, I never worry about erasers and I am touching and scooping up eraser crud daily created by me, hubby and a high schooler! Open Original Shared Link Open Original Shared Link Found this for non-food treats created by University students for elementary school-age kids: Open Original Shared...
  19. cyclinglady
    Dear Severe, I just want to add that depression can require medication. I did not mean to discount your need for it. It can really help. I am sad that your doctor is not helping you to insure and reassure you that all your medications are gluten free. You should not (no one should) have to do this kind of research when you are feeling sick. I...
  20. cyclinglady
    This drug used to be on the Glutenfreedrugs.com list. The previous link I gave you was just a partial from 2017 and the pharmacist is still in the process of updating it. Here is the old list that could be outdated. Call the manufacturer. As long as there is no gluten in the ingredients, you should be safe. Drug companies have strict standards for cross...
  21. cyclinglady
    True, and if you are lucky, you will regain your ability to consume all dairy products provided that you are not genetically predisposed to being lactose intolerant (or partially). A big chunk of the population is lactose intolerant. Open Original Shared Link
  22. cyclinglady
    Yep, drug money rules. The drug used, canakinumab, has been reserved for very sick people with fever syndromes or juvenile arthritis. It does suppress your immune system. In the study, inflammation was reduced, but people died from infection. Not a good trade off. Plus, this drug costs big big bucks. Best to stick to a healthy diet (stay away...
  23. cyclinglady
    Getting the family ready for school....but here is some information regarding a challenge: Open Original Shared Link Open Original Shared Link Some experts recommend a shorter challenge, but I would do the longest to reduce the risk of being mis-diagnosed.
  24. cyclinglady
    I am so sorry that you are ill. Celiac disease is like a chameleon. Symptoms can vary from glutening to glutening in my personal experience. I hope you recover fast!
  25. cyclinglady
    I think you need to take a little time to learn about DH and celiac disease. Celiac and DH are technically autoimmune disorders. This is about DH: Open Original Shared Link Learning about celiac disease (overview): Open Original Shared Link Testing for celiac disease via blood test: Open Original Shared Link I think the full...
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