Jump to content

cyclinglady

Advanced Members
 View Profile  See their activity

  • Posts

    9,348

  • Joined

  • Last visited

  • Days Won

    396

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    I know it is not Bells's Palsy (hubby had it last year), but maybe your issues involve the same set of nerves that get pinched or inflamed. Instead of paralysis, maybe yours is presenting differently. No one knows what sets off Bell's but the theory is that it is a virus. Something to research......
  2. cyclinglady
    Based on my limited research and the fact that I am not a doctor or a scientist, I think celiac disease in general can be difficult to diagnose. Nothing is clear cut. I assume that it can be more difficult for a small child as they can not always verbalized symptoms and their parents are often given poor advice from their doctors and many other reasons...
  3. cyclinglady
    Casper, Please call this hotline number now! I am sure they can help you. I care! 1-800-273-8255
  4. cyclinglady
    I would stop fretting over it. Your best bet is to keep on top of celiac disease research, use this forum for questions and support, maybe find a local support group, and get on with your life. Insurance is going to deny you for many things over the course of your life. Some things are worth fighting for, but this issue is not. Most registered dieticians...
  5. cyclinglady
    Well, first you are pretty sick! Who knows what damage has been done to your body as a result of your celiac disease? On top of that you are are perimenopausal! A double whammy! I can completely relate! I was 51 when I was diagnosed. Two years later, I am so much better! But I am sorry to report that I am struggling with my post menopausal symptoms...
  6. cyclinglady
    Well, it appears that you got one positive out of the panel! The AGA tests are older and considered less reliable. The newer DPG tests are better. I personally only had one positive on my panel too. My biopsy via endoscopy showed moderate to severe damage. It might be worth repeating the panel and including the newer DPG tests. Be sure to keep your...
  7. cyclinglady
    Welcome! Here is a good and reputable place to start: Open Original Shared Link There are over 300 symptoms of celiac disease. Some folks do not experience ANY symptoms! I was the first to be diagnosed in my family. I would recommend a complete celiac blood test panel which includes: -tTG IgA and tTG IgG -DGP IgA and DGP IgG -EMA IgA -total...
  8. cyclinglady
    Welcome Hawkeye! I hid a few of your postings since they were all the same. It was nice that you responded to each poster, but those folks have not been around in years and are unlikely to respond to you. You might just get a few current members to comment. If your doctor is willing to test you for celiac disease (and I think he should), here is the...
  9. cyclinglady
    Even though you do not have a DGP benchmark, it is still good to get, it helps test for dietary compliance. Who knows how well or fast you will heal? Everyone is different. And I am not sure a few accidental glutenings will affect the test. Again, if you are worried, then postpone the test.
  10. cyclinglady
    The learning curve for celiac disease is steep. I think most doctors do not re-check until six months after diagnosis. Because people make lots of mistakes in the beginning. It can take a long time to heal. Some up to three years or more depending in the severity of damage (two years for me). My antibodies were barely positive at the time of my diagnosis...
  11. cyclinglady
    Wow! So happy for you!
  12. cyclinglady
    All the experts recommend eating gluten daily for a challenge. Sorry!
  13. cyclinglady

    ARCHIVED Thyroid

    cyclinglady replied to AmandaD's topic in Related Issues & Disorders

    I have had Hashi's for almost 20 years. Has it been a big deal? Not often. The anxiety, for me, usually occurs when I am running hyper. Then I have eye muscle pain, muscle weakness, fatigue. Hypo usually presents with fatigue too, but necessitating a nap. I am that tired. I can lose hair in the outer edgs of my eyebrows too and my periods can become...
  14. cyclinglady
    Most celiac disease is found via biopsy. Just the endoscopy alone (visual) will not catch celiac disease. I had severe damage per the biopsy, but visually everything looked fine per my GI doctor. If you want to get tested, get back on gluten. Four days should not make a difference. Here are all the tests. Try to get more than just the TTG. Not everyone...
  15. cyclinglady
    If I can get my Labrador dog to keep a bootie on her paw every single day, all day long, then you can do it with your son. It will take some training, but he will get used to it. My lab is old and injured her pad on her front left paw last Fall. She was too old for surgery, so I kept it clean and wrapped with flannel and a dog boot. The pad healed...
  16. cyclinglady
    I hear you! My daughter does not have celiac disease, but hubby and I both do! I feel like I have been cooking forever! Plus, we work from home. I am akin to Ma Ingalls and cooking three hot meals per day (luckily not in a wood stove). One month is is tough. It will get easier, I promise. And you are doing the right thing by avoiding restaurants...
  17. cyclinglady
    Kids usually recover much faster than adults. Because they may need to temporarily avoid milk lactose, I would add a calcium gummy. Be sure it is gluten-free. The rest of their diet should be wide and varied. Hide those greens in casseroles, etc. Make gluten-free dips for raw veggies and decorate celery sticks with Peanutbutter and raisins. Search the...
  18. cyclinglady
    Keeping a food diary is a good idea to help identify intolerances. The most common intolerance for those with celiac disease is lactose. Villi tips are damaged. That is where the enzymes are released to help digest lactose (milk sugar). I would take milk out of their diet (in any form) and then rintroduce just hard cheeses or yogurt as these have been...
  19. cyclinglady
    I wear a "Road ID" bracelet/Velcro band when I run or bike. Has all the family phone numbers, name, etc. Could he wear one of those in addition to written notes and meetings?
  20. cyclinglady
    Those camps are located in North Carolina and Washington. I want to go! Imagine not worrying about eating at all! No labels to check, no grilling the chef or manager, no cooking or shopping for food. What a luxury! Just having fun hiking, swimming, biking, reading under a pine tree, archery, horseback riding. The list is endless.
  21. cyclinglady
    I guess you found this letter? Open Original Shared Link
  22. cyclinglady
    I think your best bet is getting to a medical doctor. Do you not have insurance? We have suggested that you could: 1) get tested for celiac disease 2) get your bile ducts checked out as you can still develop gallstones even without a gallbladder 3) you could have liver and pancreatic issues 4) you could have cancer 5) you might have a parasite...
  23. cyclinglady
    What did you end up making for dessert?
  24. cyclinglady
    The celery powder does not bother me. That is usually in the turkey lunch meat I buy (Hormel or Hillshire Farms Natural). I think it is a combo of the traditional nitrites, sulfites, and my garlic/onion intolerance that has not resolved yet. No, am changing my mind. I have blamed nitrates or garlic for years, but my nausea and vomiting only occurs...
  25. cyclinglady
    I can not eat nitrates either. Add in any garlic and six to eight hours later I am vomiting that particular food that has been sitting my my stomach. You can not pay me to eat a sausage or hot dog! We eat fresh meat or uncured if we buy lunch meat like turkey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.