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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Learn more about testing for celiac disease here: Open Original Shared Link You do have to be on a gluten diet for ANY of the celiac tests (blood and biopsy) to work. While the endoscopy (with biopsies) can reveal villi damage, many other things besides celiac disease can cause villi damage too: Open Original Shared Link So, both the...
  2. cyclinglady
    Exactly what are your allergy symptoms? Were they IgG or IgE? Allergy testing as a whole is not super accurate -- especially the IgG. Were you on any H1 or H2 antihistamines for the last five days when you were tested? As far as celiac testing, four days without consuming gluten probably would not impact testing.
  3. cyclinglady
    ?
  4. cyclinglady
    In my research, diabetes (type 2) is genetic. You either have the genes to develop diabetes or you do not. Additional weight is most likely due to insulin resistance. I happen to be a thin diabetic. I have never been heavy. I was brought up to consume the Standard American diet (SAD) full of process and sugary foods. The problem most celiacs have...
  5. cyclinglady
    Only GIs can order a complete celiac panel at Kaiser. Your results look negative, but those are just "screening" results. You are not IgA deficient (used only as a control test for celiac disease) so that means the TTG IgA test worked. If you suspect celiac disease, ask for a GI referral. Keep eating gluten!!!! If you go gluten free then all...
  6. cyclinglady
    You only need one positive on the celiac panel. I tested positive only to the DGP IgA and had a Marsh Stage IIIB intestinal damage. Good luck!
  7. cyclinglady
    Welcome to the forum. First, you need to get copies of your celiac test to confirm you actually had it done and what the results were. Second, to confirm a diagnosis, you must obtain biopsies via an endoscopy. Were the doctors gastroenterologists? Third you need to research celiac disease. Yes, you can be asymptomatic, but could still have instestinal...
  8. cyclinglady
    @jddh So...did the restricted diet you were going to implement work (FODMAP or Whole Foods)? I recall that you were mis-diagnosed at one point with refractory celiac disease, but it was later determined that you were getting trace amounts of gluten in your diet. If you are not catching colds, I assume that you have healed from the damages of celiac disease...
  9. cyclinglady
    Peter is correct. You do have a positive so that warrants further investigation. Here is a link supporting our comments: Open Original Shared Link Open Original Shared Link Does she have celiac disease? You will never know for sure without an endoscopy. Even then, there is a chance the biopsies are negative, but keep in mind that she might...
  10. cyclinglady
    No fasting required for a celiac blood test unless they were checking your blood glucose levels during the same blood draw.
  11. cyclinglady
    Nope. I got the flu and a cold within a two month span at the end of winter. However, I was battle a tooth infection during that same time period.
  12. cyclinglady
    You did not have celiac testing done. ☹️ Instead, your doctor checked your immune system. This explains it simply. Open Original Shared Link In the case of celiac disease, you are slight deficient in IgA, but for celiac disease it is used as a control test to determine if celiac testing is valid. Time to buy or get to the library to ...
  13. cyclinglady
    Kaiser offers the full panel, but a primary care MD can not order it -- only a GI. Again, a visual is not needed. Damage is usually severe if it can be seen visually (e.g. Scalloping, etc.). Villi are microscopic though. When you got the referral, you probably should have found a GI on your own by searching through the Kaiser directory and finding...
  14. cyclinglady
    I would not worry. Things might resolve on the gluten free diet as celiac disease does impact fertility in many ways. I hit perimenopause at 40. It lasted over a decade (the range of years varies from person to person) and I experienced every single perimenopause symptom (on and off) in the book. I was diagnosed with celiac disease after I went though...
  15. cyclinglady
    Best Foods or Hellman's on the East Oast is Gluten free. You can make your own too! Easy! Open Original Shared Link I buy any brand of sugar.
  16. cyclinglady
    Are you sure you do not have fractures? I fractured two vertebrae two months after my celiac disease diagnosis DOING NOTHING!!!! Turns out I have osteoporosis from untreated celiac disease. ? Consider a bone scan.
  17. cyclinglady
    Be sure to let us know how it goes! Help keep them in business by writing a review on Find Me Gluten Free! Enjoy! ?
  18. cyclinglady
    If you are worried about your glycemic levels, then you should test with a glucose meter. I have diabetes (insulin resistance/TD2) and rice and potatoes spike me like crazy! I might as well consume ice cream! But if you do not have diabetes, no worries!
  19. cyclinglady
    I agree with Ennis. It sounds like she is getting access to gluten way too often to expect healing. I had some pretty severe patches of intestinal damage when I was diagnosed. Anemia was my symptom and I had no gut issues then. So, just because she injests gluten and does not have some major symptoms right away, does not mean she is not building up antibodies...
  20. cyclinglady
    I think that if you soaked in the paddle in vinegar and scrubbed it a few times, you will be fine. But if in doubt, just set the mixer aside for a while until your family's health has improved. In the meantime, use your arm to mix dough! My grandma never had a mixer! I bought a bunch of new stuff because I had been married for 25 years when diagnosed...
  21. cyclinglady
    FYI......anxiety is a common symptom with celiac disease and NCGI. It seems to resolve on a gluten-free diet. ?
  22. cyclinglady
    Imagination? Does it matter? Feeling safe in the one place you should be able to let down your guard is very important. We had a shared household before my diagnosis. Hubby was gluten free. I did all the cooking, shopping and food prep. It worked. He was kept pretty safe. That first year was rough though! Lots of mistakes. Then a decade later, I...
  23. cyclinglady
    Hi Everyone! Just wanted to chime in about my personal experience. I went for a GI consult because due to my advanced age (over 50 ?), I qualified for a screening colonoscopy. A long history of anemia is what caught my GI's eye. I have a genetic anemia too, so that was always blamed for my anemia (beside being a woman). I tested negative on the...
  24. cyclinglady
    You have had celiac disease for 9 years. You know the drill. That is not in dispute. I think there is something definitely wrong. Your GI needs to do more investigative work to determine the root cause of your symptoms. Other GI issues need to be ruled out (the list is too long but stuff like ulcers, Crohn's gallbladder, ducting issues, cancer). But...
  25. cyclinglady
    Once a celiac ALWAYS a celiac!!!!! It is for LIFE and there is no CURE. ? A gluten free diet can help. Not treated and the risk of cancer and developing other autoimmune disorders (like type 1 diabetes or thyroiditis) is possible. I am sorry that your are mis-informed. Celiac disease is no longer the picture of a malnourished child but can be a...
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