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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    It sounds like a gallbladder attack. Just something to think about.
  2. cyclinglady
    Just keep eating gluten! After the second round of blood tests, you can decide whether or not you can wait until October for the GI. You can always call to check for cancellations to see if you could get in earlier. Still...that ttg was positive!
  3. cyclinglady
    Any medical doctor can order the complete celiac panel: -tTG IgA and tTG IgG -DGP IgA and DGP IgG -EMA IgA -total serum IgA and IgG (control test) -AGA IGA and AGA IgG - older and less reliable tests largely replace by the DGP tests -endoscopic biopsy - make sure at least 6 samples are taken (Source: NVSMOM -- ) You can not exclude celiac disease...
  4. cyclinglady
    Borderline? That is like saying you are just borderline pregnant! Your TTG was positive. He should run the complete celiac panel if he wants to retest. If positive, you should be referred to a GI doctor. What am I saying? It was positive! -tTG IgA and tTG IgG -DGP IgA and DGP IgG -EMA IgA -total serum IgA and IgG (control test) -AGA IGA...
  5. cyclinglady
    I am glad that your health is improving! I read on your profile that you surf. You can certainly pickup a lot of nasty things in the water and parasites are difficult to identify and treat. Were you ever tested for celiac disease? I realize that you have been given the run around by traditional medical staff, but they do some things well. I would...
  6. cyclinglady

    ARCHIVED Day 7

    cyclinglady replied to binkman's topic in Coping with Celiac Disease

    Cream cheese still has lots of lactose. Try hard cheeses if you are going to test dairy. Better yet, avoid it completely for the first few months.
  7. cyclinglady

    ARCHIVED Day 7

    cyclinglady replied to binkman's topic in Coping with Celiac Disease

    Congratulations! So glad that you are seeing improvement. Relapses for no reason are common for those with celiac disease. You can have a lot of "off" days as you continue to heal. We tend to blame gluten, but often it can be another food intolerance or who knows? Remember, there is a steep learning curve in avoiding gluten, so expect mishaps. ...
  8. cyclinglady
    I am not a doctor, but I have never heard of pin worms living outside of the intestinal tract. They are very common in small children. They have to be ingested (usually playing in dirt) and the worms come out of the rectum to lay eggs, kids scratch, put their fingers in their mouths and they re-infect themselves. It is so common that there is an over...
  9. cyclinglady
    Keep us posted! Celiac disease symptoms can wax and wane. It is so frustrating! I sincerely hope you find answers.
  10. cyclinglady
    Didn't your doctor advise you to continue to eat gluten until all tests were completed (includes biopsies taken during an endoscopy)? Do you know if a complete celiac panel was done?
  11. cyclinglady
    I think you should not look necessarily at the scale. What is your BMI? What is your body fat percentage? What is your age (being perimenopausal can cause an average of 10 pounds in weigh gain as your body tries to create estrogen from anywhere outside of your ovaries to maintain a hormone balance)? What is high insulin? Do you mean high blood glucose...
  12. cyclinglady
    While some people are never able to get a diagnosis (my hubby) and manage well on a gluten-free diet (14 years), a firm diganosis can mean more support from family, friends and medical. Celiac disease runs strongly in families. There is no resistance to testing when my kid needs it every few years even though she is symptom free (same for my siblings)....
  13. cyclinglady
    Are you driving or flying? The car's easy. Just bring an ice chest (yeah, haul it into your hotel room) and fill it with gluten-free food. Enough to last the length of your trip or you can replenish. Keep a few non-perishable things in your purse or bag in case you can not find safe food. You can always just order a drink if you don't think you...
  14. cyclinglady
    Very interesting! I always try to remind folks that you can have more than one type of anemia. I had iron-defciency anemia due to celiac disease, but also have Thalassemia which is a genetic anemia (and will never go away!)
  15. cyclinglady
    I answered in another post, but I think you need to really make sure you are gluten free. Check meds, stop eating out for now, look at your kitchen (do you live with gluten eaters?).
  16. cyclinglady
    Soon, you will be feeling better! That's the good news! Read up on the Newbie 101 section under "Coping". There are valuable tips regarding cross contamination, etc. Then get your son tested and if negative, keep testing him every couple of years. That's what I do with my kid. Hugs!
  17. cyclinglady
    After my DPG-iga came back positive, I knew in my heart that I had celiac disease. I had seven weeks in between my blood test results and endoscopy (work contraints), so I loaded up on even more gluten (I was eating gluten prior to my blood tests). I ate a loaf of sourdough a day, I kid you not! Plus, I ate every cookie, cupcake, dessert, I could get....
  18. cyclinglady

    ARCHIVED Travel

    cyclinglady replied to mfarrell's topic in Related Issues & Disorders

    The styrofoam coolers are great too!
  19. cyclinglady

    ARCHIVED Travel

    cyclinglady replied to mfarrell's topic in Related Issues & Disorders

    Yeah, we pack it in with our carry on stuff. No ice or liquids though. We add cool things once we get through security like (cheese, fruit, etc.) Then we use it in the hotel, rental car, etc.
  20. cyclinglady
    Sound like you are constantly getting glutened. Are all your meds gluten free? Did you contact the manufacturers to confirm? I do that because my pharmacist told me they are just too busy to contact them on my behalf. It can take one, two or three years to finally feel better. Most likely because the learning curve for going gluten free is steep...
  21. cyclinglady
    I agree that you need to be consuming gluten longer to get accurate test results since you have been gluten free. Four weeks is enough for just the endoscopy. 8 to 12 weeks for another blood panel (University of Chicago celiac website). My GI doc ran the complete panel. I tested positive on just the DPG-iga test. The others were negative. Yet...
  22. cyclinglady
    Why wouldn't your new GI follow standard GI procedures for diagnosing celiac disease? Here's a link from the American College of Gastroenterology: Open Original Shared Link Other links from the US Government and leading celiac disease research hospitals: Open Original Shared Link Open Original Shared Link Open Original Shared Link ...
  23. cyclinglady

    ARCHIVED Travel

    cyclinglady replied to mfarrell's topic in Related Issues & Disorders

    A soft-sided cooler is helpful. You can fill it with ice after shopping at Whole Foods. That's what my husband does when traveling. It is a pain, but worth the effort. Feeling sick on a business trip is worst than being sick on vacation! When you read restaurant reviews, look for those posted by those with celiac disease. Otherwise, higher end...
  24. cyclinglady
    We used to have a shared kitchen before I was diagnosed with celiac disease, but with both my husband and I needing to be gluten free, we just banned gluten period. It is a relief for my husband and it just makes it easier for us. We need at least one safe place to be gluten free and let down our guard. Let's face it, it is hard to think clearly when you...
  25. cyclinglady
    Kay, Did not mean to sound so flippant. I was serious about asking an extra friend to go along. My parents like to cruise with my Dad's sister. My mother's health is unpredictable, so my Aunt will dance with my Dad and do the shore tours. It is a win-win situation!
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