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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Have you had the complete celiac celiac panel? The DGP test is better for measuring dietary compliance. Other AI issues could keep your TTG levels elevated. Here is a reliable information from the University of Chicago: Open Original Shared Link There is a greater risk for cancer, but it is rare. Have other AI issues been ruled out (e.g. Hashimotos...
  2. cyclinglady
    Here's another thing. Feeling deprived? Order two of the same item. I was hungry by the time dinner arrived!
  3. cyclinglady
    Well, I have never cruised on Carnival, but I am sure they can accommodate you. I assume that you have already alerted them that you require gluten free meals. If not, please contact Carnival immediately. Here are my own tips. Some folks eat off the buffet line, but not me or hubby except for coffee/drinks and baked potatoes (jacketed) and fruit that...
  4. cyclinglady
    Welcome! You were smart to think about cross contamination. Although it is great that there are so many gluten-free options out there, in the beginning it is best to try a whole foods diet, until your son feels a bit better. The learning curve for the gluten-free diet is steep. It is better for you to get everything down before letting others feed...
  5. cyclinglady
    I am sorry that you are sick! Unfortunately, all celiac testing requires you to be on gluten. ?. Testing is usually not over until you get an actual diagnosis, but it appears that you may very well have celiac disease. Here is more information: Open Original Shared Link Open Original Shared Link in the meantime, you can eliminate...
  6. cyclinglady
    I checked the Gluten Free Watchdog (I subscribe) and did not find this particular product, but found the company's oat bran flakes which did not list any gluten ingrediants, but barley was found in testing well over 20 parts per million. I would stick with certified gluten-free cereals, personally. I think it is "hit or miss" on grain products.
  7. cyclinglady
    What about Xanthan gum? It really bothers me, so I avoid most commercially processed gluten-free breads, etc. Never bothers my hubby though.
  8. cyclinglady
    He might have celiac disease (or just the start of it). He might have Non-celiac Gluten Intolerance, which is real, but there is not a test for it. He might have other food intolerances (milk, dyes, etc.). You have been to an allergist and he did not positive for allergies (I assume wheat was included in the panel.). Trialing a diet is fine, even a gluten...
  9. cyclinglady
    I did not mean to imply that you should put him on a gluten free diet. If you suspect a problem with gluten, please get an opinion from a GI who is celiac savvy. All celiac testing requires a patient to be consuming gluten. The slightly equivocal TTG? That warrants a gene test at the very least. Open Original Shared Link
  10. cyclinglady
    I react to certified gluten free breads, but it is NOT a gluten issue. I react to Xanthan Gum. I do just fine making my own baked goods from scratch subbing out the Xanthan Gum for guar gum. My gluten-free hubby does well on commercially gluten-free baked goods. It is just a food intolerance issue in my case. Look to other ingredients.
  11. cyclinglady
    If you are certain that gluten is an issue, then ask your doctor to run a celiac panel. I did when I was glutened last year. My "glutened" symptoms changed so much that both my GI and I suspected something other than celiac disease flare-up, but blood tests revealed that I had gluten exposure. This may be your chance to get a diagnosis. Also, sick...
  12. cyclinglady
    This is about keeping your daughter safe. Yes, tiny crumbs can do damage. Can you have a shared household? Yes, but with plenty of training. I did it for years for my hubby and before I was diagnosed. But I was in charge of the kitchen. I did not let my kid into the kitchen for the most part. I love her but she is a kid! I had total control because...
  13. cyclinglady
    A biopsy will confirm a celiac disease diagnosis. The genetic test will help rule out celiac disease. It can not diagnose it. That is because some 30% of the population carries the genes needed to develop celiac disease, but only 1% actually go on to develop it. Her test results look look positive to me, but I am a STRANGER without a medical degree...
  14. cyclinglady
    Maybe. Maybe as there are over 300 symptoms attributed to celiac disease. So many of them overlap with other issues. If he is diagnosed with celiac disease, he can still have allergy issues. Keep him on gluten until all testing is complete (hard, I know!). I hope he feels better soon.
  15. cyclinglady
    KarenG is wise, wise, wise!
  16. cyclinglady
    There is a lactose intolerance test, but avoiding all sources of lactose (milk sugar) and milk proteins (casein) might be worth it if your husband agrees. Research more about this. Not everyone has rashes and vomiting. You can have mild allergies that worsen seasonally. Geez, I don't vomit or rash up when I ride horses or breath in mold or ragweed (but...
  17. cyclinglady
    I am sorry about your daughter! I have Hashi's and I never (even in follow-up testing) get a positive TGG. Funny, huh? My GI is perplexed too, but it reinforces that fact that celiac disease presents differently and symptoms can wax and wane making a diagnosis more difficult. That is why researchers have been considering screenings for everyone...
  18. cyclinglady
    His TTG is .90 which is less than one and the range is less than 15 is negative. His IgA (is that the IgA deficiency test?) is a 240. What's the lab range? It sounds normal. But are you talking about a TTG IgA? If that's the case then it could be positive. Missing some valuable data here, Mom!
  19. cyclinglady
    Eating out is tricky. Most of us have been glutened through cross contamination at a restaurant. The "Find Me Gluten Free" is a great app BUT I only trust those reviews written by a celiac! Always talk to the head chef (or manager) and don't rely on wait staff. Jane Anderson of Very Well (formerly about.com) is a celiac who writes good articles...
  20. cyclinglady
    I think that three months is too soon to re-test. There's not much information out in the web on a slightly elevated TTG. I can sympathize as I was only positive on the Glidadin (DPG) IgA and negative on all the rest, but my biopsies revealed moderate to severe damage. But that DPG test was definitely positive (unlike your son's results of equv.). I...
  21. cyclinglady
    Here's the deal....I would be worried a bit about this ingredient: tocopheyl acetate. Here's more information from a very reputable site: Open Original Shared Link When I am in the grocery store or Target, I don't have time to look up everything. Ever try to read a shampoo bottle? Heck, understand the ingredients and be able to read the tiny...
  22. cyclinglady
    Everyone responds differently (days, weeks months, years), but the consensus here seems to be that the longer you are away from gluten, symptoms tend to get worse when you get an accidental exposure. Your daughter is young, so she should recover faster than an adult, but there's a steep learning curve to the gluten-free diet and that usually delays healing...
  23. cyclinglady
    Excellent point! Hand sanitizer is not going to remove gluten, tha's for sure!
  24. cyclinglady
    Oh, no worries. Just wait until she's rolling on the bathroom floor after a gluten exposure. Everyone needs to learn at their own pace. Most have to learn the hard way. I had no clue until I was glutened well after my diagnosis. I was just anemic, no tummy issues at all when I was diagnosed. But my symptoms changed once I went gluten free -- yep, I...
  25. cyclinglady
    "Plant based" is code for wood pulp. So, while safe to consume, my kid and hubby sadly prefer freshly grated cheese. Guess who gets to grate? I have purchased Kraft cheese in a pinch (saved my fingers......) and have not been glutened.
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