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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Welcome to the forum, Mrs. Morgan! Please read our "Newbie 101" thread pinned at the top of the "Coping" section of the forum. It contains lots of great tips on avoiding gluten and places where it could hide. Cross contamination (like sharing a toaster) are big issues for us. The good news is that your health is going to improve! Be...
  2. cyclinglady
    It is an old symptom. When I would bend over, I would sometimes feel my stomach (the actual stomach/organ) pinching or folding. I am thin and I could see my stomach (the organ) actually sticking out (swelling) from my left rib cage. That resolved when I went gluten free and it came back after a bad glutening in July. Weird, huh? Anyway, I thought...
  3. cyclinglady
    In the US and UK, GI doctors prefer the newer DGP over the old Anti-Gliadin tests. But some countries are still using the old Anti-Gliadin tests. Just wanted to clarify that!
  4. cyclinglady
    If your test results were typed correctly (decimals in all the right places), then you have a positive on the TTG based on the lab range you provided (a 0.5 is higher than a 0.15). But I think you meant for that range to be applied to RAST test which tests for allergies and not for celiac. You need the actual lab ranges for that lab. Can you clarify?
  5. cyclinglady
    What were the lab ranges? Also, the Glia could be one of two tests: 1) Deamidated Gliadin Peptide (DGP) or 2) the Anti-Gliadin (this test has been replaced by thenewer DGP in the US and the UK) because it is not as accurate. Might be worth reviewing your lab report. I have Hashi's and I can tell you that I only test (first time and follow...
  6. cyclinglady
    Since you decided to accept (or not fight) your PCP's diagnosis of celiac disease, your best bet is to stick to a gluten free diet and be patient! Ataxia means "walking or gait" and other MS-like symptoms. Those with suspected MS should be tested for celiac disease. Brain fog is common in all celiacs. It usually resolves when you have started to heal...
  7. cyclinglady
    So sorry to hear about your glutening! I hope you feel better soon.
  8. cyclinglady
    We do have labeling laws in effect governed by the FDA (Food and Drug Administration), but meat falls under USDA (Dept. Of Agriculture). The Gluten Free Watchdog explains it well: Open Original Shared Link I am confident about all fresh meat. I read the labels and have not been glutened by ham or bacon which is processed. I only buy clearly labeled...
  9. cyclinglady
    If you are unwilling to do a gluten challenge (I do not blame you because there must have been symptoms you were trying to resolve when you went gluten free), you must buckle down and stop getting even small gluten exposures. Remember, this is an autoimmune disease, a tiny amount of gluten triggers a flare-up that can last for weeks or months! It sounds...
  10. cyclinglady
    What a nice friend you are! ?. Celiac disease can cause depression and anxiety especially if a person continues to get gluten in the diet by accident or on purpose. It is hard enough being a teen and having celiac disease too is tough ?. But this is a problem that you can not solve (or some mom on the Internet). You need to talk to a trusted adult (school...
  11. cyclinglady
    Some Hams may have added gluten added to the glaze. I toss the glaze that comes with the Costco ham. Who know what Grandma does to her ham in her kitchen. Here is an interesting link. Jane Anderson has given solid advice on my celiac-related topics. Open Original Shared Link And this about flour in the air: Open Original Shared Link ...
  12. cyclinglady
    Ugh! Your doctor was wrong. You have to be consuming gluten daily in order for the celiac antibody tests to be valid. Squirmingitch was right! Open Original Shared Link Open Original Shared Link Open Original Shared Link
  13. cyclinglady
    Here's my two cents..... I always bring my own food to all family and friend parties. People mean well, but unless you "walk the walk", so folks just do not get it! There are exceptions though. My parent's house. First, they have two kitchens. So, the basement kitchen is mine. No gluten is ever cooked on the stove or oven. It's mine! Second...
  14. cyclinglady
    I'll just add that your small intestine (if stretched out flat) is like the size of a tennis court! Go ahead and Google it! Anyway, it is easy to miss damaged areas. Just one of many reasons why it can be difficult to get a celiac diagnosis. Adhere to the gluten-free diet (it will take time to learn and to heal) and you should see proof in elevated iron...
  15. cyclinglady
    Doctor Google is amazing. Here is one link explaining why lab ranges vary. You can google more. Open Original Shared Link He is just out of range on the IGA test. It could be from: Open Original Shared Link The danger of Dr. Google is that folks tend to freak out and think they only of the worst outcomes (e.g. Cancer). That is why...
  16. cyclinglady
    I think you mis-understood. Lab ranges can vary from lab to lab. Lab ranges can also change at the same lab if testing protochol has been changed (new management, ownership, cost reduction, the list is endless.....). 1.5 years? Many things could have changed within the same lab. Your best bet is to compare your test results side by side. Ask the lab...
  17. cyclinglady
    CT scans (I have had one) do save lives! I try to think of that versus the negative ramifications of having one. So, I can totally relate!
  18. cyclinglady
    Have you tried an anti-histamine prior to exercising? This happens to my kid and niece. My kid gets a rash and my niece gets asthma. Both do well with anti-histamines. Personally, I am on anti-histamies daily (h1 and H2) because Spring is officially here in California. Itchy rashes, eyes, mouth, nose, upset tummy, and feeling like a truck has hit me...
  19. cyclinglady
    It sounds like gluten could be getting into his diet. I would encourage a follow-up celiac blood panel. In Dr. Alessio Fasano's Gluten Freedom, he writes about a teen who was getting worse. He swore to his parents that he was gluten free. Dr. Fasano spoke to the teen privately who confessed that he was dating a girl and was eating gluten because...
  20. cyclinglady
    There must be more to this story. As a teen, is he diet compliant (gluten free)? Has this been confirmed with follow-up antibody testing? An endoscopy? Does he have any other food intolerances besides his peanut allergy? Does he have any GI symptoms that may be making it hard for him to eat (eat = pain)? Has anorexia been ruled out (that is extreme...
  21. cyclinglady
    I was there last in an RV, so no eating out. Have you tried "Find me Gluten Free"? Like you, I look for reviews made by celiacs. My advice is to pack your own food or purchase at a grocery store (if flying). Being prepared can make your vacation more enjoyable!
  22. cyclinglady
    What were the lab ranges? Each lab varies and you can not compare results from a lab online. He did not get the full panel, just the screening. If you think he has celiac and doctors are perplexed, ask for the DGP and EMA antibody tests. You could also ask for the genetic test to rule out celiac disease. 30% of the population carries the genes...
  23. cyclinglady
    Start eating gluten again. You must be on gluten for 2 to 4 weeks prior to an endoscopy. Luckily, one week of being gluten free should not harm your results. Be sure to share this (gluten free for a week) with your new GI. If your PCP balks, show him the University of Chicago's celiac website or the Mayo Clinic. The endoscopy can check for other issues...
  24. cyclinglady
    Estes, A positive celiac blood test means the next step is getting biopsies 4 to 6 tissue samples of the small intestine via endoscopy. This is done by a GI (Gastroentrologist). A biopsy is required for a celiac diagnosis. This step is sometimes skipped if it is a child. Open Original Shared Link Open Original Shared Link Are you...
  25. cyclinglady
    Best bet when recovering from celiac disease is to stick to a whole fresh or frozen foods diet. Why? Because we tend to have "leaky" gut and we develop food intolerances. This study suggests hidden sources of gluten and recommends a whole fresh foods diet temporarily and the next lecture talks about leaky gut from a celiac expert (not a celiac quack)...
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