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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    This product should be okay. Cosmetics are not required to follow FDA guidelines as they are not food. If the company discloses the ingredients lists and it is not listed, then you should be fine. Following up,with the manufacturer should be also give you piece of mind. I use Kirkland Shampoo for Costco. It is even labeled gluten-free, but I know...
  2. cyclinglady
    I had iron deficiency anemia when I was diagnosed. I had no other noticeable symptoms when I was diagnosed. Just had a routine colonoscopy for a cancer screening due to my age. During my GI consult, he ran a celiac blood panel. So, you can be symptom free and still have celiac disease. It can cause damage that is not visible. Two months after...
  3. cyclinglady
    Unless you also have a wheat allergy, in addition to celiac disease or NCGI, the shampoo should be just fine -- unless you plan on drinking it. ? Seriously, if the shampoo does not have gluten listed on the label, it is okay to use. Gluten must be injested to set off a celiac flare up (rise in antibodies).
  4. cyclinglady
    Luana, The TTG IgA test is very good, but like I said it does not catch all celiacs (like me). It is a place to start. If negative and you have symptoms that sound celiac-related (iron-deficiency anemia), it might be prudent to request the full celiac label. See this algorithm for testing: http://www.mayomedicallaboratories.com/it-mmfiles/Celiac...
  5. cyclinglady
    Hi Luana! I think a re-visit with your GI is in order. There must be a reason for your anemia. I was like you. My gallbladder was removed when my HIDA was at 0% and infected. Non-functioning gallbladders are a family curse. I went for a cancer screening colonoscopy because I hit 50. My GI noticed my anemia and ordered a FULL celiac lab...
  6. cyclinglady
    I understand your desire to conceive because the clock is ticking! I had my daughter at 39. The few years prior I had been ill. My doctor wisely (he had two children) advised me that I should postpone pregnancy until I was healthier. It is not just maintaining the pregnancy, but dealing with baby afterwards. He was so right! My daughter was healthy...
  7. cyclinglady
    We have to worry about Earthquakes. Hopefully, we can unbury the Camping Gear and Earthquake supplies from the corner of our garage!
  8. cyclinglady
    That is so sweet of you, Ennis! ?
  9. cyclinglady
    USDA Recall -- Blossom Foods -- Contains soy and/or wheat (not marked on label). https://www.fsis.usda.gov/wps/portal/fsis/topics/recalls-and-public-health-alerts/recall-case-archive/archive/2017/recall-098-2017-release
  10. cyclinglady
    The histamine diet might help. It certainly will not harm you. I was on a modified version of it when I had chronic hives for five months. I suspect a celiac flare-up triggered it over an illness (had flu, cold, tooth infection) and it seems to be related to a damaged gut. I was prescribed a cocktail of anti-histamines which worked. You would think though...
  11. cyclinglady
    Welcome to the forum! Ennis has given you some excellent advice. I think you just have to re-think traditional foods that you have been eating. Focus on fresh vegetables, meats, fruit, nuts, beans, dairy (if he can tolerate it as this is usually temporary in a celiac) and rice. Save the special flours or gluten-free treats for special occasions. For...
  12. cyclinglady
    Yes, I have heard about mushrooms and possible gluten exposure is in the medium they are grown on that can be concerning. Plus, you are not supposed to really wash mushrooms, just brush them off per chefs. http://www.foodnetwork.com/how-to/articles/how-to-clean-and-store-mushrooms-a-step-by-step-guide There is also a weird mushroom intolerance...
  13. cyclinglady
    Welcome! The best way to determine if you have celiac disease is to take a simple blood test, but you need to be consuming gluten daily. So, do not go gluten free before testing. http://www.cureceliacdisease.org/screening/ honestly, those allergy tests are not accurate. https://aacijournal.biomedcentral.com/articles/10.1186/1710-...
  14. cyclinglady
    He is a kid. Gluten may be still getting into his diet. That is why testing is critical. Now, more than ever, since he is a teen. I read in one celiac book, Gluten Freedom by Dr. Fasano, that one teen patient was getting sick. His parents were perplexed. Speaking to the doctor alone, the boy confessed that he ate pizza many times to impress a girl...
  15. cyclinglady
    Try calling the office. Ask the nurse how fast endoscopies are typically booked after an initial consult. It could be days, weeks or months. That will help you decide if you want to get back on gluten now or later. But seriously, all the literature says 2 to 4 weeks -- not one.
  16. cyclinglady
    You might want to get back on gluten (I think you went off it this week?). The procedure could take place within a week of your GI consult. You should be on a gluten diet for at least two weeks -- not one week as your GP suggested (for biopsies only). Consider bringing a notebook and/ or a friend. When you are sick, it is hard to think clearly. ...
  17. cyclinglady
    Why? Why would you take a drug for SIBO prescribed by a GP/PCP? You should be evaluated by a GI! Get tested! You were diagnosed three months ago. At the beginning (mid June) you were in denial. You talked about gradually going gluten free. You ate out at Fuddruckers and most likely at other places where you might have been exposed to gluten...
  18. cyclinglady
    Welcome! How old is your son? Has he had follow-up celiac testing to help determine if he might be getting trace gluten contamination? Have other autoimmune disorders been ruled out (inflammatory bowel Disease (IBD: Crohn's or Ulcerative Colitis)? He could develop more than one autoimmune disorder, unfortunately. And then there is "leaky gut"...
  19. cyclinglady
    Oh, I love your BS line of thinking! ?
  20. cyclinglady
    Oh.... I do bake with all the kids. We just make gluten-free versions. They love it. Parchment paper is your friend. gluten-free dough tends to stick. Don't have the necessary tools? Find a Dollar-type store. Purchase Mayo and ketchup that come in squeeze bottles. I even buy sour cream that way. No "double dipping" occurs. I always...
  21. cyclinglady
    You should confirm that you were given the entire celiac panel. It is still common for most doctors to use the screening TTG and then check for an IgA deficiency (cheap, effective but does not catch all celiacs) . What if you test like your child? What if you are a seronegative celiac (occurs in 10% of celiacs)?
  22. cyclinglady
    @Celiac's Wifey -- great catch! You are right. I assumed that the DGP test was run because it replaced the older and less reliable anti-gliadin test years ago.
  23. cyclinglady
    If you are traveling to your destination by car, pack a bin for gluten-free dedicated kitchen ware. I visit my parent's a lot. I have a bin kept at both my parent's house and their lake house. I keep in in the closet so that the rest of my extened family does not use it and it is clearly labeled. We use toaster bags, a small frying pan, spatula, colendar...
  24. cyclinglady
    Welcome! I am sorry that your son is ill! Yes, you can have celiac disease with only one positive in the panel. That happened to me. I had only a positive on just the DGP IgA. It was not a fluke. I test this way even in follow-up testing. Biopsies revealed intestinal damage ☹️. https://celiacdiseasecenter.columbia.edu/sites/default/files/Dia...
  25. cyclinglady
    Nothing is typical in celiac disease. That is why there are over 200 symptoms attributed to it. What you need is time. Time to really master the gluten free diet and to heal. A month may be way too soon in my non-medical opinion (based on forum member input too). Look to take up to a year to feel better. Sure, throughout the year you will see improvement...
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