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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    You have some serious decisions to make. I know that you are feeling bad and like most of us, have been sick for years and years without a definitive diagnosis. I wrote a lovely response and the forum dropped service (that or my internet provider) when I went to post it last night. Now even the font is messed up and I did nothing to change that! Anyway...
  2. cyclinglady
    Here is a government link to ferritin (iron stores) ranges: Open Original Shared Link I think as you transition into menopause, your doctor should keep on top of your iron levels. Maybe mid-range...... I am not a doctor though.... My experience? I suffered from every single perimenopausal symptom on record for over a decade. The final year was a killer...
  3. cyclinglady
    Since that last celiac blood panel was taken a year ago, I bet your new GI is going to want to run the panel again even before scheduling an endoscopy. So, I would probably advise you to continue to eat gluten daily. I know you want to feel better, but you are so close to getting a correct diagnosis finally! The blood test requires 8 to 12 weeks and...
  4. cyclinglady
    I have been snacking on cheese imported from England (fancy!) that contains cranberries. Yum! Beats eating peanut butter off the spoon! I have never had Chestnuts, but they sound good.
  5. cyclinglady
    I use Nestle Toll-House Chocolate Chips. They do not contain gluten or corn, but they do have soy. We have no soy issues in our household. I just follow the Chocolate Chip recipe on the package and sub the flour for a gluten-free blend. I prefer King Arthur or Pamela's.
  6. cyclinglady
    Welcome to the forum! Now that she is back on gluten, why don't you get her tested for celiac disease? It is a simple blood test. If positive and you get a diagnosis, it will make it easy to stick to the diet and get family support. Constipation is a huge symptom for celiac disease. There are about 300 symptoms, I kid you not! Does gluten affect the...
  7. cyclinglady
    I am not a doctor, but I can give you my two cents. First, he did not have the complete celiac blood panel. Why is this important? Because not everyone tests positive on the TTG tests. I did not. I only tested positive on the DGP IgA. Even when I was recently tested because of an accidental glutening, I still had a negative TTG result and only a positive...
  8. cyclinglady
    Of course you are welcome here! Like Stephanie said, keeping a food journal is your best bet in determining food intolerances.
  9. cyclinglady
    Many of us have had neuropathy as a result of celiac disease. I have had leg tingling and arm itching without a rash! All resolved (very slowly) within a year of two of being gluten free.
  10. cyclinglady
    The only way to know for sure is to ask your doctor to test you for celiac disease. When I am accidentally exposed to gluten and my gut is damaged, I have trouble digesting anything! I resort to well-cooked meat, fish and poultry, veggies and yes, cooked fruit until I have healed.
  11. cyclinglady
    Our PCP (GP) did not blink an eye when I requested testing for my daughter (she had negative results). Bring along a copy of the U of Chicago's testing requirements for first-degree relatives if you think your doctor will resist. Good Luck!
  12. cyclinglady
    This is definitely not my area of expertise, but I am speaking as a mom. If you are diagnosed as having celiac disease, you should get your 13 year old tested. All first-degree relatives should be tested. Here is a link to the University of Chicago's celiac website (a leading celiac disease researcher): Open Original Shared Link The little one? They...
  13. cyclinglady
    Okay. This advice does go against the American GI association's diagnostic criteria but your doctors know your situation best. A gluten challenge usually occurs after a person has been gluten free for months or years. But, in your case, you seem to been on a gluten-containing diet, since you had positive celiac blood test results. I have diabetes...
  14. cyclinglady
    Laura, You should continue to consume gluten until all testing is complete. http://www.cureceliacdisease.org/archives/faq/why-do-you-insist-i-eat-gluten-for-a-diagnosis-when-i-feel-better-on-a-gluten-free-diet
  15. cyclinglady
    Welcome! No, some celiacs do not display any symptoms, but there are about 300 symptoms if celiac disease and you might have a few (little things that you have ignored). This link takes you to the University of Chicago's celiac website. It confirms what I said. Open Original Shared Link Keep eating gluten until all testing is complete! I just had anemia...
  16. cyclinglady
    I do not buy the Ortega taco shells but I do buy the taco sauce. No mention of gluten-free on the label, but the ingrediants are all gluten free. Hopefully, the raw materials are gluten-free! We have not had a glutening yet! The company probably did not want to test or guarantee that the taco shells are gluten free because of liability issues. We eat...
  17. cyclinglady
    Welcome! My TTG tests were negative. I tested positive on another celiac test -- the DGP yet I had moderate to severe intestinal damage. I also was only anemic at the time of my DX. No tummy issues. Your daughter has a positive on the TTG and that catches about 95% of all celiacs. She probably has it. ?. Make sure they take 4 to six biopsy samples...
  18. cyclinglady
    Yes! You have two positives (26 & 425). You should be referred to a GI doctor that is standard procedure. Gives you a baseline for damage. But that is not always possible (cost, long wait times). So, you can chose to go gluten free or go in for the final test (keep eating gluten until all testing is complete.). Like you, my TTG results were negative...
  19. cyclinglady
    Seriously, if you have been consuming gluten for the past few years, get retested as Karen suggested.
  20. cyclinglady
    Very lucky! ?
  21. cyclinglady
    To answer your latest question.....who knows? I tested positive on just the DGP iga (I have Hashi's and take Armour). My TTG tests were negative, yet biopsies revealed a Marsh Stage IIIIB ( moderate to severe damage). When tested recently, i tested exactly the same way. Just the DGP iga was positive. I know the TTg tests are supposed to catch the majority...
  22. cyclinglady
    Is there a reason why your doctor did not order an endoscopy to obtain biopsies? It usually is the final step. Some people skip this step because of cost (lack of insurance) or long wait times in some countries.
  23. cyclinglady
    I have been gluten-free for two and a half years too. My gluten-free diet learning curve was not steep since I had been living with and preparing gluten-free food for my husband for over a decade. In the beginning I thought I was getting glutened. Turns out xanthan gum (a substitute for gluten in commercial baked gluten-free goods) was a big problem for...
  24. cyclinglady
    We have hosted kids from Germany and Japan. I would strongly recommend going through an established student-exchange group. They screen families for criminal records, etc. They also cover health and liability insurance. They work with the high schools as well. And like Karen said, if it does not work out, the group steps in and resolves the situation...
  25. cyclinglady
    Road trip? Invest in an ice chest. Cook/reheat meals (that you prepared at home) in your hotel room/house you are visiting. The grocery store will become your favorite fast food joint. Target even carries UDI's frozen gluten-free meals. The lasagne is pretty good! Find Me gluten-free is a great app except you need to read the reviews. Find restaurants...
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